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Help for Clusters Using Functional Neurology. (Read 10046 times)
Laurelyn DC
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Help for Clusters Using Functional Neurology.
Jun 6th, 2015 at 11:43am
 
Hello,
I wanted to share a way to deal with clusters that is rather new.  My man had the clusters almost every night for 4 years. As you already know, nothing really helps(he wouldn't try oxygen)
I am a Chiropractor, I dragged him around to all kinds of body workers, nothing nothing.
Last resort (which should have been first but the place wasn't built yet)
Carrick Brain Institute. A Chiropractic Functional Neurology Center. There is one here in Marietta, GA, and one in Dallas, TX.
The docs tested his brain function with balance tests, and all sorts of eye tracking tests. They showed us a graph of the results, how the two sides of his brain were not even integrated in function together. Because the wiring is off, the headaches were actually the brain interpreting normal signals incorrectly as pain. I know that sounds odd....
Treatment was 4x/day for a week with reexams every other day.
Eye movement exercises....accommodation, looking at dots while walking back and forth, spinning him to the left in a 360 motion machine, and giving light shocks to the Trigeminal nerve to "remind the brain what pain signals should be"
I videotaped him during the week when he had a headache, videotaped him doing the eye movements during the headache.
Doc's watched his eyes in the video and changed their treatment slightly.
First reexam the graph showed the brain was starting to work together! Even better on the last exam.
That day, he had Three clusters.
Nevertheless he went home with his beads on a string and a paper with dots to continue his home eye exercises. I wasn't allowed to adjust him or massage him awhile so as not to disturb the brain rewiring.
About 5 weeks went by with no headache, only some almost ones. Then he got sick... I adjusted him cause I thought it had been a long enough time. Headaches came back hard!!!
But..... He also had not been doing his eye exercises enough since the headaches were gone.
Back to the eye exercises! 3x a day.
Headaches reduced to once a week or so greatly diminished in intensity, especially when he did his exercises enough.
I then learned about the Anti Inflammatory Protocol on this site from one of my patients.
It's been another 5 weeks without a real headache, just taking the vitamin D along with eye exercises!
I can adjust and massge him with no headache happening after.
We did the Functional Neurology in January, it didn't show miracles immediately, but worked without drugs.
The eyes can rehab the brain because they are brain tissue. I encourage anyone who suffers frrom these headaches to find a Chiropractic Neurologist, Functional Neurologist, or even a good Vision Therapist will be able to test eye movement and tracking abnormalities.  Not everyone has the same kind of tracking problems, so it's important to get checked by a pro for your personal homework.
I wanted to share this in hopes that it may help.
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BobG
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Re: Help for Clusters Using Functional Neurology.
Reply #1 - Jun 6th, 2015 at 4:00pm
 
Hi Laureyln. Welcome to the board. Thank you for the information.
You say nothing really helps. Can you tell us what he has tried? And you say he won't try oxygen...Why not? Oxygen is a very popular treatment to abort a cluster headache attack. It's cheap, easy to use, safe and can kill an attack quickly.
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Stay stressed. Never relax. Never sleep. Ever.
 
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Potter
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Re: Help for Clusters Using Functional Neurology.
Reply #2 - Jun 6th, 2015 at 11:07pm
 
Laurelyn DC wrote on Jun 6th, 2015 at 11:43am:
Hello,
I wanted to share a way to deal with clusters that is rather new.  My man had the clusters almost every night for 4 years. As you already know, nothing really helps(he wouldn't try oxygen)
I am a Chiropractor, I dragged him around to all kinds of body workers, nothing nothing.
Last resort (which should have been first but the place wasn't built yet)
Carrick Brain Institute. A Chiropractic Functional Neurology Center. There is one here in Marietta, GA, and one in Dallas, TX.
The docs tested his brain function with balance tests, and all sorts of eye tracking tests. They showed us a graph of the results, how the two sides of his brain were not even integrated in function together. Because the wiring is off, the headaches were actually the brain interpreting normal signals incorrectly as pain. I know that sounds odd....
Treatment was 4x/day for a week with reexams every other day.
Eye movement exercises....accommodation, looking at dots while walking back and forth, spinning him to the left in a 360 motion machine, and giving light shocks to the Trigeminal nerve to "remind the brain what pain signals should be"
I videotaped him during the week when he had a headache, videotaped him doing the eye movements during the headache.
Doc's watched his eyes in the video and changed their treatment slightly.
First reexam the graph showed the brain was starting to work together! Even better on the last exam.
That day, he had Three clusters.
Nevertheless he went home with his beads on a string and a paper with dots to continue his home eye exercises. I wasn't allowed to adjust him or massage him awhile so as not to disturb the brain rewiring.
About 5 weeks went by with no headache, only some almost ones. Then he got sick... I adjusted him cause I thought it had been a long enough time. Headaches came back hard!!!
But..... He also had not been doing his eye exercises enough since the headaches were gone.
Back to the eye exercises! 3x a day.
Headaches reduced to once a week or so greatly diminished in intensity, especially when he did his exercises enough.
I then learned about the Anti Inflammatory Protocol on this site from one of my patients.
It's been another 5 weeks without a real headache, just taking the vitamin D along with eye exercises!
I can adjust and massge him with no headache happening after.
We did the Functional Neurology in January, it didn't show miracles immediately, but worked without drugs.
The eyes can rehab the brain because they are brain tissue. I encourage anyone who suffers frrom these headaches to find a Chiropractic Neurologist, Functional Neurologist, or even a good Vision Therapist will be able to test eye movement and tracking abnormalities.  Not everyone has the same kind of tracking problems, so it's important to get checked by a pro for your personal homework.
I wanted to share this in hopes that it may help.



Bullshit.

      Potter
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AussieBrian
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Re: Help for Clusters Using Functional Neurology.
Reply #3 - Jun 7th, 2015 at 1:42am
 
G'day Laurelyn, welcome, and we always reckon it's beaut when someone is ready to support one of our fellow headache-sufferers.

Importantly, has your mate been genuinely diagnosed as suffering cluster headaches? If so, we can offer heaps in the way of advice and suggestions.

If not we truly recommend he see a headache specialist to ensure it's really clusters and not something else which might be serious and is going untreated. As a chiropractor yourself, a health professional, you surely understand the need for a proper diagnosis from the start.

We'll help you every inch of the way because we care,

Brian down under.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Bob P
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Shut up Bob!


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Re: Help for Clusters Using Functional Neurology.
Reply #4 - Jun 7th, 2015 at 7:34am
 
Quote:
Bullshit.

Geez, I love this guy!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
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tangerinearmy
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Re: Help for Clusters Using Functional Neurology.
Reply #5 - Jun 7th, 2015 at 3:04pm
 
i have one eye and cluster headaches

how will the doctors study my eye exercises and adjust them.
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blacklab
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Re: Help for Clusters Using Functional Neurology.
Reply #6 - Jun 10th, 2015 at 4:28am
 
Bob P wrote on Jun 7th, 2015 at 7:34am:
Quote:
Bullshit.

Geez, I love this guy!


LOL   Grin
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AussieBrian
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Cairns, Qld, Australia
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Re: Help for Clusters Using Functional Neurology.
Reply #7 - Jun 10th, 2015 at 5:04am
 
Quote:
Bob P wrote on Jun 7th, 2015 at 7:34am:
Quote:
Bullshit.

Geez, I love this guy!


LOL   Grin

That was her first post. A supporter in obvious need of advice and knowledge to properly help a fellow ClusterHead.

It was her only post.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Peter510
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Re: Help for Clusters Using Functional Neurology.
Reply #8 - Jun 10th, 2015 at 5:25am
 
Well said Brian.

Not what this site is about at all.

Peter.
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« Last Edit: Jun 10th, 2015 at 9:04am by Peter510 »  

You don't stop laughing because you grow old....You grow old because you stop laughing.
 
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maz
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Re: Help for Clusters Using Functional Neurology.
Reply #9 - Jun 10th, 2015 at 9:54am
 
You say nothing helps and he won't try oxygen. If it is CH and not one of it's mimics then there is plenty that will help and oxygen is one of the best abortives there is. It is also the absolute safest. Why won't he try it?

So he finds it preferable to suffer CH every night for 4 years rather than try the purest form of the air we breathe. He really doesn't need all the tests and stuff you've been doing - just breathe.

I'm glad what you are doing seems to be helping but it seems like an awful lot of fuss, and time consuming. While all these tests and therapy and exercises are taking place he continues to suffer when he need not.

I know personally that in the throes of a really bad CH most of us would try anything. I'm not suggesting that he is not in pain, but I do wonder if it really is CH because I don't imagine any CHer refusing oxygen. Have you had a proper diagnosis from a neurologist/headache specialist.

Whatever the diagnosis, treatment etc, your support in any form is important to him, so keep it up. He needs to know he's not alone.
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Potter
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Re: Help for Clusters Using Functional Neurology.
Reply #10 - Jun 10th, 2015 at 3:22pm
 
AussieBrian wrote on Jun 10th, 2015 at 5:04am:
Quote:
Bob P wrote on Jun 7th, 2015 at 7:34am:
Quote:
Bullshit.

Geez, I love this guy!


LOL   Grin

That was her first post. A supporter in obvious need of advice and knowledge to properly help a fellow ClusterHead.

It was her only post.


  First and only post and never came back.  It's a spammy ad for chiropractics for crissakes.  You keep on huggin em Brian.

           Potter
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Hoppy
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Re: Help for Clusters Using Functional Neurology.
Reply #11 - Jun 10th, 2015 at 5:50pm
 
Chiropractors! Cost me an arm and a leg, doesn't work
when it comes to treating CH's.

Hoppy
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AussieBrian
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Re: Help for Clusters Using Functional Neurology.
Reply #12 - Jun 10th, 2015 at 11:55pm
 
Quote:
  You keep on huggin em Brian.

           Potter

Certainly I'll keep on huggin em, Potter, because when I get it wrong no-one gets hurt.

But when you get it wrong a ClusterHead and first-time poster is abused, accused and sent away without the knowledge and support that ch.com is here to provide.


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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Sean McE
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Re: Help for Clusters Using Functional Neurology.
Reply #13 - Jun 11th, 2015 at 12:55am
 
     Can I play the devils advocate here? On the assumption she was only being honest? Once upon a  time I thought I ended an episode by taking feverfew and had I spouted the miraculous healing powers of the stuff I would have been wrong..... but honest, for I truly believed in it at the time.

                    Sean
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Mike NZ
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Oxygen rocks! D3 too!


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Re: Help for Clusters Using Functional Neurology.
Reply #14 - Jun 11th, 2015 at 7:37pm
 
AussieBrian wrote on Jun 10th, 2015 at 11:55pm:
Quote:
  You keep on huggin em Brian.

           Potter

Certainly I'll keep on huggin em, Potter, because when I get it wrong no-one gets hurt.

But when you get it wrong a ClusterHead and first-time poster is abused, accused and sent away without the knowledge and support that ch.com is here to provide.


I totally agree with you Brian.

I saw someone post about what they believe is working for their partner and trying to help others. I saw not advert, no website links to adverts or anything similar.

We all know what the impact of headache pain can be and how vital support and a welcome are.

I hope the person who posted is still reading the site and getting useful information.
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Potter
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Re: Help for Clusters Using Functional Neurology.
Reply #15 - Jun 13th, 2015 at 4:18pm
 
AussieBrian wrote on Jun 10th, 2015 at 11:55pm:
Quote:
  You keep on huggin em Brian.

           Potter

Certainly I'll keep on huggin em, Potter, because when I get it wrong no-one gets hurt.

But when you get it wrong a ClusterHead and first-time poster is abused, accused and sent away without the knowledge and support that ch.com is here to provide.





Brian did you even read the Advertisement or do you just have a pat answer for all of the spammers sellin quack cures?

                Potter

                    Potter
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blacklab
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Re: Help for Clusters Using Functional Neurology.
Reply #16 - Jun 14th, 2015 at 4:21am
 
Quote:
Bob P wrote on Jun 7th, 2015 at 7:34am:
Quote:
Bullshit.

Geez, I love this guy!


LOL   Grin


I actually hope the first time poster comes back and posts some more info, I shouldn't have put the smiley post up, it was in response to what was said, not on the content of laureyln's post.
my apologies for doing so if it in anyway stopped someone from repeat posting !
I shall be more care full in future.
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Bob P
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Shut up Bob!


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Re: Help for Clusters Using Functional Neurology.
Reply #17 - Jun 15th, 2015 at 8:40am
 
Most of my friends are straight shooters.  That's why I luv Potter!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
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blacklab
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Re: Help for Clusters Using Functional Neurology.
Reply #18 - Jun 16th, 2015 at 4:32am
 
Bob P wrote on Jun 15th, 2015 at 8:40am:
Most of my friends are straight shooters.  That's why I luv Potter!

yep, I probably shoot from the hip too Bob,
maybe sometimes a bit to much  LOL
It was your comment that cracked me up !!

But I do see Brian's and others point. It could very well have been an add as potter said, but then again, it could have been someone relaying an experience and being perfectly honest in their post about hubbies experience.
I have an opinion on it
but, Brian is right, in never wanting to dismiss a potential honest first time poster......
Hey, I recon after 3 or 4 posts, it would be pretty obvious of any posters intensions, whether legitimate or touting for business, then I guess, a bit of  " potter" would be suitably appropriate  LOL
I guess its just a case of being 100% in case we do turn someone with honest intent away.......... just saying

cheers
colin
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Lenny
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Re: Help for Clusters Using Functional Neurology.
Reply #19 - Jun 16th, 2015 at 1:56pm
 
Bob P wrote on Jun 15th, 2015 at 8:40am:
Most of my friends are straight shooters.  That's why I luv Potter!


HI Bob...hope you dont mind me saying so...i WUV him too and perhaps a bit more than you  Grin Grin Cheesy Cheesy Shocked Shocked
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yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead
 
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Bob P
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Shut up Bob!


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Re: Help for Clusters Using Functional Neurology.
Reply #20 - Jun 17th, 2015 at 7:22am
 
Hi Lenny.  Long time.  Hope you're doing OK.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
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Ricardo
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Re: Help for Clusters Using Functional Neurology.
Reply #21 - Jun 22nd, 2015 at 11:16am
 
Quote:
Bullshit.

      Potter


That would be a great example of just how bad we can all get.  Potter does no one any favors by acting arrogant enough to think that someone else might have new information that could help.  All too often he seems determined to convince everyone that he knows the situation and other people don't, but I can tell you for sure it does Clusterheadaches.com no good at all.  He attempted to chase me off the site at one point too, trying to tell me that the ideas I was throwing out there were bullshit and convinced other people to attack me as well.  Then he sent me a message with a flashing graphic that said "your post was so stupid you deserve a seizure" because I had mentioned that I was suffering from grand mal seizures.  Anyone that jumps on his band wagon of stupidity, ignorance and egotistical arrogance is, in my opinion helping our cause in no way at all.

Potter can keep acting like he knows all the answers and chasing any new ideas away, meanwhile the rest of us will figure out the intricacies of what is going on with cluster headache.

-Ricardo

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« Last Edit: Jun 22nd, 2015 at 1:41pm by Ricardo »  
 
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Potter
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Re: Help for Clusters Using Functional Neurology.
Reply #22 - Jun 23rd, 2015 at 12:25pm
 
Ricardo wrote on Jun 22nd, 2015 at 11:16am:
Quote:
Bullshit.

      Potter


That would be a great example of just how bad we can all get.  Potter does no one any favors by acting arrogant enough to think that someone else might have new information that could help.  All too often he seems determined to convince everyone that he knows the situation and other people don't, but I can tell you for sure it does Clusterheadaches.com no good at all.  He attempted to chase me off the site at one point too, trying to tell me that the ideas I was throwing out there were bullshit and convinced other people to attack me as well.  Then he sent me a message with a flashing graphic that said "your post was so stupid you deserve a seizure" because I had mentioned that I was suffering from grand mal seizures.  Anyone that jumps on his band wagon of stupidity, ignorance and egotistical arrogance is, in my opinion helping our cause in no way at all.

Potter can keep acting like he knows all the answers and chasing any new ideas away, meanwhile the rest of us will figure out the intricacies of what is going on with cluster headache.

-Ricardo



And she never came back.

       Potter
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Peter510
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Re: Help for Clusters Using Functional Neurology.
Reply #23 - Jun 23rd, 2015 at 3:06pm
 
Potter,

" and she never came back"........Does that mean you were right, or wrong?

Peter.
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Potter
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Re: Help for Clusters Using Functional Neurology.
Reply #24 - Jun 23rd, 2015 at 4:11pm
 
Peter510 wrote on Jun 23rd, 2015 at 3:06pm:
Potter,

" and she never came back"........Does that mean you were right, or wrong?

Peter.


Neither just an observation on the OP.  She made blatant bullshit claims about chiropractics that were nothing more than an advertisement for her own practice.

         Potter
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