The complexity and unknowns about fibro.... are such that I'd suggest consulting a headache specialist (not necessarily a neurologist unless you  confirm that they have education and experience with complex headache disorders)

My first reaction to your question: see,

Link to: cluster-LIKE headache:

IN: "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache"

I assume that you are using one of the meds which is a preventive/reduces attacks. An abortive, as the only treatment, is inadequate.

The cluster-like message is not complete, i.e., a month never passes when a new condition, which appears to be Cluster, is found to arise from a non-headache condition. The issue being raised is: if it appears to be Cluster but not resonding to the usual Cluster treatments, then the doc should consider that it's a cluster-mimic condition.

As to the source of Cluster:

Interesting to note that he is saying that the primary mode of action is NOT as a vasoconstrictor but on its effect on the central nervous system. Doesn't change our appreciation of this class of meds but suggests we need to change how we think about the nature of CH.
==============================
Handb Exp Pharmacol. 2007;(177):129-43.   


Serotonin receptor ligands: treatments of acute migraine and cluster headache.


Goadsby PJ.

Institute of Neurology, Queen Square, London WC1N 3BG, UK. peterg@ion.ucl.ac.uk

Fuelled by the development of the serotonin 5-HT(1B/1D) receptor agonists, the triptans, the last 15 years has seen an explosion of interest in the treatment of acute migraine and cluster headache. Sumatriptan was the first of these agonists, and it launched a wave of therapeutic advances. These medicines are effective and safe. Triptans were developed as cranial vasoconstrictors to mimic the desirable effects of serotonin, while avoiding its side-effects. IT HAS SUBSEQUENTLY BEEN SHOWN THAT THE TRIPTANS' MAJOR ACTION IS NEURONAL, WITH BOTH PERIPHERAL AND CENTRAL TRIGEMINAL INHIBITORY EFFECTS, AS WELL AS ACTIONS IN THE THALAMUS AND AT CENTRAL MODULATORY SITES, SUCH AS THE PERIAQUEDUCTAL GREY MATTER. Further refinements may be possible as the 5-HT(1D) and 5-HT(1F) receptor agonists are explored. Serotonin receptor pharmacology has contributed much to the better management of patients with primary headache disorders.

PMID: 17087122 [PubMed]
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J Clin Neurosci. 2010 Mar 11.

What has functional neuroimaging done for primary headache ... and for the clinical neurologist?
Sprenger T, Goadsby PJ.

UCSF Headache Centre, Department of Neurology, University of California, 1701 Divisadero St, Suite 480, San Francisco, CA 94115, USA.

Our understanding of mechanisms involved in primary headache syndromes has been substantially advanced using functional neuroimaging.

THE DATA HAVE HELPED ESTABLISH THE NOW-PREVAILING VIEW OF PRIMARY HEADACHE SYNDROMES, SUCH AS MIGRAINE AND CLUSTER HEADACHE, AS BRAIN DISORDERS WITH NEUROVASCULAR MANIFESTATIONS, NOT AS DISORDERS OF BLOOD VESSELS.

PMID: 20227279 [PubMed]

Kate in Oz wrote on Jul 12^th, 2014 at 9:34pm:


Ummmmm....golly...that was just a delight to read Kate! Your insights mirror many of my own... it took me so many years...but experience and this ch.com family led me to the same conclusions. I just didn't know how to say it...thank you!

My thoughts and prayers are with you in this other battle.

Best

Jon

Thanks Jon and Wimsey.  Any excuse to come back and see what everyone has been up to 

Yes I am aware of the D3 regime and happy to see people talking about it on other social networking sites eg. Facebook.

Slowly but surely people are becoming more aware and that is a wonderful thing.  Knowledge is power!

Hope you are both doing well.

x

Hi Ricardo,

Thanks for that information, really appreciate it.  It is interesting to hear that psychedelics worked in terms of pain relief for the fibro.  I was at a party a few weeks ago and was offered some wacky week  (first time I've had that in years!) and it did wonders for my body pains!!   Not sure that I am going to bust but if I do I will post again.

Cheers.

Thanks for that link Ricardo  not really surprised to hear that at all. 

Cheers