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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Australian Specialist?

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Australian Specialist? (Read 1648 times)

Cadz

CH.com Newbie

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There's Glitter on the
Floor!

Posts: 16
Canberra, Australia
Gender: female

Australian Specialist?
May 17^th, 2014 at 9:43am

Hi,

I'm in a bit of a spot. My GP is not being helpful or understanding. A few years ago, he referred me to my neuro to 'shut me up'. Neuro diagnosed me, but has very little understanding of CH. He reads from his computer; and keeps giving me Verapamil. High doses help the CH, but make me pass out. Lower doses are not helpful. Combined with Topomax for a while; and I was not a pretty sight.

It's been 3 years of my neuro refusing to try anything different. I'm fed up. Tired. And in my 3rd cycle this year already (when I normally only have 1 a year!)

So this long, annoying post, to really ask if anyone can recommend a specialist in Australia. At this point, I'll go anywhere within the country. I'm based in Canberra - so Sydney is probably easiest, but it doesn't really matter.

I was once told there is a CH specialist in Sydney; but I have lost his name!

I think I would just really like to have an educated conversation - not being the one telling the neuro "I read this, and that, and this".

Sorry, no sleep in 3 days due to evil waking me up is making me miss-cranky-pants!

Any help or suggestions would be greatly appreciated.

Cadz

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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: Australian Specialist? Reply #1 - May 17^th, 2014 at 3:07pm Sorry I'm not in Australia (though I wish I was) so can't offer any suggestions other than to google " headache specialist Sydney" and see what comes up. Hope you have some luck with it. Maz.
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Australian Specialist? Reply #2 - May 17^th, 2014 at 5:05pm Hi Cadz, If you google Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or someone there will point you in the right direction. Hoppy.
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Australian Specialist? Reply #3 - May 17^th, 2014 at 5:14pm I truly wish I could help, Cadz, but outside of Professor Godsby I've long given up any hope the medical profession could help me fight this dragon.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Mike NZ

CH.com Hall of Famer

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Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: Australian Specialist?
Reply #4 - May 17^th, 2014 at 6:08pm

For Oz based CH specialists have you looked at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

They should be able to direct you to someone local.

Ben, from Oz, often talks about Paul Rolan (Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

) who has been treating him for years. He is in Adelaide, but he might be able to direct you to some closer.

Also look at the vitamin D3 approach many of us have been trying with great success (over 80%). I've been CH pain free for well over 2 years on it with some 3+.

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Cadz CH.com Newbie Offline There's Glitter on the Floor! Posts: 16 Canberra, Australia Gender:	Re: Australian Specialist? Reply #5 - May 17^th, 2014 at 6:19pm Thanks guys, I'll keep researching! Running on empty does not help; that's for sure.
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Australian Specialist? Reply #6 - May 17^th, 2014 at 10:55pm Hi Cadz, I noticed you have posted on the Aussie site. Just hang in there and someone will respond. But, If you follow the links to your left of their cover page you will see a link Practitioner click on this and you will find the info your looking for. Hoppy.
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Batch

CH.com Alumnus

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Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: Australian Specialist?
Reply #7 - May 22^nd, 2014 at 2:43pm

Hey Cadz,

Contact Dr. Peter Lewis in Manley NSW at the following link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Peter is an Integrative physician who uses naturopathic methods including vitamin D3 therapy to treat many disorders...

Tell him you're a cluster headache sufferer and likely vitamin D3 deficient. That should get the ball rolling.

Take care and check your PM inbox.

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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