Hi All,
This is my first post here.

I was diagnosed with cluster headaches about 2 years ago, at age 30.  With the first diagnosis, I was given preventative medication that worked well enough for 2 years. 
However, on my last cycle, it didn’t work at all ~ not even a little bit even though I desperately (and perhaps recklessly) doubled and then tripled the dosage. After 8 weeks (and several ineffective medications later ~ I asked for oxygen because I had read about it but was not given it) the cycle seems to have ended.

However, I have had persistent shadows for weeks now. No actual headaches, but I am not use to having these shadows for weeks after.

But my large concern is when I woke up today; I had a slight searing pain on the right side of my head, from the temple to the jaw bone ~ my clusters are always on the left side. The pain has slowly but steadily gotten worse throughout the day, but is far from intolerable. The pain has been constant, instead of come and go like the shadows that I am still getting on my left side. I know what shadows feel like, but this is new.
Any one experience anything like this?
Thank you.

Are you seeing a doc who is skilled with headache?

You don't mention the meds you are using. If they are not some of the "standards" for Cluster, you're results may not be a surprise. (See PDF file, below.)

If you are using standard Cluster meds and no results with such sig. dose increases, need to ask your doc to consider that you may not have Cluster. You type of response raises this question.

Print and drop on your doc:

Link to: cluster-LIKE headache.
Section, "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache"

Hi Elizabeth,

I've had a similar experience, where after my cycle ended on 15 Feb, the shadows have continued (with rising and falling severity and frequency) up to and including now. Mother's day (in US) seemed to have been a grand finale of sorts (again, no actual cluster beast, but very strong shadows). They are now far less frequent. And - on my first busting attempt (it was crappy, old LSD) I got a weak version of the beast on the right side of my head for the first time.

The shadows are generally on both sides, but never at the same time. (I have been 'formally diagnosed' by two neuros as having CH).

I am taking rivea corymbosa seeds on a weekly basis, slowly upping the dosage every week. This message board is not used to endorse this approach, but I figure I need to try something. (My Relpax landed me in the ER.)