Hello all

Well, I am almost 2 months into my first CH episode. Around Thursday of last week the severity and frequency of them has gone down somewhat. Actually was able to get some sleep!! I was very happy and excited hoping the beast was slowly going away. That is until about Tuesday of this week.

I started back to work on Monday thinking I would have a grip on these cursed things, but have been only able to make it about half a day since doing a full day Monday.  Now the dizziness, confusion, nauseated, sometimes severe memory loss has returned after each attack. Nothing has changed in this time. No stress at work, I love my job! I write this from work afraid I will not make it through the day. Very strange this damn beast is. I hate him.

My question is to those who suffer from episodic CH, do they typically completely go away suddenly or do they start to dissipate over time? A couple weeks ago I have started this recommend D3 vitamin regiment, hopefully that will do the trick in time. The only medication I am currently taking is Verapamil 180mgs every day. Currently awaiting to see my Nuero early next month.

Thanks

The end of cycle behaviour varies between people and even between cycles. Some common endings include them just fading away in frequency, a sudden stop and sometimes ending with a high Kipp CH.

You'll need to learn what the pattern is for you and be aware that it might change between cycles.

Jamz wrote on Apr 25^th, 2013 at 4:29pm:


You need to do a few things.

First off work with your doctors, use the forums, etc. to do whatever you need to do to get your CHs under control.

During your cycle, live life between the hits, dwelling on the pain free time and not the CHs.

Then once your cycle is over, enjoy life but at the same time be prepared for the next one, whenever it is and hoping it's a long, long time away.

It is also helpful to have some strategies for breakthrough hits. In addition to the O2 (see tips on the left of the message board), talk to your neuro about Imitrix injections (they now come in smaller doses and your doctor can advocate with the insurance company for a larger supply), and since you are on such a low dose of the Verapamil, if you are healthy, you might try the energy drinks with Taurine (I use RockStar Recovery). 

When my cycles begin to ease, they slowly taper but they have changed over the course of time.  Like others have said, patience is needed, and a sense of humor helps.  Live life between hits.  I remind myself, "This will pass," because they always do. 

Good luck and welcome to the club!

Best of luck! I'm in my first round too. Get the O2 high flow setup. It really helps me.