in the past i would feel my ch coming then after a bout my head,eye, ear would slowly simmer down, but this time it seems like every morning i wake i feel like my eye is sore? like blinking hurts? and it doesn't go way for hrs? not a bad pain just a annoying one i don't remember having. has anyone experienced this?? thank you

trapper rich wrote on Feb 28^th, 2013 at 11:33am:


I was getting hit 4-6 times a day, many of them at night, for over 3 years. So, yes, my eye would remain sore between hits. If you aren't getting hit with that frequency or regularity, I would raise the question at your next neuro appointment. Otherwise, I think it is normal for us to feel "aftereffects." blessings. lance

Trapper, just out of curiosity, are there any other symptoms?  Do you get eyelid feel heavy and droop with watery eyes/nasal congestion/runny nose?  Is it a constant pressure or does it go away briefly and then return?

My Depakote got rid of my CH in my right eye, but I still had SUNCT headaches in my left eye which felt more like someone squeezing my eyeball than a fiery hot poker.  Not horribly painful, but after several hours they wore me down.  At first I thought it was some kind of weird CH, but after awhile I realized that they were just cycling quickly between headache no headache.  SUNCT can be very short (5 sec to 4 min) up to 20 times per hour (so for me it almost felt constant).  It can go on for hours.  Once I started on the immune vitamin regime and verapimil they went away.  FYI, O2 had no effect on it so I just had to live with it (happily it wasn't horribly painful).

Anyway, that is my only experience with something that felt like pressure.  Likely has nothing to do with what is going on for you.

During a cluster I have pressure on and off throughout the day and night.  Mostly in my forehead and left side of my nose (that is the side I have clusters in).  I just figured it was part of the joys of having these nasty headaches.