Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Age and Clusterheadaches (Read 3058 times)
Giovanni
CH.com Hall of Famer
*****
Offline


I love YaBB 1G - SP1!


Posts: 808
x1|Cary|USA|usa|472|185|NC,North_Carolina
Gender: male
Age and Clusterheadaches
Feb 13th, 2013 at 3:48am
 
I'm curious about we older people with clusters and wonder if they abate/lessen with advanced age.  I'm approaching 66 and have been in remission since January 2012---the longest EVER.
I've had recent medical events which would dramatically influence my future treatments if needed for clusters.  The last cycle before this remission lasted over a year and came from hell itself.

John  Smiley
Back to top
  
 
IP Logged
 
Slim
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 17
Bethlehem, PA
Gender: male
Re: Age and Clusterheadaches
Reply #1 - Feb 13th, 2013 at 8:01am
 
I know a gentleman who suffered horribly for years with CH, but claims the CH stopped completely when he was 60 years old. He is now well into his 80s. I know this one case does not show or prove anything, but I just thought it was interesting.
slim
Back to top
  
 
IP Logged
 
wimsey1
CH.com Alumnus
***
Offline


I Love CH.com!


Posts: 2457
MA
Gender: male
Re: Age and Clusterheadaches
Reply #2 - Feb 13th, 2013 at 8:38am
 
John, I'm heading toward 61 and have had these buggers for over 25 years. I still get them. Right now they are under control (managed) by meds but I have no confidence they won't come back. I get the occasional I'm still here(!) knock. But others have said that after a certain age they did melt into the background. Here's hopin' for you and me! blessings. lance
Back to top
  
 
IP Logged
 
Trevor
CH.com Newbie
*
Offline


What a thing!


Posts: 12
Cape Town
Gender: male
Re: Age and Clusterheadaches
Reply #3 - Feb 13th, 2013 at 9:29am
 
I am 63 now and have had them periodically for the last 17 years. Used to be every three years but the last two have been four years apart. In the middle of one now and hope that the next will be when I am 67. I don't think age has much to do with it despite what they say. Perhaps my opinion is just a little jaded because of where I am now.  Sad
Back to top
  
WWW  
IP Logged
 
BobG
CH.com Hall of Famer
*****
Offline




Posts: 6422
St. George, UT
Gender: male
Re: Age and Clusterheadaches
Reply #4 - Feb 13th, 2013 at 10:22am
 
I'm 66 now and have had these suckers for almost 40 years. The cluster I'm in now started over a year ago. I get at least one wake-up call each night at least 5 days a week. I'm on low dose verapamil. These attacks are very mild, Kip 3-4, just enough to wake me, and after a shot of energy drink they're gone in about 10 to 15 minutes.
Back to top
  

Stay stressed. Never relax. Never sleep. Ever.
 
IP Logged
 
Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: Age and Clusterheadaches
Reply #5 - Feb 13th, 2013 at 1:27pm
 
Yes, rather quick taper to zero starting around 67.
Back to top
  

Bob Johnson
 
IP Logged
 
Giovanni
CH.com Hall of Famer
*****
Offline


I love YaBB 1G - SP1!


Posts: 808
x1|Cary|USA|usa|472|185|NC,North_Carolina
Gender: male
Re: Age and Clusterheadaches
Reply #6 - Feb 13th, 2013 at 4:36pm
 
Thanks so much to all of you for your insight and experiences.  I'm hoping these sucker are gone for good, but will settle for anything less then what I had before.  I feel encouraged.

In early January I had a heart attack and lucky for me a hospital was right across the street.  I had one stent installed in the circumflex (sp?) heart artery.  My verapamil was taken away, the imitrex, zomig, etc. are now gone.  I'm not quite sure about the red bull, etc.  I was given nitro which I have used twice and no CH--yea.  My cigarettes are history as they blamed everything on my smoking and lifestyle.  I'm now taking fish oil, Vitamine D3 @ 5,000 IU per day. I'm now in cardiac rehab with 3 days per week at the Y.

Strange thing---I never feared death during this ordeal, but frightened about the thoughts of CH.

John
Back to top
  
 
IP Logged
 
Dennis
CH.com Junior
**
Offline




Posts: 25
People's Republic of Mass.
Gender: male
Re: Age and Clusterheadaches
Reply #7 - Feb 13th, 2013 at 9:45pm
 
Another data point for you: 

My attacks have decreased dramatically over the last few years.

They began in my mid-teens, and got progressively worse, peaking in my mid-thirties. 

The clusters got much longer, but also fewer and farther between, after about age 42. 

I've only had a couple of clusters in the last 8 years, none in the last 3 years; and I am not taking any preventives, other than about 3000 IU of vitamin D per day.

I'll be 53 in May, and I'm not really thinking that they're gone for good, but maybe...

Dennis
Back to top
  
 
IP Logged
 
djphrenzy
CH.com Junior
**
Offline


I Love CH.com!


Posts: 93
Re: Age and Clusterheadaches
Reply #8 - Feb 13th, 2013 at 10:58pm
 
*sigh*  The only disadvantage of being 33.

On the other hand, here's hoping you all out-geeze the bastard sooner rather than later!   Grin
Back to top
  
 
IP Logged
 
Giovanni
CH.com Hall of Famer
*****
Offline


I love YaBB 1G - SP1!


Posts: 808
x1|Cary|USA|usa|472|185|NC,North_Carolina
Gender: male
Re: Age and Clusterheadaches
Reply #9 - Feb 14th, 2013 at 7:55am
 
djphrenzy wrote on Feb 13th, 2013 at 10:58pm:
*sigh*  The only disadvantage of being 33.

On the other hand, here's hoping you all out-geeze the bastard sooner rather than later!   Grin


I guess I was lucky (or unlucky) because I was 47 years old at onset, rather than average age of 20-30.

John
Back to top
  
 
IP Logged
 
Bob Hatrock
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: Age and Clusterheadaches
Reply #10 - Feb 26th, 2013 at 8:45pm
 
I started getting them when I was 19 and I'm 53 now. The 1st 10 years or so, it seem like I got them every spring and fall. Then they started coming anytime and the pain got alot worse every year. The last 15 year or so I've had a couple times where I went 2 year headache free. Then five year ago I had my worst cycle every. 4-6 aday and 4 1/2 months. I really didn't think I was going to make it threw it with out killing myself. That was my last cycle. For myself I hope there is something about gettin older that they start to go away. I have been feeling like I might be getting them back lately. I've had some slight pain in the side of my head that they alway start. I'm hope thats all it's going to be. I thank God everday for another day without a cluster. I thank all of you for being here. God Bless you all.
Back to top
  
 
IP Logged
 
Balanchine
CH.com Alumnus
***
Offline




Posts: 238
x0|Los Angeles|USA||0|0|CA,Cal
Gender: male
Re: Age and Clusterheadaches
Reply #11 - Feb 27th, 2013 at 11:45am
 
This is a very interesting thread and I hope everyone on the forum contributes. Although I'll wager there have been similar discussions in times past.

For myself, fairly regularly episodic from about the early 30s to late 40s, give or take. Hard to remember at this point.

I went about 4 years without a cycle in my early 50s and then had one 5 years ago. Then just a few sporadic one-offs until the current cycle at age 59.

And while it would be nice to think that I'll continue to have 4 and 5 year bouts of remission and maybe even a complete cessation one day (soon, please), I'm taking nothing for granted with Our Friend.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!