In the middle of a CH do you rub your affected eye at all? It may be damage caused from doing that over time.

bump.
So many of us wear glasses or contacts.  In fact I am confident to write that the majority of us wear contacts or glasses. 

Surprised there hasn't been many stories shared about vision on CH eye or not.  Hopefully it's just a long 3 day weekend with original post on Friday afternoon.  Please do share....

Is there a link of CH's and deterioration of vision?
I'm speculating yes.

Curious if others who wear glasses or contacts have noticed there CH side eye has noticeably gotten worse over the years compared to their non-affected eye

...and/or...if the CH eye is significantly worse vision than the non-affected eye.  Anybody with thoughts to share?

-Gregg in Las Vegas

Big time rule in science: just because two things occur together doesn't mean one caused the other.

Real easy to get confused if you don't attend to this idea.
===
Scan of medical literature show strikingly little material on headache (of all types) and eyes. There is one extensive nerve system which serves much of our head which is associated with many of the functions going on there and so, can lead to confusion about cause-and-effect events.

Not unusual for folks with new Cluster to see an eye doc thinking the pain must be from an eye disorder or to be told, "no".  That's the substance of this material....

Semin Ophthalmol. 2008 May-Jun;23(3):169-77.
Neuro-ophthalmologic manifestations of primary headache disorders.
Shareef AH, Dafer RM, Jay WM.
SourceLoyola University Medical Center, Maywood, IL 60153, USA.

Abstract
Headaches are the most common disorders of the central nervous system affecting 46% of the adult population worldwide. Headaches may be lifelong illnesses, often associated with substantial disability for the individual and the population as a whole. The International Classification of Headache Disorders (ICHD-II) codifies headache disorders into fourteen categories, predominantly primary headaches and secondary headache disorders. Primary headache disorders, mainly migraine and trigeminal autonomic cephalgias (TACs), are frequently associated with neuro-ophthalmologic manifestations. Ophthalmologists are often the first physicians to be involved in the deciphering of headache-related visual disturbances. This article reviews two major primary headache disorders, migraine and trigeminal autonomic cephalgias, and discusses their neuro-ophthalmic complications, clinical presentation, and treatment.

PMID:18432543[PubMed]
Curr Pain Headache Rep. 2010 Feb;14(1):62-72.
Headache attributable to disorders of the eye.
Friedman DI, Gordon LK, Quiros PA.
SourceFlaum Eye Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY 14642, USA. Deborah_Friedman@urmc.rochester.edu

Abstract
Sensory innervation to the eye and periocular area arises from the ophthalmic branch of the trigeminal nerve. Thus, ocular, orbital, and systemic disorders may produce head pain with ocular signs and symptoms. Whereas some of these entities have characteristic diagnostic features, others mimic primary headache disorders such as migraine and cluster headache. This article reviews common ocular and neuro-ophthalmic conditions that are accompanied by pain in or near the eye.

PMID:20425216[PubMed]
------
Med Clin North Am. 1991 May;75(3):693-706.   


Ophthalmologic aspects of headache.

Tomsak RL.

Case Western Reserve University School of Medicine, Cleveland, Ohio.

Pain around the eye can be caused by local ophthalmic disorders or by disease of other structures sharing trigeminal nerve sensory innervation. In general, most ocular causes for pain also cause the eye to be red, thus alerting the examiner to the focality of the problem. However, conditions like eyestrain, intermittent angleclosure glaucoma or neovascular glaucoma, and low-grade intraocular inflammation can be painful and not be associated with obvious redness. Ocular signs and symptoms also occur with numerous other causes of headache. Double vision in association with periocular pain can result from orbital lesions, isolated cranial neuropathies, and cavernous sinus lesions. Pupillary abnormalities like Horner's syndrome may result from a variety of painful conditions, including cluster headache, parasellar neoplasms or aneurysms, internal carotid dissection or occlusion, and Tolosa-Hunt syndrome. Pain with a dilated and unreactive pupil may reflect a benign condition like Adie's syndrome or ophthalmoplegic migraine, or it may herald the presence of a life-threatening posterior communicating artery aneurysm. Headache and transient visual loss can be manifestations of classic migraine, or be symptoms of ocular hypoperfusion from ipsilateral internal carotid occlusion or increased intracranial pressure from pseudotumor cerebri. In a young patient, head pain with a fixed visual deficit may result from optic neuritis, in an older adult, temporal arteritis may be the culprit.

OPHTHALMOLOGIC ASPECTS OF HEADACHE THUS ENCOMPASS PROBLEMS THAT RANGE FROM SIMPLE AND BENIGN TO COMPLEX AND FORMIDABLE.

Publication Types:
Review

PMID: 2020223 [PubMed]
=======
One major study revealed that 50% of new cases of Cluster were, in fact, not headache disorders but other problems which mimic headache. Point being: need to be cautious about accepting quick diagnoses for you may end up treating (and failing) the wrong disorder.

See: 
Link to: cluster-LIKE headache.
Section, "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache"

Gregg, I've been using glasses since I was 10, that being 25 years before Cluster started.

Changes over the years appear, to the doc, to be at the rate which he expects as one moves into middle-age.

I don't wear glasses, not sure how much longer I'm going to be able to say that, and my vision is better in my affected eye generally.  When I'm in a Cluster cycle I have noticed my vision is affected intermittently and mostly in the affected eye.  It doesn't last long and I'm usually back to normal after the cycle.

BobG, you always put a smile on my face beginning the day we met in person.  Hope all is well up there off the I-15.

-Gregg in Las Vegas

Very interesting reply AlienSpaceGuy from the North Pole...

Thanks for teaching me my big word of the day~~>zygomatic arch

-Gregg in Las Vegas

Hi Greg,

I also wear eye glasses and its not easy with every year it seems to create more damage in my eyes. I wonder why is that.

I wear glasses as well, and had a complete eye exam this past week. Both my eyes have always been on the same level, though this time, my left (non cluster side) has deteriorated a little more than the other, though not enough to change prescriptions.
I have also been having light flashes in the left eye for a little over 2 weeks now, which is why I went to the optometrist in the first place. She was curious about my CH, and though it might be related to it (even if it's the wrong eye) since all the tests were normal. She wrote up a report for my head doctor, and told me she would read up on CH to see how it could relate to the eyes.

*** edited for spelling

Brew wrote on Feb 25^th, 2013 at 5:14pm:


Funniest thing I've seen in months, THANKS Brew...I can relate 

...and when that happens, I conjur Mr. Rogers Hornsby...who would be in the Hall of Fame for that wonderful name alone....and who once said:



...well, that's what I do...when my outlook is in the crappper...but now Spring has SPRUNG...the boys are in camp....EVERYBODY is in First place...optimism prevails.....

...now, surely I digress, which is me, so anyway...to address Gregg's question: 31 ch vet here...have only experienced the "changes due to age" in my eyesight (reading glasses, a FEW changes in script).Even asked the eye Doc about the now permanently constricted pupil in side affected eye. He shrugged, said he had a few other ch patients, had never noticed any effect on vision, and that I had bigger problems than miosis...quit worrying about it....soes...I DON'T.

Best,

Jon