Click this link to read a post I like on the clusterheadaches.com message board...

JohnnyT

CH.com Newbie

Offline

I Love CH.com!

Posts: 1

Cluster headache without the pain
Dec 17^th, 2012 at 3:25pm

Hi,

This is my first post. I wonder if anybody has shared this experience.
I've had cluster headaches for 18 years now 3 times a year for 5 weeks at a time. That was until the last year when I went without a bout for just over a year... JOY!

However they returned as usual just after the clocks changed at the end of October..with a vengeance, they have now finished, but I now get one a day, whenever I have a drink or I'm tired - but without the pain.. My pupil is small on one side, my eyelid drops and reddens, I get neck pain and I can feel that strange pressure behind my eye and in my temple I just don't have that debilitating pain. It's very unsettling and I wonder if anyone has shared this experience?

Thanks!

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Cluster headache without the pain Reply #1 - Dec 17^th, 2012 at 4:19pm We call them Phantom Headaches and those of us who get them know exactly what you're talking about. Everybody else thinks we're mad. Welcome.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Cluster headache without the pain
Reply #2 - Dec 17^th, 2012 at 5:14pm

Well Johnny, the problem is, Aussie Brian is mad....and was clearly left unsupervised near a computer where he had internet access! Wink

Several have posted of similar experiences. It's great the pain isn't there. Do you have an effective treatment plan in place when you do get hit? Oxygen, a decent prevent, a neuro who knows what CH is?

Glad you found us, no matter what Brian says he can do for your CH, DO NOT send him any beer! Grin

Joe

Back to top

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Cluster headache without the pain Reply #3 - Dec 18^th, 2012 at 3:05am Never had them with CHs, but I've had a couple with migraines which I must admit totally confused me the first time. Just treat it as if it's a normal CH and you'll find your usual abortive will work just as if it's a normal one.
Back to top	IP Logged

Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Cluster headache without the pain Reply #4 - Dec 18^th, 2012 at 8:15am Painless cluster has been reported in the medical literature--rare and not understood.
Back to top	Bob Johnson IP Logged

CH Keith CH.com Junior Offline I Love CH.com! Posts: 41	Re: Cluster headache without the pain Reply #5 - Dec 18^th, 2012 at 11:10am I think it's most frustrating trying to explain it to other people. Some of those shadows can be impactful without the pain. It's weird to say, but sometimes it's better when the pain comes back. Easier for me to deal with.
Back to top	IP Logged

Sharkbay

CH.com Junior

Offline

Do as to others as you
would want done to you
and

Posts: 28
Gender: male

Re: Cluster headache without the pain
Reply #6 - Dec 19^th, 2012 at 2:35am

Hi I have this happen to me at last 2-4 times a week CH without the pain. Iv had a stellate ganglion block for my shoulder pain and as soon as I woke up I had the same thing happen CH with out the pain, This got me thinking so I did some research and won of the Side Effects of a stellate ganglion block is Horner's syndrome. Side Effects of a stellate ganglion block In almost every case, you will experience what is known as a Horner's syndrome after a stellate ganglion block (constriction of the pupil, drooping eyelid, and a red eye). Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

So maybe the stellate ganglion needs some research done on it to see how much it plays with CH.

ALL THE BEST Les

Back to top

Do as to others as you would want done to you and you.

IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Cluster headache without the pain Reply #7 - Dec 21^st, 2012 at 10:01am If it doesn't hurt, is it really a "headache"?
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Cluster headache without the pain Reply #8 - Dec 21^st, 2012 at 10:22am Bob P wrote on Dec 21^st, 2012 at 10:01am: If it doesn't hurt, is it really a "headache"? Hmm...if a tree falls....yeah ...never mind! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Click Here to visit the CH.com Facebook page!

AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Cluster headache without the pain Reply #9 - Dec 21^st, 2012 at 6:27pm See what I mean, JohnnyT? They think we're mad!
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Mike NZ

CH.com Hall of Famer

Offline

Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: Cluster headache without the pain
Reply #10 - Dec 22^nd, 2012 at 12:10am

Bob P wrote on Dec 21^st, 2012 at 10:01am:

If it doesn't hurt, is it really a "headache"?

A very, very good question that I've been thinking for a few hours, with a cold drink to help my thoughts (getting warm and humid here as the reminants of Cyclone Evan approach bringing warm, humid air from the tropics).

If the essentials of a headache are that it affects your head and it makes it ache with a mix of other symptoms, then CH is never a headache as describing the pain as an ache is like describing a nuclear bomb as a small bomb. So equally not having an ache when you get all the other symptoms still makes it a headache.

Back to top

IP Logged

GrandPotentate CH.com Old Timer Offline mmmmmmmmmm Posts: 254 Michigan City, IN USA Gender:	Re: Cluster headache without the pain Reply #11 - Dec 23^rd, 2012 at 9:51pm Sure. Sometimes a touch of pain, but no big deal. What seems weird is the other stuff: tears, runny nose, all on one side, can't sit still, can' stand being around people. Besides lack of pain, they are shorter tan my usual hour.
Back to top	Jon IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!