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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	acute bacterial brain infection? Dec 11^th, 2012 at 11:54am went to ER yesterday and they told me i have an acute bacterial brain infection i also have a cyst developing slightly left om my spine right under my skull. they gave me several hours of IV antibiotics and told me follow up with my neurologist. Could this be the cause of my CH?
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Re: acute bacterial brain infection?
Reply #1 - Dec 11^th, 2012 at 1:29pm

WOW! I have no idea if this is related at all to your CH but it's an excellent example of why we always push for headache specialist neuros. So much goes on inside the noggin we're always afraid of helping people mask something serious like this with our well meaning attempts to ease pain.

Keeping you in our thoughts and prayers while you battle this mess. If taking care of this kills CH beasty too, well AWESOME!

Joe

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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: acute bacterial brain infection? Reply #2 - Dec 11^th, 2012 at 3:44pm thank you i appreciate it. I was just looking up some symptoms and it said sever headache and with the cyst right under my skull it just makes me wonder if it pressing on nerves causing the pain. But i will keep you updated on this. thanks again
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: acute bacterial brain infection? Reply #3 - Dec 11^th, 2012 at 9:06pm Quote: went to ER yesterday and they told me i have an acute bacterial brain infection i also have a cyst developing slightly left om my spine right under my skull They figured all that out in one trip to the ER?
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lydia nichole

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Re: acute bacterial brain infection?
Reply #4 - Dec 11^th, 2012 at 9:37pm

I h known about the cyst for a month when I first felt it and started having the pain. I have had a infection growing before when I was 11 and had to have emergency surgery and have one of my tonsils and my adenoids removed. I just know that's what the had diagnosed me with and gave me several hours of antibiotics.and told me follow up with my neuro. and if u have any stiffness or numbness come back immediately.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: acute bacterial brain infection? Reply #5 - Dec 11^th, 2012 at 9:55pm So what you're saying is that you may have a condition that mimics CH. I hope you get to feeling better. Wouldn't it be great if they were able to treat the infection and cyst and your pain would go away?
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: acute bacterial brain infection? Reply #6 - Dec 11^th, 2012 at 11:44pm What they said. I can't add anything to Joe, Don, and Bill have said, except I'm praying for you and I'm praying that this will clear up what appears to be CH for you. That would be great! What a Christmas present that would be! Jerry
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Potter Ex Member	Re: acute bacterial brain infection? Reply #7 - Dec 12^th, 2012 at 6:34am I hope they can fix whatever's wrong in your head . Potter
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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: acute bacterial brain infection? Reply #8 - Dec 12^th, 2012 at 9:32am thank you all going for some testing Friday will keep you posted ! it would be a wonderful Christmas present ! i have forgot how to live without these damn headaches ! it would be nice to have my life back !
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: acute bacterial brain infection? Reply #9 - Dec 12^th, 2012 at 1:14pm Im not a doctor...but an acute, bacterial infection in the brain sounds PRETTY damn serious to me. Life threatening even. Im so surprised they let you leave and see a neuo at a later time.
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Potter Ex Member	Re: acute bacterial brain infection? Reply #10 - Dec 12^th, 2012 at 1:41pm Linda_Howell wrote on Dec 12^th, 2012 at 1:14pm: Im not a doctor...but an acute, bacterial infection in the brain sounds PRETTY damn serious to me. Life threatening even. Im so surprised they let you leave and see a neuo at a later time. Fatal. Potter
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lydia nichole

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Re: acute bacterial brain infection?
Reply #11 - Dec 12^th, 2012 at 1:41pm

it is very serious. i had it before when i was 11 and was sent home from the same ER 3 times in the same day before the gave me amoxacillin which i am highly allergic to even with the allergy alert band and had to get transfered to Fairfax hospital where i was rushed into emergency surgery and was in ICU for 3 weeks the told my mom i had a 50/50 chance making it then. im not a doctor myself all i know is that is what the told me after being in there for around 18hours and told me to follow up. idk whats going on. as far as the cyst, well anyone can feel it.

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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: acute bacterial brain infection? Reply #12 - Dec 12^th, 2012 at 1:43pm this is not making me feel any better. i am a single mom to a 4 year old babygirl. im only 24 and repeating that this is something that could be fatal is not making me feel better.
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Linda_Howell

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Re: acute bacterial brain infection?
Reply #13 - Dec 12^th, 2012 at 5:21pm

Lydia, We don't know you but if you have cluster headaches, then you are a part of this family and we care about each other here. Not just with CH..but for everything we all go through on a daily basis.

Sometimes, as Joe pointed out..a newcomer will find this site and want to know if we old-timers think they have CH and we always tell them to please try and find a knowledgable doctor and get an MRI to rule out the possibility of something more sinister. We don't do that to scare anyone, but there ARE conditions which can and DO mimic CH.

No one is trying to scare you. I just can't believe that doctors diagnosed you with this and let you go home. If I was in your place..I would have insisted on being admitted. The brain is NOT something to mess around with and of course you know that.

I hope whoever you see on Friday will fall over back-wards taking tests and making certain you are treated properly. Please let us know what he/she says.

Linda

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: acute bacterial brain infection? Reply #14 - Dec 12^th, 2012 at 5:46pm ^ \| \| What she said.
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lydia nichole

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Re: acute bacterial brain infection?
Reply #15 - Dec 12^th, 2012 at 9:09pm

thank you linda I appreciate it. I had a mri and a caroidid artery test a little bit ago and they came back normal. soo im really not sure what is going on. I go to the best neurologist and headache research center in northern va so im goin to see what he says. the ER I went to is horrible. but I will let you all no whats going on when I get more answers. thanks.

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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: acute bacterial brain infection? Reply #16 - Dec 12^th, 2012 at 9:10pm and a little bit ago was a couple months not as in a few days or anything.
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: acute bacterial brain infection? Reply #17 - Dec 12^th, 2012 at 10:53pm Im not an expert, but i do not believe neither of those tests can determine a bacterial infection but i could be wrong. I once WAS wrong, but i was mistaken. Happy to hear you are seeing the bestin your area. I love your town, btw.
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Re: acute bacterial brain infection?
Reply #18 - Dec 13^th, 2012 at 6:07am

lydia nichole wrote on Dec 12^th, 2012 at 9:09pm:

...but I will let you all no whats going on when I get more answers. thanks.

That's great, Lydia, because CH or not it will increase knowlege and awareness within our little community and perhaps allow us to help other people also, which is why many of us are here.

Stay well, stay in touch, and kiss the baby for us.

We care.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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Potter Ex Member	Re: acute bacterial brain infection? Reply #19 - Dec 17^th, 2012 at 10:57am You keep checkin in every day but haven't told us what they're doing for your bad brain. Potter
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lydia nichole

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Re: acute bacterial brain infection?
Reply #20 - Dec 21^st, 2012 at 9:57am

Hi everyone. sorry for the delay. Ive been checking in on my cell and i hate replying on it. I went to my doctor, i'm off antibiotics now. The cyst or what they believe to be a cyst is still there. i'm being sent for MRI of (what he wrote on order) c-spine MRI w & w/o contrast. and some blood work cbc, cmp, tsh, b12, vitamin D. They are also believing i also have or developing TN as well as clusters. they did 6 nerve blocks as well and since all medications have really not had any effects on me he has me on Baclofen and upped my dose of dilaudid to 4mg<- i no most dont think it doesnt help them but its one of the few things that actually get me somewhat in control. so far the nerve block seems to be helping 3 days PF. sorry again for the wait.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: acute bacterial brain infection? Reply #21 - Dec 21^st, 2012 at 10:24am Damn Lydia, that's a full plate. Glad you've had 3 days of relief, hoping it's the start of something good. Keeping you in our thoughts, keep updating us as you're able. Joe
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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: acute bacterial brain infection? Reply #22 - Dec 24^th, 2012 at 12:25pm another update since the nerve block i am still PF! ! !
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: acute bacterial brain infection? Reply #23 - Dec 24^th, 2012 at 3:34pm Doing the happy dance for ya Lydia, what a nice Christmas Present. Hoping it continues. Joe
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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: acute bacterial brain infection? Reply #24 - Dec 26^th, 2012 at 8:59am lydia nichole wrote on Dec 24^th, 2012 at 12:25pm: another update since the nerve block i am still PF! ! ! Ain't it grand?! blessings, lance
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