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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › newbie just landed!

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newbie just landed! (Read 894 times)

falcoron CH.com Newbie Offline I Love CH.com! Posts: 2	newbie just landed! Dec 11^th, 2012 at 6:34am Hi, just been diagnosed with CH by my GP yesterday very scared after reading all the symptoms associated with this condition. I'm 52 and live in Northern Ireland. Anyone close to home with advice, help and understanding?
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: newbie just landed! Reply #1 - Dec 11^th, 2012 at 7:18am Was there anything your doctor prescribed to help you manage for the time being and does he suggest you see a further specialist?
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: newbie just landed! Reply #2 - Dec 11^th, 2012 at 8:34am Very good support group: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Guiseppi

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Re: newbie just landed!
Reply #3 - Dec 11^th, 2012 at 9:48am

Do follow Bob's link as that support group has a lot of area specific info for obtaining effective care on your side of the pond. Then read this link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Oxygen should be your first line abortive. Fast, effective, safe, no side effects, not much to dislike.

Glad you found us, welcome aboard.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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falcoron

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Re: newbie just landed!
Reply #4 - Dec 11^th, 2012 at 6:28pm

Kevin_M wrote on Dec 11^th, 2012 at 7:18am:

Was there anything your doctor prescribed to help you manage for the time being and does he suggest you see a further specialist?

Hi
Yeah I'm on Naproxen 250mg two twice a day and omeprazole for any stomach symptoms if they appear. Getting blood work done on Friday as he stated it was rare for my age group and he wanted to see if it was anything else but was sure my symptoms where consistent with CHS. Only showing signs for about 2 weeks and only at night when I'm sleeping, Severe pain only lasting for a few seconds then half my head my eye and right down my neck ache for hours after the hot poker in the eye pain goes away. Does this get worse?

« Last Edit: Dec 11^th, 2012 at 6:33pm by falcoron »

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Guiseppi

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Re: newbie just landed!
Reply #5 - Dec 11^th, 2012 at 9:07pm

Yes, no, maybe! Wink

You can go bat-crazy trying to predict what the beasty will or won'rt do to you. It's best to just concentrate on always having a battler plan ready to go, and see what beasty throws at you.

Talk to your doc about using melatonin, an over the counter sleep aid here in the states. Many have found they can avoid the night time wake up hits by taking 9-18 mg of melatomnin about 30 minutes before bedtime. It's cheap, certainly worth talking to the doc given the high level of success.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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wimsey1

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Re: newbie just landed!
Reply #6 - Dec 12^th, 2012 at 11:25am

If you have CHs it's unlikely an NSAID is going to help. Unless you actually have a similar disease like paroxysmal hemicrania. Feels like CHs but yields to indocin or similar meds. Please read here about effective preventatives, the use of prednisone as a bridge, and abortives like O2 and Imitrex. They can make all the difference. God bless. lance

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