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What Worked For Me (Read 603 times)
CZ Cluster
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What Worked For Me
Nov 5th, 2012 at 2:43pm
 
So i Just wanted to post what was helpful for me the second and third around during a Cluster bout.  A little history.  I got my first CH in 2004 (shortly after being married) I always blamed it on my wife until i got diagnosed.  Kind of a running joke i had going.  Anyway, I made it through my first bout in about 4 weeks after undergoing CT's and other scans to figure out what was wrong with my head.  I am sure everyone on here has gone through that.  All came back negative. 

Second time around in 2009 finally found a specialist that diagnosed me with CH's.  I was at week 8 at that point and about at wits end.  He put me on Depacon IV treatment for 3 days, 1 hr each day.  Then prescribed Topamax for 1 month to start right after the third day.  Gradually building up until the fourth week i was taking 2 pills a day at 50mg per pill. 

This time around i waited until i was about 4-5 weeks in and went to see the same doctor, same treatment, and it worked again.  Now i realize that different treatments work for different people.  I just wanted to share what worked for me.  Hopefully it can help somebody else out on here.  Both times after the Depacon IV it has stopped my Cluster then i stay on the preventative for 1 month thereafter.   
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wimsey1
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Re: What Worked For Me
Reply #1 - Nov 6th, 2012 at 7:56am
 
I'm glad you found something that worked. Both meds you mention tend to be in a neuro's arsenal when addressing CHs. They're worth a try, although I think you're experience with them is more positive than most of us. I tried both and neither did a darn thing for me. This I think is more common than not. Still, as you say, we're all different and the combo worked for you. Congratulations, stay well and pain free! blessings. lance
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