Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
My first Post (Read 563 times)
easykaya
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 2
My first Post
Oct 25th, 2012 at 7:02pm
 
Hi everybody, this is my first Post.
I live in the Caribbean so it took a while to find out what was happening with my head , but now i know it's Cluster headache, something i had never heard of before. i was prescribed sumatriptan tablets today but have not tried them yet.
On the internet i read of the positive effects of injections and nasal sprays. but nothing about Tablets.. anyone tried tablets or are tablets a complete waste of time?
just wondering if i should keep my hopes up after taking the tablets?
Back to top
  
 
IP Logged
 
ttnolan
CH.com Veteran
***
Offline


beats me


Posts: 247
Scotts Valley, CA
Gender: male
Re: My first Post
Reply #1 - Oct 26th, 2012 at 1:55am
 
Welcome to the board, there is much to learn, and with this condition it will be up to you to know what is best for you. This is perfectly demonstrated by your first lesson here, being prescribed the pills. Usually completely worthless, injections best, nasal sprays second.
BUT... the first thing you should look into is high flow oxygen. Read up on the oxygen info link on the left, then ask questions.
The next thing you will want to do is find a preventative medicine. If going with conventional medicine, you will need to work closely with a Headache Specialist, not just any ordinary doctor, to look at things like Verapamil and Lithium.
If you are open to alternative medicine please visit the sister site clusterbusters.com for more information. This method has been showing amazing results compared with the conventional stuff.
Yes, always keep your hopes up. It is possible to get this under control and have a good life. How fast that happens will depend on you, how aggressively YOU attack this (don't depend on your doctor, read, read, read).
Again welcome, and good reading... wishing you pain free days.
Back to top
« Last Edit: Oct 26th, 2012 at 2:02am by ttnolan »  
 
IP Logged
 
CDog
CH.com Veteran
***
Offline




Posts: 163
Rockies
Gender: male
Re: My first Post
Reply #2 - Oct 26th, 2012 at 2:01am
 
The tablets may work, but they take a long time to do so. The injections are considered the way to go for Clusters.
Back to top
  
 
IP Logged
 
Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: My first Post
Reply #3 - Oct 26th, 2012 at 7:54am
 
The most important question now: do you have a doc who knows about headache, has experience & skill?
===
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

                       CLUSTER HEADACHE HELP AND SUPPORT › GETTING TO KNOW YA › NEWBIES, HELP US...HELP YOU
==================
The med you have is highly effective bu the pill form is too slow acting to counteract the strong, rapid development of Cluster attacks. Injection form is best.

But, you also will benefit from a preventive med which give long term protection by reducing/preventive attacks.

Print the PDF file, below, and use as a tool to discuss options with your doc.
====

Cluster headache.
From: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article--link, line above--if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]
Back to top
  
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (96 KB | 16 )

Bob Johnson
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!