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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Support

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Support (Read 1182 times)

brian trudeau

CH.com Junior

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his arms are around me
and his tounge in my
eye

Posts: 68
Kinde, MI USA
Gender: male

Support
Oct 22^nd, 2012 at 11:35pm

A big thank you to all of you who run and maintain this site. It has been and continues to be one of my best ways to deal with this condition. A great place to go when feeling alone, depressed, scared to sleep or just need somewhere to vent about things when needed. I reallly do appreciate all the fine information this site has to offer as well as the humor we need in the darkest nights/days/weeks/months that we all have endured. A smile that comes across after reading great posts and responses ie: "dopiest responses to CH" or "Cluster positives" Answers like: "it no longer hurts when you cut your finger off at work" bring a smile that only we could understand. That smile is huge sunbeam on the dark and cloudy days when it seems you have not smiled in a long time and the rain does not want to let up. We are as unique as our condition and glad to have this network of support. Thank you again wishing everyone PFDN .
-Brian

...but then you make me crawl..and I cant be holding on to what you got...when all you got is hurt...

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Support Reply #1 - Oct 23^rd, 2012 at 8:03am Kind words, Brian, and for the good people on this site, well deserved. I assume, since you didn't mention anything to the contrary, that you are doing OK? If so, stick around and share the love with those who need it. If not,well you know what to do. God bless. lance
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brian trudeau

CH.com Junior

Offline

his arms are around me
and his tounge in my
eye

Posts: 68
Kinde, MI USA
Gender: male

Re: Support
Reply #2 - Oct 23^rd, 2012 at 9:15am

Cycle started back up again on 10/6 and still around.(Shhh he will hear me talking about him) Nightly hits automatic still but have had up to 4 a day since they have started back up. I have my o2, Inderal and just finsihed another round of prednisone. I am limitted to what I can do with meds due to a heart condition (ARVD). Thinking of going to see my neuro (Dr. Saper) down in Ann Arbor MI at MHNI (Michigan Headpain & Neuro Institute) to see if there are new choices available. Thanks again to all

...but then you make me crawl..and I cant be holding on to what you got...when all you got is hurt...

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Kevin_M

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withered branches grow
green again.

Posts: 8754
Michigan, USA
Gender: male

Re: Support
Reply #3 - Oct 23^rd, 2012 at 12:43pm

brian trudeau wrote on Oct 23^rd, 2012 at 9:15am:

Cycle started back up again on 10/6 and still around.(Shhh he will hear me talking about him)

Beast Ok you guys, keep production rolling. We never shut the lights and go home, when's the night shift arrive?

Foreman Sir, we're just waiting for a comfortable sleep and the REM signal to light up. I assure you they'll be at their posts hammering away.

Beast You know the procedure, and when the sun shineth, we maketh hay.

Foreman A fresh shift in the morning will see to your production standards.

Um, sir. Last night while it was quiet crewman Pangsasharp overheard your name, someone out there is talking about you.

Beast You know I don't go for publicity, this is a quiet operation, we don't want attention drawn to us.

Foreman I wouldn't bring it up if he was saying your name with a string of swear words like usual. This time it was a bad word, "support" was mentioned.

Beast We've tangled before. It could be just friendly advice like, aspirin - aisle four, trauma from a previous life, or the sympathetic, "I get those too." If it's banana peels or those purple bath oil beads, tell the boys pizza party.

Foreman Those conversations don't get past two sentences, there was more. Do you think it's...that site? You know, clusterville.

Beast I am so sick of the bullshit they spew. Try to keep the production line going. If we have to fold up our tents and steal away, dont worry, there'll be another time.

Foreman The boys know it's seasonal work, I'll boost morale though and let them know they still wear the pants in this fight. We still got that picture of DJ in the French maid's outfit, I'll post it over the timeclock.

« Last Edit: Oct 23^rd, 2012 at 12:47pm by Kevin_M »

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brian trudeau

CH.com Junior

Offline

his arms are around me
and his tounge in my
eye

Posts: 68
Kinde, MI USA
Gender: male

Re: Support
Reply #4 - Oct 23^rd, 2012 at 2:39pm

Great post Kevin,
Kinda goes with Lance's question above "doing OK? If so, stick around and share". I hate that I am afraid to hear his name or put his thought back into my mind if he is not currently wrapped behind my eyeball.
I need to stop the fear of someone saying the word cluster or seeing a comercial for honey nut clusters for Petes sake! I have sometimes checked in to notice when my post over the years have been to notice any patterns in my cycles as my own little HA diary backup but will try my best to do better and offer up any support when I can. Thanks again to all

...but then you make me crawl..and I cant be holding on to what you got...when all you got is hurt...

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Support Reply #5 - Oct 24^th, 2012 at 12:09pm Kevin, that should be an instant classic with a stickie. It was an amazing dialog ala Uncle Screwtape to Wormwood. Nicely done. blessings. lance
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