Greetings all...

Your site helped me 4 yrs ago when I had my last episode. Unfortunately at that time i found you near the end of the episode.

This episode began for me a few weeks ago. I'm not a runner, but began running more frequently right before this cycle began. Interestingly, this is the second cycle that could have been triggered by running. Anyone heard of such a thing? Sounds bizarre I know, but oddly enough when I was running I noticed I can almost feel my brain bouncing up and down with the motion. I just can't help but wonder if this is a trigger.

This is definitely one of the worst cycles in memory. I'm 38 yrs old and have cycles every 3-4 yrs or so back since high school. They typically last 8 weeks. I've used imitrex in the past to abort which works well, but thankfully I also now have O2 thanks to your site. My doc incorrectly only rxed 8lpm so I have to get that fixed. It still works but takes a full 20 minutes.

I'm about 4 weeks through the cycle (which means about half way through). I'm starting to feel the pain switch sides. I don't remember that happening, but does this indicate the cycle coming to an end to anyone?

My new neuro has me on topamax which I've endured despite being fatigued and not seeing results. I'm seeing a new specialist next Monday just for another opinion.

Anyway, this is such a great site. Its great to have a community of support and people who share such specific info. Im also ready to try the vitamin D regimen that Batch recommends.

Be well!

Actually running is good for CH.  Its the stopping...thats the culpret. Someone here has that at his tagline.  Do not relax...EVER. try chugging some of those energy drinks like Red Bull, Rockstar, etc. Strong coffee,the strongerthe better.

Can't say anything with any certainty when it comes to cycles and how they'll play out. Just when you think you got it figured out, the next one comes along and changes everything. Running shouldn't be a trigger for a cycle, and pain switching sides isn't that uncommon either. Hope you get out of this cycle ASAP.

Makes sense now.