Several have tried I have not seen any success stories yet. Have you tried melatonin yet? An otc sleep aid. Many can avoid nocturnal attacks by taking 9-12 Mg about 30 minutes before bedtime.

Joe

Try a combination of regular+prolonged-release melatonin. Works for me in doses as low as 3mg+2mg.

10LPM is usually not enough for aborting nocturnal hits, but it may work if you drink an energy drink. Sometimes 1-2 glasses of water just before the O2 makes a difference. Also, hot/cold pad can make a change. Good luck!

My brother says using his machine is a pain in the butt so I suggested he re-read the instructions.

Thank you all for your replies!

ttnolan wrote on Oct 12^th, 2012 at 10:25pm:


I experienced the same thing. When I did wake up and switched to my non-rebreather it took much longer to knock him out. I did not try again last night and decided to give the melatonin a shot instead.


Guiseppi wrote on Oct 12^th, 2012 at 5:37pm:


Joe,

Thank you for the suggestion. I took 9mg of melatonin last last night. I woke up about 30 mins after falling asleep with a very bad headache (8-9) that would not go away. I finally had to "lay on the vent" (That's a very common phrase around my house in the fall. While heat does not abort a HA, almost like magic it does take nearly all of the pain away - while being applied - it even makes the worst headaches bearable where I can just lay there and rub my temple. The HVAC register in my bedroom is on the floor, so I just turn on the heat, throw a pillow by the vent and lay with that side of my head hanging over it.) Anyhow, I finally got back to sleep around 11:30 and slept until 6:30 (still have not had a headache and it's almost 10AM. This is the longest PF stretch I've had since the cycle started). I don't know if this was the melatonin, but will keep it up and let you know. I do think I'm going to tweak the time that I take it to see if I can avert the first headache of the night. What would you suggest?

I just hope this ends sooner rather than later. This cycle has been unlike any before - like one week long headache that I keep knocking down for a few hours at a time. My experience has been that I will get cycles with a lot of headaches compressed into a short time frame or a longer cycle with fewer headaches per day. My theory is that he is going to make me feel X amount of pain in any given cycle and he doesn't really care how it's added up. Hopefully he'll reach his quota soon. -Thomas

O2 while sleeping is ineffective o2 therapy for CH's.

Proper o2 therapy...
High flow rate 15 lpm+, ideally hyperventilate 25 lpm, 100% o2, from a tank, with a NON-rebreather mask, while sitting/standing upright, awake, begin therapy at onset of attack

after abort...reduce flow rate to normal breathing, continue 5 to 10 minutes, shut off regulator, try to get back to sleep

Gregg in Las Vegas

Outstanding to hear the melatonin is working for you. Some have gone as high as 18 mg to get continuing relief. You have to kind of play with the dosing, more if beasty breaks through, less if you're a walking zombie in the morning!

Some have increased the effectiveness by splitting whatever dose they use in half......taking half standard release and half extended release. The standard gets you safely to sleep, the extended keeps beasty at bay longer.

Hoping your success continues.

Joe