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Cayenne Pepper (Read 14377 times)
Guiseppi
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Re: Cayenne Pepper
Reply #25 - Oct 18th, 2012 at 9:10am
 
That was my take also. A new poster, not tying to sell anything, just recommending what had seemed to provide relief. 2 possible reponses:

BULLSHIT! Along with a colorful photo illustrating said action....

OR,,,

Welcome to the board. I'm glad you've found something that seems to provide relief. Has your doctor suggested A, B, C ,D? Have you tried A, B, C, D?  Are you working with a qualified headache neuro?

Which response is more prone to make a new, scared, confused poster return to the board. Which will drive a new person away. I remember a time when a self proclaimed "KING" of this board would intentionally drive anyone away who had ANY characteristics that didn't 100% match classic CH symptoms. I so hope those days are behind us. It's not about being right, being smartest on your CH knowledge, being the first to spot someone who doesn't have CH. It's about helping people.

"Someone had to say it"........I still think that's just a piss poor excuse to be a bully or just plain mean.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Re: Cayenne Pepper
Reply #26 - Oct 18th, 2012 at 9:21am
 
CDog wrote on Oct 18th, 2012 at 7:09am:
AussieBrian wrote on Oct 18th, 2012 at 5:47am:
It's well worth re-reading the original post. A first-time poster referring to cayanne pepper (not sinus-buster) as something that helps him and may help others.

Abuse and bad language is no way to welcome a fellow CHead.


Amen...


agreed!
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Re: Cayenne Pepper
Reply #27 - Oct 18th, 2012 at 9:29am
 
Guiseppi wrote on Oct 18th, 2012 at 9:10am:
That was my take also. A new poster, not tying to sell anything, just recommending what had seemed to provide relief. 2 possible reponses:

BULLSHIT! Along with a colorful photo illustrating said action....

OR,,,

Welcome to the board. I'm glad you've found something that seems to provide relief. Has your doctor suggested A, B, C ,D? Have you tried A, B, C, D?  Are you working with a qualified headache neuro?

Which response is more prone to make a new, scared, confused poster return to the board. Which will drive a new person away. I remember a time when a self proclaimed "KING" of this board would intentionally drive anyone away who had ANY characteristics that didn't 100% match classic CH symptoms. I so hope those days are behind us. It's not about being right, being smartest on your CH knowledge, being the first to spot someone who doesn't have CH. It's about helping people.

"Someone had to say it"........I still think that's just a piss poor excuse to be a bully or just plain mean.

Joe

Thanks joe ! i 100% agree. great post ! this is a support group supposed to support fellow sufferers not tell them that what is working for them is bullshit.
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Re: Cayenne Pepper
Reply #28 - Oct 18th, 2012 at 11:19am
 
By golly such a furor over a word.  Snort some cayenne pepper either during cycle or out,  don't matter.  It's gonna be excruciating(personal experience) and maybe dangerous.  What if you got it into your lungs?  Just surmising here.  Now read the word Bullshit.  Either in or out of cycle don't hurt a bit,  heck it don't even make your eyes water(unless your right down there close thinkin maybe a good snort is what ya need) 


                     Potter

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Re: Cayenne Pepper
Reply #29 - Oct 18th, 2012 at 1:02pm
 
Guiseppi wrote on Oct 18th, 2012 at 9:10am:
That was my take also. A new poster, not tying to sell anything, just recommending what had seemed to provide relief. 2 possible reponses:

BULLSHIT! Along with a colorful photo illustrating said action....

OR,,,

Welcome to the board. I'm glad you've found something that seems to provide relief. Has your doctor suggested A, B, C ,D? Have you tried A, B, C, D?  Are you working with a qualified headache neuro?

Which response is more prone to make a new, scared, confused poster return to the board. Which will drive a new person away. I remember a time when a self proclaimed "KING" of this board would intentionally drive anyone away who had ANY characteristics that didn't 100% match classic CH symptoms. I so hope those days are behind us. It's not about being right, being smartest on your CH knowledge, being the first to spot someone who doesn't have CH. It's about helping people.

"Someone had to say it"........I still think that's just a piss poor excuse to be a bully or just plain mean.

Joe

Well said Joseph, you little whipper snapper you. Kiss
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Re: Cayenne Pepper
Reply #30 - Oct 18th, 2012 at 6:31pm
 
I just took a two hour bubblebath in lavender bath oil beads to cure my clusters when I stepped out of the tub into a pile BS.

I think Potter put there.  Ruined everything, I have to go soak my head again.





Guiseppi wrote on Oct 18th, 2012 at 9:10am:
It's about helping people.


I'm not helping anything, am I?            Wink




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Re: Cayenne Pepper
Reply #31 - Oct 18th, 2012 at 7:21pm
 
Well we can coddle these newbies telling them they are doing good... or we can tell it like it is. Personally, I would like to tell him GET SOME FREEK'N OXYGEN MAN!
Again science and application. The anti-inflammatory and pain relieving properties of capsaicin have been known for many years. Many good scientists working on it. And yet, the nature of this substance is not providing anything practical. To get the bang you need, the concentration levels of capsaicin make the substance very painful and sometimes dangerous to handle and use. Removing the heat from the beneficial effects has proven illusive.
Besides the not slamming newbies point, go for it if it works for you, and making the appearance that we all support a treatment that has already been vetted here and dismissed, is hardly what this site is about. Offering something that really works like oxygen is! I can't believe this sh!t storm over someone calling bullsh!t, while no one is asking what else have you tried? In our experience THIS works better and won't cause the discomfort.
Time for a reality check.
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Re: Cayenne Pepper
Reply #32 - Oct 18th, 2012 at 8:53pm
 
Quote:
the nature of this substance is not providing anything practical. To get the bang you need, the concentration levels of capsaicin make the substance very painful and sometimes dangerous to handle and use.


I totally agree with this.  I've heard far too many with negative reports on this not to mention my own...very painful experiments with capsasin.   

There is obviously no reason to be mean on this site...however, if someone with few posts and are very, very new to cluster headaches tells me that breathing 02 made them gain weight for instance, I would have to tell them that is BS and steer them in the right direction about 02. 

We, who have been here a while and have suffered for years, have a duty to newcomers to support as well as give them information that we have gleaned over the years.  We are not here to simply accept every new fangled abort that comes along because SOMEONE  said it worked for them.  Capsacin isn't for everyone that is for sure and can do damage.  I've seen very few who have said it worked for even a short time. 

I promote oxygen.  I KNOW that works.  It has no side effects, it's cheap, and it works for 80% of us. 

Linda
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Re: Cayenne Pepper
Reply #33 - Oct 18th, 2012 at 9:53pm
 
You're missing my point Nolan.

BULLSHIT! You're an idiot.........vs:

That's not a high percentage treatment option, there are options available that provide relief for a much higher percentage of those who try them.

On the one hand, it's fun to get on a pedestal, talk down to someone, let them know you are the all knowing, all wise, omnipotent font of CH wisdom, and they are scum not worthy to post on your board.

On the other hand, the primary purpose of this board is to reach out to people who are hurting, and show them the many options available to ease their pain.

Those on this board who enjoy being bullies will continue being bullies. I've realized I can't change that. I'll always follow their posts with kind words and encourage people to stick around.

Those who think, "well someone had to say it"....you already know my feelings on that.

Joe
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Re: Cayenne Pepper
Reply #34 - Oct 18th, 2012 at 11:19pm
 
Guiseppi wrote on Oct 18th, 2012 at 9:53pm:
You're missing my point Nolan.

BULLSHIT! You're an idiot.........vs:

That's not a high percentage treatment option, there are options available that provide relief for a much higher percentage of those who try them.

On the one hand, it's fun to get on a pedestal, talk down to someone, let them know you are the all knowing, all wise, omnipotent font of CH wisdom, and they are scum not worthy to post on your board.

On the other hand, the primary purpose of this board is to reach out to people who are hurting, and show them the many options available to ease their pain.

Those on this board who enjoy being bullies will continue being bullies. I've realized I can't change that. I'll always follow their posts with kind words and encourage people to stick around.

Those who think, "well someone had to say it"....you already know my feelings on that.

Joe

Never was meant as an insult nor was it bullying.  It was my opinion. The feller made one post and hasn't been back to check on the post.  Ya think maybe they just come here to goof us?

             Potter who ain't no god

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Re: Cayenne Pepper
Reply #35 - Oct 18th, 2012 at 11:29pm
 
Guiseppi wrote on Oct 18th, 2012 at 9:53pm:
You're missing my point Nolan.

I am not missing anything Joe... if you look at the first two posts in this thread, mine and yours, we were heading in the right direction at that time. I welcomed and said "not too weird", and you encouraged him to read up in case it failed him. The next post should have been Bob Johnson with the whole specialist speal... and on and on. The Bullshit comment was not gentle, I said that, but instead of resuming to make him feel at home and help him we all went into this shit storm, that quite frankly would scare me away faster than a bullshit comment from a few amongst many many others who are trying to be nice and help. I get everyone's points here... mine is this went wrong here and we need to learn from it.
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Re: Cayenne Pepper
Reply #36 - Oct 19th, 2012 at 12:15am
 
I'm not touching the "in house" discussions, I did however try it in capsule form at one time. Ingesting it and from my limited experience... it did nothing, except making trips to the bath room, at times, a bit more interesting....  Cheesy

Remember the old Hank Williams song... "Settin' the woods on fire"???!!!

No comment on snorting the stuff, no experience.
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Re: Cayenne Pepper
Reply #37 - Oct 19th, 2012 at 3:41am
 
i tried it and it seemed to work for me...  at first.

im still not sure if it was the capsaicin or just the caughing and sputtering, or just coincidence, but i carried it on me almost everywhere until i got on the lithium.

the way i see it, even if there is a one in a hundred chance that it will actually abort a CH, i want it within reach.  sometimes, you can end up in a position where you really cant afford to get a bad hit, and i would much rather take a million scovilles up the nose or even in the eye than have to ride out a bad hit in a bad place at a bad time.

even with good prevents, i still keep three forms of abortives on me or near me at all times.  a tiny bottle of pepper extract is small enough to barely be noticed, and if it gives me nothing more than peace of mind, it helps.

i will say though, if you ever get in the habbit of carrying something really spicy in your pocket, put it in a small plastic bag.  i learned this after months of wondering why my right thigh always felt like it had been sunburned by the end of the day...

so far as the dangers go,  i dont think it is that great.  i have managed to inhale a 1.5 million scoville pepper extract without damaging my lungs.  it just made me caugh more than the gas chamber did in basic training, for about five minutes or so.  and of course, if your hand goes to your nose to wipe the spicy snot away, its next stop should probably not be your eye. 

since capsaicin is something your body can get used to, it kinda makes sense that it would stop working after a short period of time.  the question is, why does it work for some to bo begin with?  what makes those of us who experience limited success different from those who experience none?

personally, i dont care what somebody else says will not work if i think it will work for me.  even if i dont think it will, ill still often try it. 
with cluster headaches, its easy to get that desperate.
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« Last Edit: Oct 19th, 2012 at 3:43am by AubanBird »  
 
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Re: Cayenne Pepper
Reply #38 - Oct 19th, 2012 at 6:40am
 
Linda_Howell wrote on Oct 18th, 2012 at 8:53pm:
I've heard far too many with negative reports on this not to mention my own...very painful experiments with capsasin.


Oh Linda, you are so right.  Let us not forget this nameless poor lass you will remember.     Wink


Quote:
If you are easily offeneded, please don't read anymore.

This is a true story and it happened to me about 4 years ago. I have only told a handfull of people the tale, but I thought we could all use a good laugh around here, so here goes.

This story comes in 2 parts.

Part 1

A few years ago I had read on the board that the use of Capsapian cream or the cream that sportsmen use for injuries, would help a clusterheadache. I read that if you applied the cream to the side of the headache it would help the pain.
I ran out and and bought a tube.
A couple of days later I had the chance to test it out. The beast awoke in my head. I opened up the tube and smeared some of the cream to my temple, forehead and jaw area. I got back into bed and waitied for the magic to happen.
Oh my god, it made it worse if that is possible. In my pain, I used my hand to get the excess cream off my face and I wiped it on the bed sheet on the side of my bed. I kept wiping and wiping.
I ran into the shower to rinse it off, then danced with the beast for the duration.
End of part one.

Side note. Sometimes in the throes of pain, I forget what I have done.

Part2

(5 days later)

I was getting ready for bed and I felt a little...errr.......tense shall we say.
Being a chronically single woman, I need help to eerrr....de-stress.
So I went to find my "big man in a drawer"
I found him. Got into bed. I looked closely at "him" and it had a little feather on the end of it. (My down comforter is a pain). Well I couldn't be bothered to get out of bed again, so I wiped the feather off on the side of my bed sheet.
So I began to ...errrrr...destress myself.
This unfamiliar sensation began to take over my nether regions. WHAAAAAAAAAAAAAAAAAAAAAA!!!!!
My Lucy was on FIRE!!!!!!!!
I jumped out of bed as fast as I could, clambered into the shower, turned the cold water, grabbed the shower head and tried to calm the raging flames that were taking over my woomanhood.
Later, I was in my living room trying to figure out what in the hell had just happened. I called my best friend and told her the story in a shakey voice.
"Karen, someone sabotaged my dildo...whaaaaaaaaaa"
"I think someone must have dipped it in hot sauce whaaaaaaa"
"I'm coming over" she said.
Karen arrived at my house 20 minutes later with a ziplock bag and some cold yogurt.
We figured it must have been the maintenance men.
"I'm calling the cops in the morning" said Karen
She ordered me to put the offending object into the ziplock bag. "They might be able to fingerprint it"
The next morning Karen called me and reported she had indeed called the cop shop and asked if  it was possible for a vibrator to be fingerprinted.
I think they thought it was a prank call.

Well a few days went by, I had already got a lock put on my bedroom door, and Karen still had my "man" in a bag.
I was relaxing watching TV when all of a sudden it dawned on me what I had done. "Oh Shit"
I called Karen and told her, and we laughed till we cried.
My Lucy has never really been the same ;Grin





Of course though, I hope those easily offended don't disappear.  Smiley

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« Last Edit: Oct 19th, 2012 at 6:53am by Kevin_M »  
 
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Re: Cayenne Pepper
Reply #39 - Oct 19th, 2012 at 11:55am
 
Oh Kevin..how could anyone forget her, or her story.  lmao
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Re: Cayenne Pepper
Reply #40 - Oct 19th, 2012 at 12:39pm
 
PokeyOats wrote on Oct 12th, 2012 at 12:55pm:
Hi all,

I just wanted to get this out there because as a sufferer I will so anything to help anyone, these headaches are a living hell!


He was just trying to share what was working for him. If you found something strange (out of the ordinary) that worked for you and you where simply just trying to share your experience and someone wrote on your board bull shit how would you feel. I think some of you are missing the point ! Newbies do not no you or anything about you. If you disagree with what they are using maybe try and say it in a nicer way ! this is not the first time i have seen potter write negative post on people post !matter fact about every post Ive seen from him has been pretty rude to be honest. The last guy Potter was rude to on his post DM me and said he appreciated me standing up for him but he would no longer be posting on this forum because of how rude he was on the poor guys first post. We have a shitty condition that not many have, and a lot of us feel hopeless and alone and this is the only place we can find anyone to relate to. why scare them away from the board.
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Re: Cayenne Pepper
Reply #41 - Oct 19th, 2012 at 1:06pm
 
Let's get something straight before we start bandying buzzwords about. Bullying can only be done from a position of power. Moderators and the owner are the only ones on this site that have any power, if you even want to call it that (in that they can freeze threads and/or ban posters for breaking the rules). Minus them, everyone else on this board is equal in terms of power (e.g., we have none, nor should we.). We all come here of our own volition, and are free to leave under the same terms.

This is NOT a case of bullying. It's a matter of style. A poster can disagree with another poster's style, and they're free to restate what might be good and sound advice in their own style. Pretty simple.
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Re: Cayenne Pepper
Reply #42 - Oct 19th, 2012 at 1:11pm
 
Now maybe those snivelin bout Potters style will quit whinin.  I'll be a little more loquacious, from now on.

                  Potter
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Re: Cayenne Pepper
Reply #43 - Oct 19th, 2012 at 2:51pm
 
Am reminded…maybe 8-10 years ago..... I went the snorted cayenne pepper route….hey, blue cheese, vinegar, tin foil hats, neck pressure…WHAT-EVER!..if I thought dog poop head rubs would work…woulda tried that too….that’s how bad ch is…

used to carry a small bag of such powder…first sign of a hit and jon is squirreled away snortin “red”…for a while it seemed to sorta work…at least lowering the hit…placebo or distraction…dunno. Then my colleagues started wondering about me…he disappears…comes back with red eyes and the “sniffles”… and acting weird…just wasn’t worth it…besides… it wasn’t “workin” no more….

…am also reminded of treasured memories with my brother…we used to go down by the banks of the Skagit river to pick blackberries (them’s the best!). Usually involved passing thru a pasture…with a “no trespass” sign. I surely do love my bro…and one of his best qualities is sign recognition…he always tells me…when we see such a sign…”well, it DON”T mean ME” (I’m thinking he prefers what the BACK of the sign says…Ima wuss and usually read the front).

Pastures involve cattle…and the cows…a creature as curious as a cat…well…it is an otherworldly feeling to be stared at by such like you are an alien from Mars. Now the usual lone bull was a different story…he didn’t care what planet you were from…. cuz you were in HIS world…and he DON’T… LIKE…. IT! (snort, slobber, and the stink eye tells ya so). We got by with the following: face up, calm, no quick moves, be ready to run…and mooooove along slow. The return trip was always easier…guess we were part of the herd at that point…..

..also reminded of a Potter story re walking in a field with a friend…and spotting a pile of bullshit in the path. What to do? Point it out and save the friend the stinkin squishees…or let him experience the realities of life????

Me?…I’d walk thru a field ANY day with Potter….

Best,

Jon

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Re: Cayenne Pepper
Reply #44 - Oct 19th, 2012 at 3:01pm
 
Loquacious indeed. But then I have always felt that you had an extreme propensity for pontification.  Wink

Some folks don't always want to hear straight talk - which in turn squelches conversation for many of us. It's different around here now - people are expected to be politically correct - and warm and fuzzy.

It's the internet where a person can choose to ignore, but some folks haven't figured that out.

Marc
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Re: Cayenne Pepper
Reply #45 - Oct 19th, 2012 at 3:32pm
 
first and foremost i never said bullying, i don't consider this bullying, that is extreme i really don't understand why instead of just writing bullshit! you couldn't have tried suggest other alternatives. and explained why he felt that way. that's all i'm saying. i take it as rude and as much as this sight has helped me. I will no longer be a member of a board like this if that is the way we treat new members of the board. Best of luck to you all. Take care and thanks for the support in the past. And i wish you all PF days!
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Re: Cayenne Pepper
Reply #46 - Oct 19th, 2012 at 6:08pm
 
Potter wrote on Oct 19th, 2012 at 1:11pm:
Now maybe those snivelin bout Potters style will quit whinin. 

Not snivelin, Potter, simply stating my disgust that some people see fit to swear at first-time posters.

This is a support group where the vast majority of us choose to support new-comers.
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Re: Cayenne Pepper
Reply #47 - Oct 19th, 2012 at 7:37pm
 
I'm gonna have some pizza, catch some baseball or a movie, call it a day and be around again tomorrow. Had a good time with everybody, we'll do it again.  Jon, your story was a great pleasure and made my day reading it.

If awoken I'll probably peek in while I'm up, as usual.  We'll work on this PF thing another few thousand times.  Keep it if you got it and let's get a few more there.  Thanks all very much for mine I get. Smiley
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