OK, knowing when to walk away has never been my strong suit...
We have a young man here who has never tried oxygen, let's see what he has had to say...
retrovertigo wrote on Mar 10th, 2009 at 7:12pm:Doc said he would consider script for O2...
I think it sounds like best option as triptans have been either inconsistent or causing worse rebounds.
retrovertigo wrote on Mar 10th, 2009 at 7:41pm:I need to try O2.
retrovertigo wrote on Mar 14th, 2009 at 9:52am:I can completely manage this way, largely because I don't tend to get more than 1 hit a night (usually 1 night off out of 3 even at peak of cycle) . But I'm wondering if I would feel less grogged after O2 or run less risk of extending cycle...
My father -in-law has unlimited script for O2, and has offered me tank to try but I would need regulator and mask. Acquiring these out of pocket would not be prohibitive, but I am unsure about availibility w/o script. Might be easiest way to try O2.
retrovertigo wrote on Mar 14th, 2009 at 7:06pm:My hits were never daily until I started using triptans. When my cycles started they were only about 2 weeks with 2 or 3 major hits that lasted 2 hours. Now the cycles are 6 weeks with 4 or 5 major hits per week that last 3-4 hours. The increased frequency has been evolving with my attempts to thwart them beginning 4 cycles (8 years) ago. Despite having dealt with CH most of my life I am fairly new to the medication game. And kind of wish I could just go back to the early days of naively suffering, but not for long durations.
retrovertigo wrote on Oct 7th, 2010 at 8:17am:I am left with sleep disturbing shadows and a very upset stomach from the triptans.
retrovertigo wrote on Oct 7th, 2010 at 6:31pm:I'd definitely like to try O2, but doc says ins. co. makes it very difficult to prescribe. So i'd be on my own and I have been my own worst enemy in that department. I am not proactive enough when out of cycle. I didn't stock up and horde the imitrex nasal, I didn't line up an o2 supply.
retrovertigo wrote on Jul 16th, 2012 at 9:09pm:Now that I'm using triptans and energy drinks i feel like shit between the HA's as well.(maybe the lack of sleep is affecting me more now.) I'm thinking about going back to the "man up" approach. My script for imitrex ran out and the doc re-upped it but my insurance company wouldn't pay for it. I could have afforded the $215.00 for six more sprays but the doctor said the ins. co. thinks i'm overusing and getting rebound headaches anyway. I 'm not sure i can argue that. I should be winding down my cycle and I can get the imitrex paid for on wednesday. But i also managed to abort a headache just with extreme cold on my forehead and extreme heat on the back of my neck. I need to try O2, but ins. co. won't help with that at all. Would o2 have a better success rate with no rebounds?
retrovertigo wrote on Jul 17th, 2012 at 6:01am:2nd night of 'manning up' didn't work out too well. it did remind me that even when the imitrex doesn't abort an attack it still takes a little edge off. the 10's i thought i was having were really 9's. last night was multiple 10's. been off imitrex for 3 days so i don't think there is any rebound. i think my head is just not right.
bought a regulator. called a neuro office. my cycle will probably be done before i can get any help but i can't count on my lengthy remission periods to bail me out of this. this cycle is kicking my ass.
retrovertigo wrote on Jul 21st, 2012 at 3:12pm:Putting an o2 package together and last piece is the tank of gas. At 15 liters/ min for 15 mins I'd use almost a 250 liter tank per attack, is that right? Seems like I'd need several tanks or a daily trip to the gas supply.
retrovertigo wrote on Oct 10th, 2012 at 8:38pm:For those who have used both- is it worth it? Or am I just making more work for myself? Or do I put my efforts into O2?
Well should he put his efforts into O2?
Is there anyone out there who can look past my rude meltdown and make a constructive comment regarding my stand on Imitrex injections and oxygen?