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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › what is finally working for me =)

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what is finally working for me =) (Read 1363 times)

lydia nichole

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Manassas, Virginia
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what is finally working for me =)
Oct 8^th, 2012 at 10:50am

okay as some of you know it has been a very ruff road for me (im Chronic), I have tried all main stream preventatives:
Verapamil (horrible upset stomach)
Lithium (worse headaches)
Topamax (wieght loss concern and more headaches
also
Cymbalta (worsening mood)
Neurontin (no diffrence)

Abortive Medications:
Triptains pill and injectable (anxiety, nausea, vomiting)
DHE Nasal Spray (worsening headache)
DHE Injection (anxiety, nausea, vomiting)
Toradol injections (nothing no relief)

so what is working for me is Lidocain 2% nasal spray as long as i take it when i first feel the pain coming. and then i sit with my Oxygen 15LPM Non-Rebreather mask for 15 mins and that normally does the trick. if it doesn't i will take a xanax for the anxiety and 1 2mg dilaudid<-- i no alot dont like that but im going from over 30 CH a month to less 10 and i only take the diaudid or Xanax if the pain is over 7 and i cant get it to go away with the oxygen and lidocain alone and the mix helps me so much. just wanted to let everone know im so happy to finally feel in control ! im on no preventatives anymore as well. im waiting to be seen at georgetown my neuro has recommended me there.

Only the strong survive!!!

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niavas CH.com Newbie Offline I Love CH.com! Posts: 21 South Dakota Gender:	Re: what is finally working for me =) Reply #1 - Oct 8^th, 2012 at 11:39am I'm glad you found something that helps.
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Jrcox CH.com Veteran Offline I Love CH.com! Posts: 123 FARMINGTON, MN Gender:	Re: what is finally working for me =) Reply #2 - Oct 8^th, 2012 at 8:26pm Awesome. I am going to try another round. Start over with my neorologist. As for now, just coffee and O2
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lydia nichole

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Manassas, Virginia
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Re: what is finally working for me =)
Reply #3 - Oct 9^th, 2012 at 12:02pm

i kind of feel like all the preventive medications where causing all day shadows to become worse and all the side effect where just not worth it. I'm feeling so much better i no the headache is still there. but now i can control it. the xanax is actually a life saver because when i feel an attack coming i naturally and i'm sure a lot of other start to panic. but how can you not when you feel like someone is stabbing you in your eye with a hot knife! but i think that causes the headache to get worse. so the anti anxiety is great for me. I totally think Lidocain Nasal Spray (not the gel that you put on a q-tip) is amazing for shadows ! plus no side effects ! and i can actually fill the benefits from the oxygen because before i swear it was not working for me. Still not very effective with my kip 8 and higher that's when i have to use the diaudid which is very very rare. im hoping you find a great neurologist and lots of PF days.

Only the strong survive!!!

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: what is finally working for me =) Reply #4 - Oct 11^th, 2012 at 8:25am I'm so very pleased for you Lydia. Congratulations, and may you have many, many pain free days and nights. blessings. lance
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lydia nichole CH.com Veteran Offline I Love CH.com! Posts: 139 Manassas, Virginia Gender:	Re: what is finally working for me =) Reply #5 - Oct 11^th, 2012 at 2:53pm Still staying in control of the pain. thank you all.
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