I'm going to be 48yrs old in October 2012 and was diagnosed with (rare) Bilateral Clusters. I spent 10 days in Chicago at Diamond Headache Center getting aggressive treatment earlier this year. It did help some, but I still get headaches, memory loss, and I find it hard to remember words sometimes.

I'm married with 2 beautiful daughters, both in college. They have all been very supportive of my condition. I have a very high tolerance for pain so I can usually hide a lot of it from them.

My wife can usually tell if I'm hurting so I try really hard not to show it.

I used to drive a cement truck for a living, and after 24 yrs. I finally own my own business and work for myself. I own an onsite computer repair business and I have 1 employee at this time.

What I find most aggravating is the loss for words when I'm speaking to a customer on the phone.

I take 480mg of Verapamil daily which does seem to help. I have noticed lately I mostly have pressure in my eyes and I get dizzy a lot.

I'm glad there is a place to go where people can understand how you feel.

Thanks!

Welcome to the board, you didn't mention oxygen. Do you have home oxygen as an abortive? I'ma  52 year old, 35 year sufferer and nothing has ever compared with 02 for fast, consistent relief. Check out this link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Joe

I responded on another section because I saw someone asking about bilateral clusters.

I don't think its the Verapamil causing my dizziness, I check my BP and its usually 120/80.

My Doctor says it can be a symptom of CH. I'm tired a lot and running the business along with CH really wears me down sometimes.

I did try O2 but wasn't very successful since the machine only went to 10 and I need around 15.

I will check in often since I found this board.

Thanks, Doug