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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › What's (finally) working for me...

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What's (finally) working for me... (Read 1268 times)

Joshua CH.com Alumnus Offline Posts: 264 x0\|New York\|USA\|\|0\|0\|NY,New_York Gender:	What's (finally) working for me... Sep 12^th, 2012 at 1:06pm 480mg verap (240 am/pm) 100mg Zonagran (all pm) . Prior to this I was on a pred taper down from 80mg and I did one week of Migranal spray, 1 spray in each nostril every 8 hours) -- . It's been a few days now, HA free-- usually once the pred taper hits 30mg or 40mg they would come back. . Joshua
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: What's (finally) working for me... Reply #1 - Sep 12^th, 2012 at 1:13pm Glad to hear something's working. Question for you. Migranal is considered to be an abortive, used when needed to abort an attack. Why would you take it every 8 hours?
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Joshua

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Re: What's (finally) working for me...
Reply #2 - Sep 12^th, 2012 at 5:40pm

Neuro said it was a long shot but to try using dhe on that schedule for one week with caveats about mixing with triptans. It has been known to provide extended >24hr relief and she said might help break or calm cycle. Before I even started zonagran I noticed when I used migranal I got 24 to 36 hours of relief from one dose after aborting. It is unconventional to be sure and she said same...but the whole package seemed to work.

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wimsey1

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Re: What's (finally) working for me...
Reply #3 - Sep 14^th, 2012 at 8:33am

My experience with Migranal has been the same as yours, but not the use of Migranal as a preventative. I would get 24-36 hours of relief, too, after one dose, leaving a second dose for future use. Seems to me the cost of using it as a preventative would be prohibitive, too. My scrip comes with 8 bottles breaking down to 16 doses/month. I also found continued use daily (when I was in Germany and sans O2) it's effect diminished then disappeared. Worst days of my life. Glad it's working for you, though. God bless. lance

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Joshua CH.com Alumnus Offline Posts: 264 x0\|New York\|USA\|\|0\|0\|NY,New_York Gender:	Re: What's (finally) working for me... Reply #4 - Sep 14^th, 2012 at 2:26pm Agreed, I think that's why she said only try for a week. Still HA free-- 5 days on. Feeling good. Feel sometimes like one is coming, but it never does.
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japanzaman CH.com Veteran Offline I Love CH.com! Posts: 210 Fukuoka, JAPAN Gender:	Re: What's (finally) working for me... Reply #5 - Sep 15^th, 2012 at 2:52am Always a good feeling when you start to feel like you might be able to live a normal life again.
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Joshua CH.com Alumnus Offline Posts: 264 x0\|New York\|USA\|\|0\|0\|NY,New_York Gender:	Re: What's (finally) working for me... Reply #6 - Sep 15^th, 2012 at 7:52pm Totally agree. It's amazing how fast life can "go back to normal" -- after the craziness of trying to stabilize.
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