Ouch. Hoping that was a one-off for you. I've occasionally had those out of the blue, super-bad hits. I never did track down a pattern. How are you doing today?

Hey Mike, I've had a couple of those screamers and they were horrible. Two of them sent me to the hospital for DHE IV plus stuff. They were isolated incidents and the remainder were the usual torture...lower level and painful, but not a screamer. I pray you get these under control. God bless. lance

Mike Bernardo wrote on Aug 24^th, 2012 at 10:17am:


Hey Mike...do you have a thyroid condition

Mike im sorry you sound like me =( are you chronic? what preventatives do you take? i see you take sumavel/ side effect sucked for me, vomiting, upset stomach, i don't know about you but all triptains cause me to have massive panic attacks. so my doctor no longer thinks its a good idea for me to take them. have you tried DHE. its good but pretty pricey depending on insurance coverage. less nausea for me at least. everyone different tho. good luck hopefully you don't get anymore of those nights when i get them like that and i really do get them like that 2 or 3 nights a week i will try my oxygen for about 15-20 mins with a bag of frozen peas on my head then i normal get pissed and start throwing up and sit in my bathroom with the shower running really hot so it steams the bathroom up with the frozen peas and will try and cope. Some time that mix will work. Not sure why. if it last over 2 hrs and i cant cope and am continuously throwing up i have to go to the hospital because at that point DHE intramuscular and Sumavel are no use i need it threw IV

Mike,
   
On a lighter note, your avatar and post reminded me of a weird "cluster dream" from several years back....
   
I was dreaming that I was Luke Skywalker at the very end of "Jedi", where the emperor keeps frying him with force-lightning.  In my dream the lightning kept surging through my head and my face and it was agonizing. 
   
I woke up to find that I was not, in fact, in the throne room of the Death Star.  I was in my bedroom and in the midst of a gnarly hit.
   
-Ken

Yeah it's reset. 10 is now 10. I hope it doesn't get reset again. I do need my sleep. I start lithium this week. 600mg for a month. Then 1200 mg.

Both of the 10's I've had also sent me to the hospital for IV DHE-45 treatment.

Best thing that can be said about a 10 - things ALWAYS got better from that point.

The description I have for a Kip 10 is "Major pain, screaming, head banging, ER trip. Depressed. Suicidal.".

I've had one and it was before I'd got oxygen, so I was there for the full 90 minute ride to hell and back. There is just no real way I can describe what the pain was like other than it was worse than any other CH I've ever had and then it just got worse and worse and worse to a whole new level. It was beyond description that would make not make sense to anyone who had not experienced it.

I can remember my supporter, worried sick, even though she was by then used to seeing me in the middle of a CH, trying to call for medical help just to have them refuse to do anything for just a "headache". But for most of it I was just a mess, nose running like mad, endless tears, restless beyond description and totally incapable of doing anything but trying to get through, willing to do anything to end the pain, even though unable to do anything resembling a controlled movement.

It's somewhere I never, ever want to visit ever again. Luckily with oxygen I've been able to abort CHs before I get remotely near that place again.

Surviving a Kip 10 makes me think I'd survive an encounter with a Gom Jabbar which fans of the book (and film) Dune will know all about - Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or .