I would like to hear from you guys what you do about (assuming you suffer from it like I do) the devastating depression. I don't know if it is just a "over the top" pain reaction or if it is something truly associated with the syndrome itself. Also, I (this is when I'm in cycle but not actually suffering an attack that I am referring to) get this mental state of haze and my eyes stay fuzzy. I am just in a fog all the time while in an active cycle. Anybody else? I wonder if it is a stimulated over production of histamines and these are like allergy-type symptoms?

Actually I should've done this in 2 separate posts. They are completely independent of each other. I take Lyrica for neuropathy (diabetic) and I think that helps with the depression ("why me?", "I can't stand anymore", you know). The other thing, the one I theorize to be histamine production has always been a part of the cycle for me. I've never been one who could simply have an attack and just go "alright, that's done. Off to work!" Dig?

THAT'S IT!!!

This line from pain v. suffering helped me the most at work, when I was trying to work through the accommodations process:  "This is my body not working right; it has nothing to do with morality or sin or fairness. My job is to care for ME, NOW, not fret about fairness." I kept feeling guilty that I was letting my teammates down, having to leave a few hours early because of CH, getting hit a lot at work, etc. And after I accepted the idea that my body was rebelling and it wasn't my fault, I started to realize that my friends already knew this. They didn't begrudge me the accommodations, because when they need ME, I do the same.

I guess sometimes you just have to stop beating yourself up for things you can't control.

Attaboy! (Leave that poor horse alone already!) 

yeah, me too. I suspect (it would be a feeling of comfort in a perverse way, I guess) that there are many here who struggle with these issues. True?

Effects I have noticed (and that are backed up by clinical trials with other people) from "clusterbusting" with Psilocybin--Less depression (almost non-existent at this point), hardly any more of the "why me" syndrome, and a huge decrease in frequency and intensity of my hits.  Highly recommended. 


Another drug to look into if depression is getting you down... 

Ketamine, another drug that has helped me immensely.  The intranasal spray I use has been kicking my clusters to the curb fairly effectively (no magic bullet but I'm not taking half as much imitrex as I was and no more hydrocodone needed)

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It's not really an inhaler, just a spray I put up my nose.  My neuro prescribed it for me just about a year ago.  Like I said, no magic bullet, but it has made my quality of life significantly better.