hello everybody my name is joe an i have had cluster all my life an i dont understand y this is not a disability because its hard to keep a job when your constantly having attacks 3 an 4 times a day an mine last for 2 to 3 hours at a time its hard to get someone who doesnt have them to understand what u r going through ive been laid off now for a little while so i dont have insurance an the imatrex is 209 dollars for 12 pills thats to high. im glad to b able to talk wit people who understand what im going through wit these headaches right now im going on my 5th month straight everyday with these clusters i have 5 kids to take care off an when i go through these periods all i can do is lay down its hard to keep a job when i have an attack i have to leave an go lay down but the boss doesnt understand because he doesnt understand clusters he thinks its a regular headache lol i would give anything for a regular headache.

Until you can get this thing under control, you might want to print the following letter and give him a copy:

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Hi Joe,

     I understand you pain, I am a chronic sufferer and for a long time i had no health insurance and a job the paid state minimum, good news is, you CAN get disability, i am in the proses of it now and several other members of the board have had success as well, NOT easy and you will probably be denied twice and have to get a lawyer the 3rd time, But here in VA you do not have to pay anything upfront. if you don't win, you pay nothing if you do win, you pay 15% percent of your back pay when you receive it. this is sometimes a long process, make sure you have all of your paperwork from, doctors, hospitals, employers and all that good stuff to make your case easier. I will also add from what Ive heard episodic sufferers tend to get denied and put on partial disability opposed to chronic who tend to get full. ( I AM NOT A LAWER THO, THIS IS WHAT I HAVE BEEN TOLD ! LOL ) also you say you are on imitrex 12 pills for $209.00 without insurance. have you asked for the Sumatriptan pill form its the same thing only generic and much cheaper. Also you can get O2 at welder supply companies for rent i have heard to. if you are jobless and have no felonies and live in the states, have you tried to apply for Medicaid you mentioned you have 5 children give that a try. Hope this was some help for you, your in my prayers.
Lydia