about perhaps writing a book about what we go through. Dont know exactly how to go about it yet and what to do but i really want to do it. What we have is really rare and there is really not alot of information about it out there. Not even on the internet.
Was thinking about something on the lines of maybe anonomyus write ins of what an episode is like. And how it effects your life.
What do you guys think? Just throwing it out there.

LOL

i think its a great idea !!!!!

the more that is put out there the more research will hopefully be done, which means hopefully one day there will be a cure. fingers crossed

If you're looking for thoughts and ideas, go to Youtube and search "Cluster Headaches".  There's stuff in there would make a CHead cry.

You may also consider some of the great quotes that have turned up here over the years (which would make a nice thread in itself).

Three men stalk the gloomy back-alleys of the city's notorious slums. Spiderman, a 28-year-old drug lord, embarks on a routine patrol through the shadowy streets of Coréia, the sprawling slum he controls. Inspector Leonardo Torres, a muscle-bound operative from Rio's drug squad, inches through the alleys of another shantytown, shots ringing out around him. And Pastor Dione, an evangelical preacher intent on ending Rio's drug conflict, trawls the slums for lost souls.
Dancing With The Devil.

Bonnie lee wrote on Aug 5^th, 2012 at 6:25pm:

Ya really should use Google.

           Potter

   You should name it Stealer of dreams