Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 
Send Topic Print
Why Unilateral? (Read 4327 times)
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Why Unilateral?
Jul 13th, 2012 at 11:02pm
 
It seems that the overwhelming majority of CH sufferers complain on one-sided events.  In trying to connect a dot or two, I keep running into a nagging question, namely:

     If the hypothalamus is intimately involved in the CH cycle (and it sure seems to be), then what mechanism might explain the unilateral nature of the disorder?

Anybody able to help me out with this?  Thanks,

TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
Skyhawk5
CH.com Alumnus
***
Offline


I love YaBB 1G - SP1!


Posts: 1320
Ypsilanti, Mi. USA
Gender: male
Re: Why Unilateral?
Reply #1 - Jul 14th, 2012 at 12:40am
 
This is as puzzling as the fact that whether we are right handed or left, has no relation to our pain side.

Don
Back to top
  

Though I walk through the valley of the shadow of the Beast , I  have O2 so I fear him not.
Skyhawk5655  
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #2 - Jul 14th, 2012 at 8:22am
 
Thanks for the feedback.  Your 'handedness' comment caught me off-guard.  I did not know this....and hadn't even considered it.  It is for this reason that I have decided to enlist the help of CHers to help raise Qs in a 'brainstorming' sort of way to revisit the origin issue(s).  I'm perfectly willing to suffer the "we've been through all of this before...with minds greater than yours" comments that most likely will come.  Still, as one of the 'new guys' (only a few years and a dozen or so clusters), I may speak for others who have not yet the experience of so many like yourself. 

In a broadbrushed concept, it seems that human disorders fall broadly into one of a couple of categories:  deficits or disorders (though I've got to make those categories crisper).  Some people are deficient in, say, nutrients.  That may lead to something like nervous system disorders.  It seems logical that, at some point, the deficiency, even if corrected, will not provide the outcome that it may have produced earlier in the disorder.  In other people, they may have the misfortune of having been born without a critical component, leading to incomplete, altered, or misguided function.  Still others may suffer from trauma induced defects.  This may account for why CHers, including me, focus heavily on one approach over another. 

I have not seen a group of sufferers more willing to empathize and connect with other sufferers than CH sufferers and advocates.  I am abundantly thankful for you all, most of all...my spouse. 
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: Why Unilateral?
Reply #3 - Jul 14th, 2012 at 9:48am
 
I'm one who believes we should never stop poking and asking to try and find that one common "factor." Check out a post in the meds section, "123 pain free days and I think I know why." Batch is like you, always poking and looking, and started a theory about Vitamin D-3 deficiencies, and also questioned the effect your arterial PH levels have on CH. This has morphed into the "Batch Regimen" that's providing a LOT of relief to a lot of people.

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
Billie
CH.com Junior
**
Offline


I Love CH.com!


Posts: 62
Maryland
Gender: female
Re: Why Unilateral?
Reply #4 - Jul 14th, 2012 at 2:36pm
 
I experience them on both sides; 2 months out of the year on one side and then 2 months out of the year on another, then 1 year of remission.  I've had a rare time or two where during one of those 2 months it switched sides with each headache through the whole cycle.  Very crazy how they follow such patterns.
Back to top
  
http://www.facebook.com/smithbilliejoe?ref=tn_tnmn  
IP Logged
 
coach_bill
CH.com Hall of Famer
*****
Offline


"Dont expect me to lay
down for this"


Posts: 680
x0|euclid|USA||0|0|OH,Ohio
Gender: male
Re: Why Unilateral?
Reply #5 - Jul 14th, 2012 at 8:55pm
 
Hey Family,

Always on the left side. I am right handed.

Safe at home...
Coach Bill
Back to top
  

boy i cant wait till it's my turn to give him a headache. paybacks a bitch
WWW  
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #6 - Jul 14th, 2012 at 10:58pm
 
OK, thanks all.  I'll read more.  Thanks for the direction, Joe.  Batch may be on to something in the D.  Took almost forever, but conventional medicine is looking into the link between inflammation and disease/disorders.  It's not so surprising, really.  Folks have been focused on anti-inflammatory meds and remedies for a long, long time.  Now there is intellectual curiosity about the way the body's response to inflammation may impact other systems.  Lots of interest in blood vessels and the inflammatory impact. 

So, right or left handed, sounds as if there isn't much correlation there. 

Thanks again.  Quieter days to all.

TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #7 - Jul 14th, 2012 at 11:02pm
 
Billie wrote on Jul 14th, 2012 at 2:36pm:
I experience them on both sides; 2 months out of the year on one side and then 2 months out of the year on another, then 1 year of remission.  I've had a rare time or two where during one of those 2 months it switched sides with each headache through the whole cycle.  Very crazy how they follow such patterns. 


Interesting.  I don't recall reading any other such scenarios.  Must drive you crazy.  I am in my first episode of back-to-back clusters, with only one week between.  Typically 9-14 months.  Take care,

TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
lydia nichole
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 139
Manassas, Virginia
Gender: female
Re: Why Unilateral?
Reply #8 - Jul 16th, 2012 at 10:26am
 
mine switch sides all the time never in the same day or during. My clusters are kind of strange i will have have them for about 3 weeks straight they will be on the right side for about 2 weeks switch to the left side for a week then go in to remission for about 3-4 days then start all over again.
Back to top
  

Only the strong survive!!!
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #9 - Jul 16th, 2012 at 10:02pm
 
lydia nichole wrote on Jul 16th, 2012 at 10:26am:
mine switch sides all the time never in the same day or during. My clusters are kind of strange i will have have them for about 3 weeks straight they will be on the right side for about 2 weeks switch to the left side for a week then go in to remission for about 3-4 days then start all over again.


Gads, so much to process.  I'm re-reading some physiology and finding that it's as confusing as it was the first time.  I really appreciate the feedback, as it stimulates my thinking in many ways that I haven't thought of.  I'm still trying to figure out why the darned thing is unilateral.  The fact that it switches sides in so many of us just makes me more curious.  Here's to a long refractory period!  Take care,
TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
AppleNutClusters
CH.com Old Timer
****
Offline


2012, Year of the Honey
Badger


Posts: 261
Richmond, Virgina, USA
Gender: male
Re: Why Unilateral?
Reply #10 - Jul 17th, 2012 at 6:38am
 
Always on the left, any kind of headache I've ever gotten, it was on the left above my eye.  When I was younger, I thought I must have a tumor because it's always in that same spot.  Now I'm older and I know better, but I'm still tempted to ask if they can just "you know know, take that part of my brain out".  And I'm right-handed.
Back to top
  
jgroulx@mac.com  
IP Logged
 
Bob P
CH.com Hall of Famer
*****
Offline


Shut up Bob!


Posts: 4573
Clio,California
Gender: male
Re: Why Unilateral?
Reply #11 - Jul 17th, 2012 at 7:53am
 
I believe Doc Goadsby's research showed the deformity of the hypothalamus (the extra bundle of nerve fibers) to be on the back of the hypo and on the same side as the clusters.
Back to top
  

Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
WWW  
IP Logged
 
-dvb-
CH.com Junior
**
Offline


I Love CH.com!


Posts: 42
New Jersey
Gender: male
Re: Why Unilateral?
Reply #12 - Jul 17th, 2012 at 11:59am
 
coach_bill wrote on Jul 14th, 2012 at 8:55pm:
Hey Family,

Always on the left side. I am right handed.

Safe at home...
Coach Bill



Same here...
Back to top
  
 
IP Logged
 
Beth E
CH.com Junior
**
Offline


Thanks for understanding
CH.com!


Posts: 88
Union City (Erie)  PA
Gender: female
Re: Why Unilateral?
Reply #13 - Jul 17th, 2012 at 2:32pm
 
My CHer....right handed right side....always...17 years, last 4 chronic
Back to top
  

No longer Helpless now!
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #14 - Jul 17th, 2012 at 7:34pm
 
Bob P wrote on Jul 17th, 2012 at 7:53am:
I believe Doc Goadsby's research showed the deformity of the hypothalamus (the extra bundle of nerve fibers) to be on the back of the hypo and on the same side as the clusters.


Thanks, Bob,

I will definitely look into this work.  I am new around here and haven't seen all of this site.  It's a bit akin to a mansion.  Just when I get 'wowed', I round a corner and get impressed again. 

TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
Bob P
CH.com Hall of Famer
*****
Offline


Shut up Bob!


Posts: 4573
Clio,California
Gender: male
Re: Why Unilateral?
Reply #15 - Jul 18th, 2012 at 7:29am
 
Here ya go:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Back to top
  

Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
WWW  
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #16 - Jul 22nd, 2012 at 9:30pm
 
I am grateful for the link.  Quite plausible.  Are you aware of other follow-up studies (this one was 13 years ago)?  I am beginning to be less bashful about asking, even though I'm so old that we were always chided to do our own work.  Gads, remember going to the library and using a card catalog?  My take-away statement?

     "This complete correlation of functional and structural abnormality is striking."

Indeed.
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #17 - Jul 26th, 2012 at 9:41pm
 
OK, gang, I still can't find a follow-up study on this significant observation by Dr. Goadsby.  I am not technologically savvy, but something ought to show up.  Anybody?

This extra gray matter sort of reminds me of a cheloid.  Still, it doesn't explain the alternating presentation that some show. Hmmm.....so much to learn.
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
Skyhawk5
CH.com Alumnus
***
Offline


I love YaBB 1G - SP1!


Posts: 1320
Ypsilanti, Mi. USA
Gender: male
Re: Why Unilateral?
Reply #18 - Jul 26th, 2012 at 10:41pm
 
Check out the link below. At the end is the PET scan images.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Don
Back to top
  

Though I walk through the valley of the shadow of the Beast , I  have O2 so I fear him not.
Skyhawk5655  
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #19 - Aug 1st, 2012 at 5:57am
 
Has anyone ever had bilateral CHs?
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
snookarosis
CH.com Junior
**
Offline


I Love CH.com!


Posts: 48
texas
Gender: male
Re: Why Unilateral?
Reply #20 - Aug 4th, 2012 at 7:06pm
 
My ch's are always the same (tho the actual time periods aren't certain). They begin on the left side until they reach about 8.... but as the frequency and intensity picks up they move to the right side and go to the steady 10's and 9's. Then, just as in the beginning, they move back to the left and they begin to taper over a period of weeks back down to the 7,6,5, etc. until the cycle is, at last, over. It is so predictable that I keep watch for a "left side" just so I know my cycle is winding down. It wasn't always like this, but has been for the last ten years I'd say. I still ain't even got to the right side yet in my current cycle. Bummer
Back to top
  
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #21 - Aug 4th, 2012 at 10:20pm
 
Well, this would appear to be a less common presentation.  Begin one side, switch to the other, then return to the original side for the wind-down.  THAT is a curious finding (to me).

I know that our findings are, by definition, anecdotal.  Still, I cannot think that because of that, the findings are not helpful.  Thanks for the reply.  I'm actually pondering something and these inputs help me. 

I'll be keeping fingers crossed that you have the left side show up soon.

Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
Imitrex4Breakfast
CH.com Veteran
***
Offline




Posts: 200
Kentuckiana
Gender: male
Re: Why Unilateral?
Reply #22 - Aug 4th, 2012 at 11:50pm
 
12 years episodic and right sided only. One night (Oct 2000) a bi-lateral cluster. From then on, left sided and chronic with only a very rare right sided attack. Go figure ?? No ryme or reason


I4B
Back to top
  
 
IP Logged
 
metoo
CH.com Junior
**
Offline




Posts: 56
ann arbor mi usa
Gender: male
Re: Why Unilateral?
Reply #23 - Aug 5th, 2012 at 11:21am
 
Imitrex4Breakfast wrote on Aug 4th, 2012 at 11:50pm:
12 years episodic and right sided only. One night (Oct 2000) a bi-lateral cluster. From then on, left sided and chronic with only a very rare right sided attack. Go figure ?? No ryme or reason


I4B


Hey, I4B.  This is a significant event that you recall.  I wish I knew what the heck the significance is, but I find it so interesting that I wrote it on my "super special findings log".  My guess is that each of us has spent at least some time trying to make sense of the bugger.  So many similarities, yet so many variations.  Of all the info that I've learned from the sources that I've been able to locate, this one thing seems most certain:  there is a preponderance of evidence (anecdotal as it may be) that there is a vascular involvement in CH. 

Profound, huh? 

Now, why would your beast have treated you the way it did?  Take care,

TJ
Back to top
  

#4 - Avoid annoying people who don't deserve it.
 
IP Logged
 
librarygirl
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 1
Re: Why Unilateral?
Reply #24 - Aug 6th, 2012 at 4:57pm
 
Hello. New here, new to CH diagnosis, not new to the headaches.

Just thought I'd share mine- always left side, always. I'm right handed. I've also always experienced ear aches/infections in my left ear and sinus stuff is worse on the left.
Back to top
  
 
IP Logged
 
Pages: 1 2 
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!