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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Back on the Topamax

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Back on the Topamax (Read 1310 times)

Joshua

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Back on the Topamax
Jul 2^nd, 2012 at 8:09am

In addition to the D3 therapy - have started taking the Topamax again. It was the only thing that worked last time other than prednisone. I went from 25mg (no side effects) to 50 mg last night and got slammed with the dopeyness. I made the mistake of taking my dose at 6pm, it wiped me out for the rest of the night and in to today... hoping it lessens as I get used to it. Will start taking it before bed instead of before dinner!
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In ~2 weeks the pred taper should be done, the D3 shouled be fully ramped up, I can get my levels tested and see where I am.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Back on the Topamax Reply #1 - Jul 2^nd, 2012 at 9:27am I've never had to go with "dopey-max" as the lithium has always worked well for me. Sadly there is a percentage of users who have to fight through the brain willies! Hope it's a short term deal and you can get back on top again. Joe
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Joshua

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Re: Back on the Topamax
Reply #2 - Jul 3^rd, 2012 at 7:22am

Meh- had to stop. Same exact deal as 3 years ago. I wish it was different. As soon as I took the 50 mg dose, I became short of breath all day and totally out of it. Found this link as well:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Seems it does happen...

Down to 40mg pred on the taper and got hit last night for the first time since starting it. Back to the drawing board

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Guiseppi

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Re: Back on the Topamax
Reply #3 - Jul 3^rd, 2012 at 9:23am

Has your doc tried lithium in the past? Don't tlet the hollywood stereotype of a mouth breathing zombie scare you. I take 1200 mg a day and at that dose if I didn't tell you I was on it you'd never know. It takes a little blood work the first go round to establish what your therapeudic dose is as we all process this salt a little differently. Might be worth a shot.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Joshua CH.com Alumnus Offline Posts: 264 x0\|New York\|USA\|\|0\|0\|NY,New_York Gender:	Re: Back on the Topamax Reply #4 - Jul 3^rd, 2012 at 10:00am I will be honest. I am 100% put off by the lithium stereotype. There- I said it. That said, I can no longer put off trying it I think. Weight gain, hazy waking hours, etc... that's what I'm scared of (as I already struggle with attention and weight) -- so.. What was your experience?
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Guiseppi

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Re: Back on the Topamax
Reply #5 - Jul 3^rd, 2012 at 12:04pm

The only side effects...over 20 years of using....you pee a LOT the first 2 weeks, takes a few blood draws the first time around to set a therapeudic level....and you feel a little lethargic. Nothing a cup or two of coffee wouldn't eliminate. I was a working cop on lithium and even my beat partners couldn't tell. I refused the first time the doc suggested it too, just because of the negative mental images i had. In hind sight I could have saved a few more years of betting my arse kicked by beasty. So believe me, i get it.

joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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