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Here I am again. (Read 796 times)
Melby29
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Here I am again.
Jun 4th, 2012 at 12:47am
 
Hi everyone. I haven't really been on here since my second episode of CHs finished in March last year.... but now, here I am, and I think my CH are back.

My story in brief.... My first attack was in November 2010. My neuro (who I was seeing for what turned into an eventual diagnosis of Multiple Sclerosis) wrote them off as migraines, even though they didn't fit the bill at all. . All the treatment in the world didn't seem to do anything, from migraine preventatives to tramadol and mersyndol. Suddenly, after about 6 weeks, they stopped. Then, about 4 weeks after that, they came back. That cycle lasted about 6 weeks too, during which time I learned of cluster headaches and met all of you on here.

The neurologist scoffed at the idea that I may have Cluster Headaches. His main reason for was that I am female. Go figure. But my then-boyfriend (now fiance!!) managed to "borrow" an oxygen tank from a hospital he was doing security work at, and I found that it worked! My kind GP wrote me a letter to hire oxygen cylinders and I went to a headache specialist, who diagnosed CH. By the time I got in to see him, I had reached the end of my episode and they haven't been back since.

For the last couple of weeks, I have had mini headaches on the right side of my head, that last about 10-20 minutes, then go away. They have been on the right side, above the eye, and at the back of my head. Then today, I got a full-on attack, It's not the forehead/over the eye pain that was the main area that the attacks hit before. But it's constant in my right nostril, behind my ear and my temple area. I don't have any congestion suggestive of a sinus infection (I also never got the typical runny nose/droopy eye with my previous CHs). I so far, it's been a little over an hour. I have taken a Maxalt wafer, which I have carried with me since the Headache Specialist prescribed them - I took that about half an hour ago, and it doesn't seem to have done anything. But I have nothing to compare it to, because I didn't have them when I had my previous attacks, so I have no idea whether they work for me or not.

I'm really really hoping that this is not the start of a new episode. But if this ends the way they usually end - with a lovely pain-melting-away feeling - then I think I will be off to the pharmacist to fill the Verapamil script that I have at home.... oh crumbs, it is probably out of date........ and off to see the specialist!!!
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Batch
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Re: Here I am again.
Reply #1 - Jun 4th, 2012 at 3:03am
 
Hey Melby.

Odds are you're vitamin D3 deficient and that deficiency may be responsible for the frequency and severity of your CH...  That deficiency may even be playing a role in your multiple sclerosis. 

So far, most CH'ers with active CH, who have had this lab test have had results come back less than 30 ng/mL, but we've had a few chronic types test as high as 55 to 61 ng/mL.

CH'ers who have gone pain free taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3, 500 mg/day calcium and the cofactors, magnesium, vitamin K, zinc and boron have all tested in a range from 60 to 110 ng/mL.

We've recently discovered that increasing the magnesium to 400 mg/day and adding vitamin A, 700 mcg (2,333 IU) for women, makes this regimen even more effective.

If you haven't already done so, ask your doctor for the lab test for 25-Hydroxyvitamin D, a.k.a. 25(OH)D, a metabolite of vitamin D3.

There are also at least six (6) randomized, placebo controlled, double blind clinical studies ongoing or completed using vitamin D3 in conjunction with other medications to treat RRMS...  10,000 IU/day has proven to be completely safe and many MS patients take even higher doses.

Take care and please keep us posted,

V/R, Batch
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Melby29
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Re: Here I am again.
Reply #2 - Jun 4th, 2012 at 6:03am
 
Hi Batch,
Thank you for your reply!! I have read some information about the role of low Vit D in MS. They think that explains why the further you are from the equator, the higher risk you have of MS (eg people in Tasmania have a higher incidence than Queensland). I remember some of the discussion on here about all the supplements, so I guess it's time now to put it all together and try to kill two birds with one stone!

I'll be sure to ask my GP about the blood test when I see him next.

I found some ispotin at home, lucky I kept the tablets from the RX that I filled after I saw the headache specialist. Because the RX is over 12 months old now, so I can't use it.

It's been 6 hours since my earlier headache started. I hope I'm wrong. I hope it was just a normal-person headache.....
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wimsey1
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Re: Here I am again.
Reply #3 - Jun 5th, 2012 at 9:16am
 
Quote:
It's been 6 hours since my earlier headache started. I hope I'm wrong. I hope it was just a normal-person headache.....


We hope so too! God bless. lance
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