Yeah... well at least they know there ARE such a thing as CH... guess that's a start..

Now if they'd just listen to their patients with CH - they MIGHT know what to do about them.. but....

Like I said, it surprised both of us that it was in there.  We found it in area talking about "common" diseases and conditions.  Nearly every one of my conditions were not included, but Clusters actually made the list to be included.

We are taking this as acceptance by the Veteran's Administration that there actually such things as Cluster Headaches and that they are gaining much more attention now than in previous years.

On a side note: The pediatrician that sees my younger siblings made a nephew of mine go get his D3 levels tested and checked his symptoms against CH's, just to see if the headaches he was having were Clusters.  I think at least where I am at, CH's are becoming much more well known and accepted by the medical community.

The fact it was in the VA is amazing!  It is a step in the right direction, that's for sure!

AubanBird wrote on May 23^rd, 2012 at 9:29pm:


These are the great stories I like to hear.  It's hard to be excited about getting a name in a book, like when Nathan in "The Jerk" found out his name was in the phone book, but it does give acknowledgement to clusters within the VA.  Goodness gracious, progress, like Barb and Bill (Racer) similarly note.

I might not perhaps have found it in the book without going to the index to see if clusters was in there.  It's just that "common" seems to add to perception it's a "headache".  Like finally getting a big ad in the Yellow Pages for my new pet shop, but finding they listed it under pest control, pest instead of pets.