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Failing my prevents... ideas welcome. (Read 7142 times)
AppleNutClusters
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2012, Year of the Honey
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Richmond, Virgina, USA
Gender: male
Re: Failing my prevents... ideas welcome.
Reply #25 - Jun 14th, 2012 at 12:47pm
 
Thanks, Lance. My GP by far is the best doctor I've seen in terms of his ability to listen and consider my opinions. Therefore, I would hope he's the same way with other docs. But I know what you're talking about--I dated an ER doctor for many years.  Roll Eyes

Akina, I surely hope I'd be able to see the neuro before September! So as soon as I make an appointment, I'll drop you a line. And I may as well start with this Dr. Finkel of yours, because he already sounds way better than my fired neuro. Ugh.
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« Last Edit: Jun 14th, 2012 at 12:48pm by AppleNutClusters »  
jgroulx@mac.com  
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lydia nichole
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Manassas, Virginia
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Re: Failing my prevents... ideas welcome.
Reply #26 - Jun 21st, 2012 at 4:34pm
 
Hey i live in VA and i go to a headache specialist and he is amazing i am a chronic CH'r

The Neurology & Headache Treatment Center

4660 Kenmore Ave Ste 900
Alexandria, VA

I know your in richmond and i know this is far but this guy spent over an hour with me listening to me and my symptoms. Read his reviews pretty much all 5 starts his Name is Dr. Stuart Stark they will load you up with samples. A long wait about 30 mins but worth it!


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Only the strong survive!!!
 
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AppleNutClusters
CH.com Old Timer
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2012, Year of the Honey
Badger


Posts: 261
Richmond, Virgina, USA
Gender: male
Re: Failing my prevents... ideas welcome.
Reply #27 - Jun 21st, 2012 at 9:14pm
 
I'm willing to travel, Lydia. And it's most important that after 10 years of CH, that I have a doctor who will have time to listen. Thanks for the lead... I'll check him out!
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jgroulx@mac.com  
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Batch
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Control The Beast With
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Bremerton, WA
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Re: Failing my prevents... ideas welcome.
Reply #28 - Jun 22nd, 2012 at 2:01am
 
ANC,

Looking for a great neurologist who will listen to you and work with you to come up with a standards of care treatment for your CH problems is a life-long endeavor... 

Any dyed in the wool Mac user should know you'll get better than even money odds working with an Integrative or Holistic physician who understands a vitamin D3 deficiency and how to treat it effectively...  They're also a lot easier to see than a neurologist to boot...

Take care,

V/R, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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lydia nichole
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Manassas, Virginia
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Re: Failing my prevents... ideas welcome.
Reply #29 - Jun 22nd, 2012 at 10:12am
 
He is great. He put me on Topamax (because i have Low BP, Supposedly, i beg to differ) and Prednisone for preventatives and Relpax, Zomig (Nasal & pill) form, and Sumavel DosePro to abort i have had CH since i was 11 and have them chronic 15-20 days a month now i am about 5-8 days a month and they only get to a kip 4-6 only one kip 9 in the last month and a half so i have only used the Sumavel once. but so far his plan is making a difference for me. being before him i was going to the hospital atleast twice a month with kip 10 CH because they would last for at least 3hrs exactly go away for an hour then comeback for another 3 hours. pure hell ! But anyways ! he is a really nice guy and all his reviews are great.
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