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Pinkfloyd

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New; Medication Research Study/Survey
May 2^nd, 2012 at 9:27am

A Cluster Headache Medication Survey

ClusterBusters, a non-profit cluster headaches advocacy and education group, is now offering cluster headache patients the opportunity to participate in an on-line survey regarding the treatment effectiveness of the various medications and strategies used to treat cluster headaches.

You do not need to have tried or used any specific treatment to participate and the survey is applicable to both episodic and chronic persons. This survey will include commonly prescribed traditional medicines (including abortive and preventative medications), various surgical procedures non-traditional medications to alleviate cluster headache. The link to the survey is below.

Cluster headache is a rare disorder and poorly understood and there are very few studies/surveys regarding the effectiveness of the medications or treatments. The data from this survey will be summarized by a neurologist specializing in cluster headaches, will be submitted to a medical journal and will be used for presentations at medical conferences to educate other medical professionals.

If you are a cluster headache patient, please complete the survey as your participation could potentially assist other cluster headache patients and medical professionals in determining the most effective treatment for cluster headache patients.

Please note, it will take 25 to 40 minutes to complete this survey, as it is extensive.
Once started you will be unable to save and return later, so please allow sufficient time to complete the survey in one sitting.

Survey Link: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

All survey answers and information will be held in strict confidence.

For further information please contact us:
Email: info@clusterbusters.com
Web Site: clusterbusters.com
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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: New; Medication Research Study/Survey Reply #1 - May 2^nd, 2012 at 11:47am Did and done, would strongly, strongly, and VERY strongly encourage all to take the time to do this survey. If we don't take the time to help ourselves, we can't really whine that no one else will. A tip of my hat to Bob and the gang behind all this research. joe
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: New; Medication Research Study/Survey Reply #2 - May 2^nd, 2012 at 3:14pm Have just completed it too, will be interested in the results.
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Zeitgeist CH.com Alumnus Offline Clustery szcmustery Posts: 91 \|Norway\| Gender:	Re: New; Medication Research Study/Survey Reply #3 - May 2^nd, 2012 at 7:26pm Done, but even here TAIR (Batch's The Anti-Inflammatory Regime) is not recognized...
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: New; Medication Research Study/Survey Reply #4 - May 2^nd, 2012 at 9:22pm Done
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kika CH.com Veteran Offline I Love CH.com! Posts: 122	Re: New; Medication Research Study/Survey Reply #5 - May 3^rd, 2012 at 10:14pm That didn't take 45 mins! Hope some useful data(and more importantly treatment) comes out of it.
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Imitrex4Breakfast CH.com Veteran Offline Posts: 200 Kentuckiana Gender:	Re: New; Medication Research Study/Survey Reply #6 - May 3^rd, 2012 at 10:38pm Thanks Bob for being so active in helping others with Clusters. I will take the survery when I get a little more time to sit at my computer (soon). Respectfully I4B
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Pinkfloyd

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Re: New; Medication Research Study/Survey
Reply #7 - May 5^th, 2012 at 8:40pm

Thank you everyone for an outstanding response so far.

The great numbers of responders has our medical professionals excited. I know there are a lot of surveys out there. Thank you all again for taking the time to complete the survey.

As to what was and what wasn't included; that was all decided upon with the advice of those medical professionals that are involved.
One thing we are looking to see is how the "real life" numbers compare with "published" and advertised efficacy rates.
Especially when it comes to clusters, much of the published rates and even the clinical trial data was taken from small sample sizes.

This is the first in what will be a series of surveys that we hope will produce some very specific improvements in cluster headache treatment.

Bob

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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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ariel CH.com Junior Offline I Love CH.com! Posts: 83 Long Island new York Gender:	Re: New; Medication Research Study/Survey Reply #8 - May 5^th, 2012 at 9:14pm I've done it
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dougW

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Re: New; Medication Research Study/Survey
Reply #9 - May 22^nd, 2012 at 4:58pm

The response to the ClusterBuster online medication survey has been remarkable.

To those that have already completed the survey, a huge thank you.

For those that have not yet completed the survey, we ask that you please make the time to do so. The information gathered from the survey will be complied into a journal article. Your input is needed to make this a comprehensive and complete review of the commonly prescribed traditional medicines (including abortive and preventative medications), various surgical procedures non-traditional medications to alleviate cluster headache.

(*note - the survey will take 25 - 40 minutes to complete and must be completed in one sitting)

We can make a difference. Help to make that possible.

Survey link is: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Thank you

ClusterBusters Survey Team

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Out beyond wrong doing and right doing there is a field of luminous consciousness. I'll meet you there. (Rumi)

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AppleNutClusters CH.com Old Timer Offline 2012, Year of the Honey Badger Posts: 261 Richmond, Virgina, USA Gender:	Re: New; Medication Research Study/Survey Reply #10 - May 22^nd, 2012 at 5:30pm Just finished.
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cluster CH.com Old Timer Offline WaterX3 - It helps! Posts: 259 Cologne(Europe) Gender:	Re: New; Medication Research Study/Survey Reply #11 - Jun 11^th, 2012 at 4:39pm Done.
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: New; Medication Research Study/Survey Reply #12 - Jun 11^th, 2012 at 9:30pm Done. This is one of those things I kept saying I'll do it next time. Should have done it right away. Thanks CB!
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Kevin-58 CH.com Newbie Offline God Be with us Posts: 10 Middle Georgia Gender:	Re: New; Medication Research Study/Survey Reply #13 - Jun 16^th, 2012 at 11:34pm Done - hopefully this will bring us one step closer to finding an answer. Thanks Bob for the link. Well worth the time. Kevin
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9thNerve CH.com Junior Offline I Love CH.com! Posts: 33	Re: New; Medication Research Study/Survey Reply #14 - Jun 18^th, 2012 at 3:01pm Done!
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dougW CH.com Veteran Offline pain is inevitable. suffering is optional Posts: 232 Canada 'eh. Gender:	Re: New; Medication Research Study/Survey Reply #15 - Jul 11^th, 2012 at 6:25pm Survey is not closed and the process of compiling the data begins. Thank you all for your participation.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: New; Medication Research Study/Survey Reply #16 - Jul 11^th, 2012 at 7:23pm dougW wrote on Jul 11^th, 2012 at 6:25pm: Survey is *not* closed and the process of compiling the data begins. Thank you all for your participation. Not or now?
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