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European Cluster Headache Survey
May 1^st, 2012 at 3:14pm

Eurolight: An European initiative to evaluate the impact of Cluster Headache.

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Eurolight publications, most of them are "open access" / free full text:

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cluster

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Re: European Cluster Headache Survey
Reply #1 - May 4^th, 2012 at 12:55pm

Currently the questionnaire is available in the following languages:

English
Czech
Danish
Dutch
Finnish
French
German
Italian
Norwegian
Portuguese
Spanish
Swedish

Does anybody have a contact to a Czech or Portuguese CH support group and/or medical centre for (cluster-) headaches, to let them know about this survey?

All other European CH support groups have been informed, I think. If not: Please change that and let them know too!

pf wishes
Friedrich

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cluster

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Re: European Cluster Headache Survey
Reply #2 - May 11^th, 2012 at 1:49pm

What is the purpose of the study?

Your participation in this Cluster Headache survey is for the benefit of yourself and other cluster headache patients. The study aims to evaluate the physical, emotional, socio-economic impact of cluster headaches as well as the disease-management satisfaction. The results will help to have a better understanding of cluster headache as a serious health problem and to assess the burden of cluster headache. The obtained information will contribute to evaluating the needs for an optimal disease management and ultimately improving cluster headache services and quality of life. The data will be used for publications in lay and scientific literature as well as reports to the European Commission

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cluster CH.com Old Timer Offline WaterX3 - It helps! Posts: 259 Cologne(Europe) Gender:	Re: European Cluster Headache Survey Reply #3 - Jun 11^th, 2012 at 4:36pm bump
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: European Cluster Headache Survey Reply #4 - Jun 11^th, 2012 at 10:05pm Cluster, Is this for Europeans only???? Don
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: European Cluster Headache Survey Reply #5 - Jun 12^th, 2012 at 4:25am Skyhawk5 wrote on Jun 11^th, 2012 at 10:05pm: Is this for Europeans only???? From trying to do it it seems so as it asks which European country you are in.
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Bob Johnson

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Re: European Cluster Headache Survey
Reply #6 - Jun 12^th, 2012 at 10:21am

I attempted to enroll but it's for European countries only--didn't have a tick for USA folks.

================
6/13-update
Have contacted the study's director and they have plans to add the USA to the countries open to participate.

In process of working out some communication link with them with the--perhaps--goal of getting our group involved in their efforts. All very tentative, at this time....

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« Last Edit: Jun 13^th, 2012 at 8:39am by Bob Johnson »

Bob Johnson

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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: European Cluster Headache Survey Reply #7 - Jun 17^th, 2012 at 2:31am Go Bob! My Neuro said he only looks at surveys for CH info on the web. Don
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cluster

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Re: European Cluster Headache Survey
Reply #8 - Jul 9^th, 2012 at 12:53pm

After a little break for server maintenance the Eurolight survey is back. If you live in Europe, suffer from cluster headache and if you haven’t participated yet, please register here to take the survey:

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The explanations and the questionnaires are available in twelve languages. Please share this information with any European cluster headache patient you know.

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cluster CH.com Old Timer Offline WaterX3 - It helps! Posts: 259 Cologne(Europe) Gender:	Re: European Cluster Headache Survey Reply #9 - Aug 4^th, 2012 at 2:53pm The survey questionnaires are still available. If you are a European with cluster headache and you haven’t participated yet, please do so! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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cluster CH.com Old Timer Offline WaterX3 - It helps! Posts: 259 Cologne(Europe) Gender:	Re: European Cluster Headache Survey Reply #10 - Aug 23^rd, 2012 at 5:59pm The Eurolight Survey will be closing soon. If you live in Europe and haven’t done your mouse clicks yet please register and enter your response right now: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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