FIRST STEP!
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Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you

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Your msg suggests that you are not in the U.S., hence the preceding.....

If a stay in the hospital didn't result in some effective treatment and a good sense of the diagnosis...!

You need to start over again, first locating a headache specialist/clinic. But how/where/when depends on your location.
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IF you have Cluster (and I don't accept that Dx yet), some introductory material for you:




Cluster headache.
From: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article--link, line above--if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]
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Print out the PDF file, below. This is the latest list of standards treatments for Cluster along with evaluations of effectiveness.

WHEN you locate with a headache doc, this list is a good tool to use in discussing treatment options--and as a mechanism to gain some idea of whether you have a skilled doc, i.e., be cautious if some mix of these meds are not prescribed.

Medical literature shows that neurologists receiving strikingly little education in complex headache disorders. I would not assume that any neuro has the skills which you need. Suggest you ask, directly, about this docs training/experience.

This issue is so common that many of us have had to move between several docs before we learned how to find the well trained person.

If oxygen was the only treatment you received in the hospital--that's good evidence of a lack of skill.
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As I was closing this msg, caught your location. Confirms my comments. We have a unfortunate # of UK folks who report the same experience you have had. It's clear that so many of the local docs simply lack basic training in complex headache disorders.

Good news! You have an excellent support group which you must contact. They will guide you thru your health care system to good treatment. By law, you have the right for direct referral to a headache clinic, by-passing your local docs

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

As i said Oxygen is not the only treatment I received, I also got morphine and Verapamil and steroids. I also had the injection although I am not entirely sure what it was called it bagan with S I was in way too much pain at the time to take notice of what they were putting into me