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hello I'm new, and this is my story... (Read 449 times)

Colin223

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hello I'm new, and this is my story...
Apr 10^th, 2012 at 11:20pm

Hello I'm new to this site and my name is Colin, I am from Texas.I am 17 years old... I have been suffering from these headaches for several months now.



                        My Story
Allright several months ago i started getting these pains in my head, peircing pain in my eyes, my neck tends to feel stiff , and sometimes my nose HURTS . I was taking Advil for the headaches found somewhat relief but now it seems like it isn't working at all or somewhat work. As the headaches were raging I decided to get on my computer and google the symptoms... I looked and didn't find anything that matched it, I was stumped and thought it was migranes... Till I looked in my email box that my dad sent my a msg about this site that was telling information about diffrent varities of headaches, clicked it, looked at diffrent headaches, and sure enough cluster headaches matched my symptoms...They HURT, I get anxiety chest pains time to time, BUT THESE HEADACHES HURT!!!!!!!When i was young i do believe i did suffer from a couple but NEVER, i mean NEVER, on this scale... i just want to cry because I get them almost everyday... The most worest i've felt when it had nausea associated with it i was holding my head while sitting on the bathroom floor! When i do get attacks sometimes my left eyelid droops which I'm starting to pay attention to because i didn't notice it at first. I know i can't be the only one with these pains!!!!!!!

« Last Edit: Apr 10^th, 2012 at 11:24pm by Colin223 »

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RichardN

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Re: hello I'm new, and this is my story...
Reply #1 - Apr 11^th, 2012 at 12:00am

Hi Colin & Welcome

First, please take the "cluster quiz" (link on left, 4th from top) and let us know how you do.

We are not doctors and cannot diagnose, so you need to find a good headache specialist and get a CT and/or MRI to rule out other (potentially more serious) problems that can mimic CH. If CH, those tests will come back "normal". CH won't kill you, but the pain is such that one assumes it will . . . how can anything hurt that bad, that often and NOT kill you.

There are many preventatives (which keep the attacks at manageable levels) and abortives (for killing the attack before it reaches the higher levels). Oxygen delivered at hi-flow rates through a non-rebreather mask is a miracle abortive for most of us.

Start a headache journal today. Note the time, duration, pain level (use "the kip scale" . . . link on left) and take your journal and a copy of the Kip scale to your doc.

Try and identify triggers. For most clusterheads, alcohol is a major trigger. For me, exhaust fumes and certain chemicals (like carb/brake cleaner) would often trigger attacks.

Read, read, read . . . ask any questions you might have. If it IS, CH . . . you've landed in the right place.

Be Safe, PFDANs

Richard

I can live with the beast as long as I don't have to "dance" with the bastard.

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wimsey1

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Re: hello I'm new, and this is my story...
Reply #2 - Apr 12^th, 2012 at 8:20am

Hey Colin, and welcome. Richard has given you great advice. Please heed his words. I just want you to know we understand pain, and the pain you describe is familiar to us. You are not alone. And you're not crazy. The source may be CHs but it could also be something else. That's why you need a good headache specialist. If it is CHs, then the pain you feel in your nose is typical, along with jaw and neck pain and pain in the temple of the affected side. That's because of the trigeminal nerve which runs from eye to jaw and which gets involved. keep us posted on your journey. God bless. lance

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