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New CH.com Forum › Daily Chat › General Posts › my meds

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my meds (Read 702 times)

cluster2

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my meds
Jan 21^st, 2012 at 5:00pm

I am female and have been suffering from clusters for years. They come every two years between oct and dec. I get them for about 3months some times 1 a day up to 3 or 4. some times they last 15/20min and some times and hour or 2. the pain in very intense for a while and they clams down. after an episode my head is sore, i am exhagusted. Some times the headache can linger all day.

What am i to do. I don't understand stand how to make them stop. I am on Predinsion and divalproex and gabapentin, also have imtrex injestions which always cause bad rebounds.

What is a person to do. WHY IS THE PAIN SO BAD???????

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Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: my meds
Reply #1 - Jan 21^st, 2012 at 6:30pm

First thing you do is take a deep breath. Realize there are ways to control the beast, but it requires a patient, organized approach. Your medications don't speak of a neurologist experienced in treating CH. Are you working with a headache specialist neurologist yet? This is a lifetime affliction, so the sooner you get to a good neuro, the better.

Read this link, learn it, live it, love it, and find a doc that'll give it to you. Oxygen has all but eliminated my use of imitrex:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I've already mentioned the "Batch Regimen", get on it. Go to the meds section and read the post, "123 pain free days and I think I know why" It's providing way too much relief to be coincidence.

If you're interested in going outside of mainstream medicine, everything from RC Seeds to mushrooms, visit our sister site:

clusterbusters.com

They've gotten people pain free when nothing else was working. Keep reading on the board, knowledge is power.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Linda_Howell

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Posts: 11927
Santa Maria, Ca.
Gender: female

Re: my meds
Reply #2 - Jan 21^st, 2012 at 6:43pm

Quote:

I don't understand stand how to make them stop.

There is SO very much information around this site that I really ask you to start reading, especially the links to the left of here. Yes Imitrex CAN cause rebounds but when you are at work, or out and about in public.. the Imitrex injections or nasel sprays are a life-line. Start reading about 02 therapy in the links. Read some of the stories of folks who've been at this game for years and years and have found ways of dealing with this.

Linda

Hurt people.....hurt people. Think about it.

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Glen conley CH.com Newbie Offline I Love CH.com! Posts: 18 Kingman arizonia Gender:	Re: my meds Reply #3 - Jan 21^st, 2012 at 10:06pm Have you tried lithium and verapamil? This. Combination worked for me.
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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: my meds
Reply #4 - Jan 22^nd, 2012 at 7:20am

o2, O2, O2.... it's working for so many of us that we can't say it enough... with the RIGHT mask (look to the left at the CH.com store for the mask).

And like Joe said, take a deep breath... and start reading... we have about 100 years (at least) of knowledge here on this site and are willing to share and help all we can. We UNDERSTAND cause we're all where you are or have been there.

But you are NOT alone in this.. I've been fighting this beast for more years than I even want to think about and live a fairly "normal" life so if I can - you can also...

Now, let us know about your doc. Sounds like you need to get one who knows a little about CH and get some O2...

We're here - talk to us.. Kiss

What don't kill ya, Makes ya stronger!

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