Has anyone had a good result from Botox I'm going in to get it on Monday that and steroids am stuck in a spiral of pain with no way out am open to anything at this stage but am somewhat anxious also would like to hear from anyone who has had a good result (or any result)

thanks

Bob Johnson wrote on Jan 5^th, 2012 at 10:16am:



By preventing the release of acetylcholine, the muscles don't talk to each other.  It can decrease spasm, which can be very painful, but is usually secondary to whatever else is going on.

Oh ya...thanks again Bob...
the bb

Cailin, please stop this poison routine! The ignorance of people around medicine/treatment is enough in the spontaneous state without adding more hot language to our discussions.

In reality, H2O--Water--can kill you if you drink too much, at one time, inthe wrong settings. Of course, it's extreme and irresponsible to say such things here--but get my point.

Botox is useful and safe in skilled hands. Effective for Cluster?? --another question.

didn't work for me.  Great if it works for anyone one else though!!!

I'm with lance, Bob was just concerned with the verbage. I hear you, in high cycle, when the beast completely has you flat, you'll reach for anything.

Hoping the Botox continues to keep the migrains at bay, give you a little more strength to fight beasty with. That's a full plate you're running with, here's hoping you catch a break soon.

Joe

Got about 50 free unit of Botox injections today. Nuero had some left over from another patient. He said we could try it and it has worked for another one of his cluster patients. Got them this morning around 11am. I am waitng to see if my 3-3:30 pm hit comes around. Will let you know how it goes.

I tried the Vit D3 route and it worked for about 2days. I kept on it for almost a month 20,000 units a day but after a month I think I have given up on it.

I have a few other things to try this week, including adavan....

Curr Treat Options Neurol. 2003 Nov;5(6):483-492.   
 
The Use of Botulinum Toxins for Chronic Pain and Headaches.

Argoff CE.

Cohn Pain Management Center, North Shore University Hospital and New York University School of Medicine, 4300 Hempstead Turnpike, Bethpage, NY 11714, USA. pargoff@optonline.net

The use of botulinum toxin in the management of various neurologic and non-neurologic disorders has grown considerably over the past decade. At the same time, new information regarding the mechanism of action of these toxins has evolved allowing for a greater understanding of the versatility of these agents. Although two types of botulinum toxin (type A Botox and type B Myobloc ) are commercially available in the US, most studies of the use of these toxins for the management of chronic pain and headache have been completed with type A. Data from open-label and retrospective studies as well as clinical practice suggest as strongly as possible that there is a role for these agents, especially Botox, in the management of several chronic headache disorders, including chronic migraine, chronic tension-type, cervicogenic, and cluster headache. Emerging data regarding the use of these agents for so-called "analgesic-rebound" headache also appear impressive; however, as of yet, no multicenter, randomized, controlled studies for any headache type have been published that confirm the results seen in noncontrolled studies. Nevertheless, the benefit that some patients experience from this agent is impressive, and this drug appears for many to modify the disorder in a very positive manner. In a similar fashion, data for other pain states are often restricted to open-label and case study approaches; however, clinical experience and some of the available studies (even small controlled studies) suggest a role for the toxins in the management of various chronic pain states, such as myofascial pain, low back pain, and neuropathic pain. One of the greatest challenges ahead for all interested in this area is confirming the benefit seen clinically through appropriately designed multicenter, randomized, controlled studies.

PMID: 14516525 
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J Headache Pain. 2007 Sep;8(4):236-241. Epub 2007 Sep 24.
Botulinum toxin type-A therapy in cluster headache: an open study.

Sostak P, Krause P, Förderreuther S, Reinisch V, Straube A.

Department of Neurology, Klinikum Großhadern, Ludwig-Maximilians University, Marchioninistr. 15, 81377, Munich, Germany, Petra.Sostak@med.uni-muenchen.de.

The objective of this open single-centre study was to evaluate the efficacy and tolerability of botulinum toxin type-A (BTX-A) as add-on in the prophylactic treatment of cluster headache (CH). Twelve male patients with episodic (n=3) or chronic (n=9) CH, unresponsive to common prophylactic medications, were treated with a cumulative dose of 50 International Units (IU) BTX-A according to a standardised injection scheme into the ipsilateral pericranial muscles. One patient with chronic CH experienced a total cessation of attacks and in 2 patients attack intensity and frequency improved. In another patient with chronic CH typical attacks were not influenced, but an ipsilateral continuous occipital headache significantly improved. Patients with episodic CH did not benefit from BTX-A treatment. Tolerability was excellent. THESE FINDINGS PROVIDE EVIDENCE THAT BTX-A MAY BE BENEFICIAL AS AN ADD-ON PROPHYLACTIC THERAPY FOR A LIMITED NUMBER OF PATIENTS WITH CHRONIC CH.

PMID: 17901920 [PubMed}
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Curr Pain Headache Rep. 2009 Apr;13(2):164-7.

The role of nerve blocks and botulinum toxin injections in the management of cluster headaches.
Ailani J, Young WB.

Jefferson Headache Center, Gibbon Building, 111 South 11th Street, Suite 8130, Philadelphia, PA 19107, USA. jessica.ailani@gmail.com

Cluster headache (CH) is a primary headache syndrome that is classified with the trigeminal autonomic cephalalgias. CH treatment involves three steps: acute attack management, transitional therapy, and preventive therapy. Greater occipital nerve block has been shown to be an effective alternative bridge therapy to oral steroids in CH.

BOTULINUM TOXIN TYPE A HAS RECENTLY BEEN STUDIED AS A NEW PREVENTIVE TREATMENT FOR PATIENTS WITH CHRONIC CH, WITH LIMITED SUCCESS.

PMID: 19272284 [PubMed]