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Pain and Anger (Read 3060 times)
shadows1177
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Sick of this pain in my
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Pain and Anger
Jan 4th, 2012 at 6:33pm
 
Please keep in mind when your reading this that I am still in the beginning of figuring out what is wrong with me and that I found my way here after a week of research and trying to find something that fits what I am experiencing.  I do have a regular doctor that is clueless and just keeps referring me to the emergency room where the pump me full of meds that don't help and I do have and appointment with a specialist but its over a month away.  I have been in pain 90% of the time since 12/18/2011.  Most of the time is a dull ucky pain and then....oh boy watch out, out of no where I get these sharp nasty pains in the left back side of my head, sort of near the ear but a little farther back, some times it seems like the pain is coming from behind my left eye and shooting backwards.  At times this pain has been strong enough to crumble me on the floor in pain.  Typically my face also turns bright red with these pains.  I have been to the ER several times and had a CT that showed a sinus infect but after taking the medication for that the pain never stopped. 

All of that being said, I am noticing something that seems to happen more at work (I am a supervisor in a call center that handles emergency doctor/hospital calls, tech support, answers for government agencies and all sorts of other things).  At work I start to get these spikes in pain around the beginning of my day and in the middle to late part of my day.  The ones in the late part of my work day are the worst.  I have trouble turning my head to look at someone that is on my left side, my neck gets stiff and I start to get ticked off.  Really ticked off.  All of their little questions tick me off, the noise of the clock on the wall makes me mad, the sound of my nails typing irritates me, and I feel so angry and in pain and then it seems that the angry even fuels the pain and makes it worse.  By the time I am off work I am a wreak, in pain, mad at the world, exhausted and haven't found anything that relieves the pain (the dull or the sharp).  To top it off I haven't been able to sleep much since this all started and I know that's making me a grumpy girl.  Has anyone else experienced this with anger?  Both the anger seeming to be caused by the pain and the pain being fueled by the anger and making it worse?
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Shadows
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Mike NZ
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Re: Pain and Anger
Reply #1 - Jan 4th, 2012 at 7:25pm
 
Hi Shadows

Your GP will mist likely be out of their depth with CH as they are far from common and the amount of time spent on headaches at medical school will have been measured in hours, with most of it spent on headache types like tension and migraine. Unfortunately this also applies to most hospital doctors, including many neurologists. The result is that most will just either do nothing much or pump someone full of painkillers as that is all they know how to do.

This is why it's vital to work with someone skilled in dealing with headaches, which is what you're doing although it's tough that you've still a while to wait to see them.

A lot of what you describe sounds like CHs, but there are multiple other conditions with similar symptoms, hence the need to get the diagnosis from an expert so that you get the right treatment.

The result is that at the moment you'll be feeling a lack of control, which for most people is what causes reactions like fear and anger.

Once you've a diagnosis, a treatment plan and it's working you'll find that the fear and anger will ease.

I know exactly what you mean by things like noises getting to you, I too get this, which seems to be more related to the migraines I also get (in addition to CH). Knowing and understanding what things like this can irritate me I try to avoid or minimise their effect. Obviously it's easier with some things than others.

You need to spend time working out what affects you, what works to avoid or minimise it and what you can use to prevent or abort the headaches.

If it turns out that you have CHs then you'll be able to learn a massive amount here about how to deal with them from the collective experience of people here with CH or who support people with CH.

I hope the next month flies and you get the diagnosis you need quickly.
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Headache Boy uk
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Matthew ch 11 v 28


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Re: Pain and Anger
Reply #2 - Jan 4th, 2012 at 8:34pm
 

Hello Shadows

As a ch sufferer that has only suffered one bout of ch so far I've not got that much experience , but one thing that I can suggest that has helped me and many other ch sufferers and is very straight away is to drink a can of red bull or similar as quickly as you can right at the first sine of an attack  .

Another one I've herd of but not tried is to stick your face right in front of an air conditioner on full cold and breathe slow and deep .

Nether of these are guaranteed to help but they might just be worth a go to get you through the day.

Wishing you all the best and a quick diagnosis. Hang in there

God bless

Nigel
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You can't speak a kind word too soon, For you never know how soon it will be too late.

Some people cause happyness wherever they go, others whenever they go
 
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shadows1177
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Sick of this pain in my
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Puyallup WA
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Re: Pain and Anger
Reply #3 - Jan 5th, 2012 at 6:57am
 
Thats actually funny, yesterday I stuck my head in the freezer at work!  It did help a bit, then I started laughing and that makes it hurt worse sometimes....counterproductive....

Headache Boy uk wrote on Jan 4th, 2012 at 8:34pm:

Hello Shadows

As a ch sufferer that has only suffered one bout of ch so far I've not got that much experience , but one thing that I can suggest that has helped me and many other ch sufferers and is very straight away is to drink a can of red bull or similar as quickly as you can right at the first sine of an attack  .

Another one I've herd of but not tried is to stick your face right in front of an air conditioner on full cold and breathe slow and deep .

Nether of these are guaranteed to help but they might just be worth a go to get you through the day.

Wishing you all the best and a quick diagnosis. Hang in there

God bless

Nigel

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Shadows
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coach_bill
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Re: Pain and Anger
Reply #4 - Jan 5th, 2012 at 6:13pm
 
Shadows,

Sounds alot to me like CH. Ive dealt with the anger. It's not your fault. Do ur headaches occur around the same time of the day? Do they wake you at night? Does your eye water when u get the BIG one? These are some of the tell tell signs of CH.

I know its hard, but try not to anticipate the headache, try to live as normal as possible. and try to stay as normal as you can with your sleeping.

Vitamin D3 10,000 IU a day, along with magnesium 500mg a day will help within a couple of days. Also melatonin at night will help.

Cluster headaches are Bad... Dont fear them, they wont kill you. But you must respect them Because they are some BADASS MO FRO's... 

Play the Ball First...
Coach Bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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shadows1177
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Sick of this pain in my
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Puyallup WA
Gender: female
Re: Pain and Anger
Reply #5 - Jan 7th, 2012 at 10:31pm
 
The anger is a real odd thing for me, generally I am very hard to anger or even frustrate.  But when I am hurting.....watch out, I get very short fused

Do ur headaches occur around the same time of the day?   Pretty close....some no but most of them seem to happen with in 15-30 minutes of the same time every day and night, all day and night.

Do they wake you at night?  Oh yeah, big time, but I have had a little luck with Melatonin, but I haven't had a full night sleep in 3 weeks.

Does your eye water when u get the BIG one?  I had this happen today while we were out to lunch, that was new.  The most serious pains turn my face bright red, my blood pressure up slightly (I have low blood pressure unless in a lot of head pain, then its border line high), my left eye twitches, and its all I can do to keep myself from bashing my own head on a wall and definitely can not sit still. 

I have been talking to Batch about different things to take and try and I am going to start some of them tomorrow morning after I go shopping.  I tried to go today but I had some issues in the store and just left, this woman had 3 screaming kids with her and was wearing an entire mall of perfume..... Sad

I really do fear them, I am afraid to work out and do my normal things because of the pain and not really knowing how much its going to hurt, I have a good idea as to when but its the level of pain that surprises me.
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Shadows
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PlayDoh
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Re: Pain and Anger
Reply #6 - Jan 8th, 2012 at 3:52pm
 
My money is on CH. Sounds a lot like me, and I can totally relate to the Anger. I'm no fun at all to be around when I'm in pain. I snap at anyone for anything, its embarrassing as I'm usually VERY polite.
People, with the best intentions usually seem they can help by suggesting the usual "do you want an advil"? "Ya I get those too, take a T3, thats what I do" lol
Like DJ say's "I'd like to stab an ice pick in to their eye socket and say,' oh ya?! You feel like this too?!!!" lmao

coach_bill has great advice as to not anticipate the pain. I found out years later that I was giving myself more pain from Tension/tension headaches on top of my CH. I found meditation-like moments helped me not make it worse. I take deep breaths and try to relax, mostly my shoulders. I found that I was a ball-of-stress before and after my CH, at that time my "Mysterious horrible Headaches".

Also, stay away from pain-killers completely. It will give you more pain, in the form of 'Rebound headaches' if you use them regularly. I'm sure, in my case, I was almost doubling my pain with tension and pain-killers. Both natural reactions to pain, but both counterproductive.

I would ask your Dr for a O2 prescription, or even look into getting a welding O2 setup till you see a specialist. If that doesn't work, print off some of the medical info designed for Dr's (available here) and bring it to the ER. Ask to see a neurologist at the ER, and show them the papers. Even bring them to your family Dr, and ask either for O2 at 15-25 LPM, if not more.

If you have $300 or so, get Batch's O2 setup with a demand valve and 60 LPM regulator. Even if you have to rent your own O2, it will save you so much pain its amazing. I disregarded the O2 therapy for a couple years, at my own demise, since it seemed way to simple.

Get some Imitrex also if your Dr thinks its ok for you to take, regarding side effects. Its expensive, but works. Don't wait a month if you can, and don't take no for an answer. You need to be very assertive regarding your CH's.

The OUCH website has a list of Dr's who are CH knowledgeable, so if possible ask for an appointment with one of them.

You've come to the right place, and you should start to get relief soon from the many resources here. CH's are referred to as the Devil or Demon, and he will try to ruin your life. You need to fight, yet stay positive and calm/relaxed. Explain to people before or after your CH, that you have a very serious neurological condition that causes you excruciating head-pain. Avoid the term "Headache" as people will jump to conclusions, unless you don't care. lol

Your name on here is interesting, as the low-level pain your experience during the day, is referred to as a "Shadow". Give the Vitamins a try for sure, they're my new savior.
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wimsey1
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Re: Pain and Anger
Reply #7 - Jan 9th, 2012 at 8:37am
 
Quote:
Both the anger seeming to be caused by the pain and the pain being fueled by the anger and making it worse?


You asked about anger, and its relationship to CHs. Anger comes from not getting what you want, and is more intensely felt the more we believe we are due, or deserve, what we want. In the case of CHs, we believe we are are due, or deserve, a life free from the pain and interruptions CHs bring. I suppose this is true existensially, we have a "right" to be pain free, but in reality we are never free from pain. We just don't like, nor want, this pain because it is so wild and hard to manage.

We also want control of our life back. The beast takes that away. All of this causes us to feel and behave in a way that is contrary to the welfare of our minds and bodies. It produces stress. So does the attack itself.  And this kind of stress is not the good kind that causes us to compete better. It is the cumulative bad kind that tears away at our defenses and our better nature.

So, sure; there is a feedback loop occurring here. One causes and exacerbates the other, mutually and in turn. The best way to break that loop is to settle into a routine designed to give you a measure of control over these things, find what works, and stick to it. Abort them as efficiently and quickly as possible. Then live fully in between. Many of us have found faith in God helps cope as well, realizing we are not part of some cosmic mistake that has brought all hell crashing into our eye, but rather we share in a particular way that universal broken humanness. Blessings. lance
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RTD
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Re: Pain and Anger
Reply #8 - Jan 9th, 2012 at 10:33am
 
My2 cents on daytime hits...


I haven't heard this from anyone else on here and many may dismiss this, but for me the it seems the food digestion process has become a trigger for me the last few years. I found that regardless of what I eat and I eat really healthy naturally, that's when I get my headaches during the day. Other than some toast or bagel in the morning to wash down whatever I might be taking to try to abort the cycle, I don't eat during my work day. I know many on here would not agree but it gets me through my work days. My wife and I wondered if maybe it takes more blood away from other parts of the body to digest food and maybe that was the cause of my daytime hits which I rarely get anymore. Of course I scarf when I get home and the hits start coming but at least I'm home to deal with it.

Rick
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Headache Boy uk
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Matthew ch 11 v 28


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Re: Pain and Anger
Reply #9 - Jan 9th, 2012 at 11:26am
 

This is something I noticed last time I was in cycle .

My job as a carpenter is quite physically demanding ,and it is a well documented fact on this board that a hit often occurs (or may be that should be comes crashing in like a ton of bricks)just after exercise , so I put the tea brake/lunch/home time hits down to the fact that I had stopped.

Of course not knowing what you do for a living this could be completely irrelevant but I just thought it was worth a mention .

yours is also an interesting theory , are the saliva glands connected to the trigeminal nerve? could be cause and effect.

God bless

Nigel
 
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« Last Edit: Jan 9th, 2012 at 11:39am by Headache Boy uk »  

You can't speak a kind word too soon, For you never know how soon it will be too late.

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Re: Pain and Anger
Reply #10 - Jan 9th, 2012 at 7:01pm
 
Buddha compares being afflicted with bodily pain to being struck by an arrow. Adding mental pain (aversion, displeasure, depression, or self-pity) to physical pain is like being hit by a second arrow. The wise person stops with the first arrow.

Another good one


"Pain is inevitable. Suffering is optional."
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coach_bill
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Re: Pain and Anger
Reply #11 - Jan 9th, 2012 at 8:38pm
 
Shadows,

Hang in there babe. I do understand the fear as well. You got to act now, You need to do some serious weapons checkin.... Get ur weapons in order and break this cycle. Go to Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register and review the info.

It has help me and many others, so after reading some there come back here and tell me what your really afraid of... The pain?  The RX meds? The Busting? Or the fact you have no idea whats really happening to you?

Either way.. Today is the day that you stopped being the victim, Your going to get the hits anyway... So why not turn the fight around!!

Don't take shit off anyone...
Coach Bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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