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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Perhaps a bit morbid ...

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Perhaps a bit morbid ... (Read 1385 times)

Traveller

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Perhaps a bit morbid ...
Jan 1^st, 2012 at 10:40pm

But, as I read through the literature I have not found any instances of a post-mortem analysis of a CH sufferer's brain. Many theories about the hypothalamus and related ideas, but I wonder if there has ever been a post-mortem study to examine these theories?

Is there a recognized center that specializes in CH's? I ask because I for one would be willing to donate my brain (once its no longer needed!) for study. I know this is pretty morbid, but like many I have arranged for organ donation upon my death, and allowing someone the opportunity to examine my brain would seem to be a worthwhile purpose if it could shed some light and perhaps help CH sufferers in the future.

Hard topic to discuss, and I hope I don't offend anyone, but it is something I have thought about. If this is somehow inappropriate to the board then please delete and accept my apolgies.

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PlayDoh CH.com Veteran Offline I Love CH.com! Posts: 116	Re: Perhaps a bit morbid ... Reply #1 - Jan 2^nd, 2012 at 12:37am Interesting, and very admirable of you I might add. I'm sure if you 'made arrangements' such a study would or could take place. I'd give my brain also, heck I'd donate me entire body to be studied. Yet I'd like at least the majority of it returned, cremated for burial purposes. Yet if that was impossible, I'd still donate.
Back to top	As strong and tough as CH's are, I AM STRONGER! IP Logged

IndianaJohn CH.com Hall of Famer Offline Into the jaws of the Beast Posts: 686 Decatur,Indiana,USA Gender:	Re: Perhaps a bit morbid ... Reply #2 - Jan 4^th, 2012 at 10:20am What institution would want them? Would it not be best for an institution that is actively researching CH to have it? Is there any institution in the States that is studying the pathology of CH?
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Perhaps a bit morbid ... Reply #3 - Jan 4^th, 2012 at 12:18pm Dr. Goadsby has talked of a brain bank. You might want to contact his office.
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Perhaps a bit morbid ... Reply #4 - Jan 4^th, 2012 at 12:31pm Peter Goadsby was at this location when he published his studies on the role of the hypothalamus. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Callico

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Re: Perhaps a bit morbid ...
Reply #5 - Jan 7^th, 2012 at 12:25am

The brain has to be harvested within a very short time for it to be useful. therefore, you would have to be at the med center that would be doing the study for it to be of any value. I talked with Dr Goadsby about it at OUCH a year ago and there is no practical way of donating at this time. All of my organs are to be donated and or donated to science for study.

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Perhaps a bit morbid ... Reply #6 - Jan 7^th, 2012 at 6:15am I donated drummer's brain to Doc Goadsby but they couldn't find it.
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