Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Re: MEDICATION $ ASSISTANCE: 12 sources (Read 3485 times)
LasVegas
CH.com Sponsor
***
Offline


Episodic CH since 11 yrs
old, now 50.


Posts: 2020
north of the 60th parallel
Gender: male
Re: MEDICATION $ ASSISTANCE: 12 sources
Aug 16th, 2011 at 9:51pm
 
Thanks BobJ, this info will hopefully prove helpful to those of us who suffer from CH's and have no health insurance.

Has anybody here found any of these sources of assistance for CH's?  If so, which source?
Back to top
  

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
IP Logged
 
GennaG
CH.com Junior
**
Offline


Bring on the Oxygen!


Posts: 31
Asheville, NC
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources
Reply #1 - Sep 13th, 2011 at 9:43pm
 
I just researched all these sites and either they don't have the injections only the pills which don't work for me or I don't qualify.   Cry  I emailed a few of them asking for assistance anyway or a idea of the right direction to go for this problem. I'll report back if I hear from any of them.  GG Wink
Back to top
  

When the going gets weird, the weird turn pro. H. S. T.  Shocked
WWW GennaG https://www.facebook.com/profile.php?id=832897987 lively_goddess  
IP Logged
 
LasVegas
CH.com Sponsor
***
Offline


Episodic CH since 11 yrs
old, now 50.


Posts: 2020
north of the 60th parallel
Gender: male
Re: MEDICATION $ ASSISTANCE: 12 sources
Reply #2 - Sep 13th, 2011 at 9:49pm
 
I also tried, with no luck for assistance Embarrassed
Back to top
  

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
IP Logged
 
ariel
CH.com Junior
**
Offline


I Love CH.com!


Posts: 83
Long Island new York
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #3 - Apr 3rd, 2012 at 10:11am
 
I thought I would just say that I used RX outreach. They don't have the imitrex injections (so unfortunate) but will give a 3 month supply of sumatriptan tabs for $35.00. They also have our standards like verapamil & depakote. You have to be under a certain income level, but it's not too low & no assets are asked for. Application was easy. My doctor wrote me the script for 27 tablets & I sent the check. I'm waiting to see what they will send me. I hope they don't consider the 27 tabs as a 3 month supply though. I'll post again when I get the package.
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #4 - Apr 3rd, 2012 at 11:03am
 
Quote:
I hope they don't consider the 27 tabs as a 3 month supply though.

Most insurance companies I've encountered consider 9 tabs per month an entire month's supply. Which is why you should stockpile any abortives during the times when you don't need them.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Clusterfeck
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 10
Kansas City
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #5 - Jun 14th, 2012 at 4:09pm
 
Be careful stockpiling.  Back when I had insurance and a neuro, they put in my notes how many samples they had given me for stockpiling.  The insurance company took it upon themselves to decide that my CH was much worse than what my application stated.  Long story short, I am ineligible for health insurance and cannot afford a neuro)now due to CH, and they pulled back all claim dollars spent for my CH.  I felt that I was doing them and myself a favor using samples, and not claiming hundreds of dollars that trex cost.
Back to top
  
 
IP Logged
 
Clusterfeck
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 10
Kansas City
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #6 - Jun 14th, 2012 at 4:11pm
 
I forgot to mention that I had to pay for the claims dollars the insurance company took back from the Provider. OK.  I'm done now.
Back to top
  
 
IP Logged
 
AppleNutClusters
CH.com Old Timer
****
Offline


2012, Year of the Honey
Badger


Posts: 261
Richmond, Virgina, USA
Gender: male
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #7 - Jun 15th, 2012 at 4:47pm
 
Clusterfeck, I'm not sure I understand what you mean by "they pulled back all claim dollars spent for my CH".  Could you possibly clarify this?  Not following you at all.  And I do want to know, because I'm also stockpiling here.  Thanks.
Back to top
  
jgroulx@mac.com  
IP Logged
 
snookarosis
CH.com Junior
**
Offline


I Love CH.com!


Posts: 48
texas
Gender: male
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #8 - Aug 4th, 2012 at 7:59am
 
Sorry I am 'off-topic" here, but I have to take a pause to reach out and say that (my experience with meds here) you guys (you know who you are) are the kindest, most generous bunch of people that I have never met....I will always remember the support I have had here Smiley
Back to top
  
 
IP Logged
 
Clusterfeck
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 10
Kansas City
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #9 - Aug 30th, 2012 at 2:16am
 
ANC My policy had been effect for about 2 years, and for some reason Humana decided to take a closer look at my insurance application.  My PCP and Neuro were keeping me in samples of injections, and they were the ones who recommended stock piling.  It was in my record as to how many samples they were giving me, and how frequently.  When Humana was doing their audit thing they determined that since I was getting so many samples I must have minimized the severity of the condition on my application.  They said that if they had known the severity 2 yrs ago, the never would issued the policy.End result was they excluded my coverage for CH retroactively 2 yrs, pulled back the claim dollars spent on CH from the docs, who then in turn my doc made me pay back the claim dollars that had been taken from them by Humana.  Big, ugly mess.  Did that help?  Now I am uninsured and ineligible for any private health coverage.  Automatic decline with my pre-x of CH.

~Jill
Back to top
  
 
IP Logged
 
John B
CH.com Alumnus
***
Offline




Posts: 13
Phoenix, AZ USA
Gender: male
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #10 - Sep 14th, 2012 at 7:59am
 
President Obama and the Affordable Care Act have done all CH sufferers one good turn, regardless of your politics and the flaws in the Act. No more denials for pre-existing conditions Smiley

But, and it is a big but, they can still charge us a ton and use high deductible and coinsurance dollars. If you don't have really good group coverage, you will still pay tens of thousands a year for treatment and meds. Hopefully that will change, too.

Back to top
  
 
IP Logged
 
ariel
CH.com Junior
**
Offline


I Love CH.com!


Posts: 83
Long Island new York
Gender: female
Re: MEDICATION $ ASSISTANCE: 12 sources=UPDATE
Reply #11 - Oct 6th, 2012 at 9:37pm
 
Thats right about the pre existing conditions. Every state is offering a "bridge plan" which I am using. I pay about 420.00 a month & all my doctor had to do was submit a letter stating that he has been treating me for cluster headaches for me to get the policy. All of my headache related meds & appts were covered right away. I don't know what will happen after 2014 though. I guess we'll see soon enough!  Smiley
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!