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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Oxygen Therapy Questions Reply #50 - Jun 21^st, 2011 at 6:26pm This is an EXCELLENT example of a patient being her own best advocate! I couldn't be happier for you. APRIA does same day delivery here in So-Cal if I get a call in early enough. I'm so hoping you get as swift a response! Joe
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Kay Jay CH.com Newbie Offline I Love CH.com! Posts: 17 NC Gender:	Re: Oxygen Therapy Questions Reply #51 - Jun 21^st, 2011 at 8:04pm Apria is the company that my insurance goes with as well. They have a location just about 8 min from my house. Since I'm waiting on the damn doc to get my prescription filled with my insurance. We shall see. Tomorrow at the earliest.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Oxygen Therapy Questions Reply #52 - Jun 21^st, 2011 at 9:07pm Will so change your view of the beasty!!! Joe
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Kay Jay CH.com Newbie Offline I Love CH.com! Posts: 17 NC Gender:	Re: Oxygen Therapy Questions Reply #53 - Jun 22^nd, 2011 at 11:52am Just left Apria. Cost me $14 today and $2.77 every month after. I wish i could use that dancing smiley from the blackberry phones. I feel like i won the lotto lol
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Oxygen Therapy Questions Reply #54 - Jun 22^nd, 2011 at 12:02pm Doin the happy dance for ya! Joe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Oxygen Therapy Questions Reply #55 - Jun 22^nd, 2011 at 1:10pm Do let your doctor know, in the most diplomatic terms possible (in other words, be smarmy about it), that he is wrong.
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Robbie

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Newbie O2 question
Reply #56 - Jun 26^th, 2011 at 6:53pm

Hi all!!

Newbie here. Kay Jay, I am so happy for you!!

I was in your boat last week. I shared with my Dr. what I had read online about O2 therapy; that even JAMA published the wonderful results of a trial done in 2009 and would he PLEASE, PLEASE give me a script for O2, since nothing else was working....and didn't want to get hooked on the Vicodin again.

I have been using O2 now for 3 days.....and YIPPPPEEEEE!!!
Life is good. Although the 'hangover' feeling after 4 - 5 headaches a nite is not.

Can anyone tell me why I seem to be getting MORE nocturnal headaches now that I am using O2? Am I not doing something right, maybe?

So glad you guys are here!!
Thanks!! Grin

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« Last Edit: Jun 26^th, 2011 at 7:23pm by Robbie »

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Oxygen Therapy Questions Reply #57 - Jun 26^th, 2011 at 7:48pm Can't say O2 has anything to do with when you get hit.....at least it's not been my experience.
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Marc

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Re: Oxygen Therapy Questions
Reply #58 - Jun 26^th, 2011 at 8:29pm

High flow Oxygen is a truly wonderful abortive therapy. It isn't a cure, it will not stop the next one from coming and it will not reduce the number of attacks.

However; it WILL halt the agony and give you a chance to find out what other abortive/preventative works for you.

On the other hand: IF you can learn to breathe pure O2 at very, very high flow rates (like 40-60 LPM) for just a short few minutes, your world just may change.

Mine did.

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Guiseppi

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Re: Oxygen Therapy Questions
Reply #59 - Jun 26^th, 2011 at 11:18pm

Robbie, look into Melatonin, an OTC sleep aid available at health food and vitamin stores. I stole the following from Brew:

There was a thread awhile back that went into the differences between types of melatonin.
It was generally agreed that the "good stuff" is
n-Acetyl-5-Methoxytryptamine.
Some people take a combo of both the immediate release (to get to sleep right away) and the time-release (to stay asleep).

So be sure and read the bottles as some of the stuff labeled as Melatonin does not work for us. Once you get the RIGHT Melatonin, start with 9 mg about 30 minutes before bedtime. Some go up to 15 mg or higher but build it slowly. Might take a couple of days to see results but many can avoid the night time terors this way. Hope it helps.

joe

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Robbie CH.com Newbie Offline I Love CH.com! Posts: 18 California Gender:	Re: Oxygen Therapy Questions Reply #60 - Jun 27^th, 2011 at 11:38pm Hi Marc, Thanks for the reply. I had read about the Melatonin and went and bought some today. I looked for that particular kind you mentioned, but all the Melatonin I saw, only said....Melatonin. LOL So, what is the trick to finding the right kind? ~~Robbie
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Brew

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Re: Oxygen Therapy Questions
Reply #61 - Jun 28^th, 2011 at 7:47am

Robbie wrote on Jun 27^th, 2011 at 11:38pm:

I looked for that particular kind you mentioned, but all the Melatonin I saw, only said....Melatonin. LOL

So, what is the trick to finding the right kind?

~~Robbie

You'll have to read the fine print on the back of the bottle, usually under the list of ingredients. It's all marketed as "Melatonin." The brand I use is called Nature's Bounty, and I get it at Walgreens.

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Robbie

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Re: Oxygen Therapy Questions
Reply #62 - Jun 28^th, 2011 at 4:27pm

Hi Brew,

Thanks for your reply.
Seriously, I have looked everywhere on that bottle of 'Spring Valley' (Brand) Melatonin and it does not say anything other than 'Melatonin'. It does, however break down the *other ingredients.....but that is it.

Whatever it is made of, it did not work last night. The only thing it did was make it so that I did not wake up as fast when I started to get a hit, therefore, it was a little harder for the O2 to work.

~~Robbie

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Oxygen Therapy Questions Reply #63 - Jun 28^th, 2011 at 4:49pm For some it can take up to 5-7 days of taking it every day before it becomes effective.
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Jeannie

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Re: Oxygen Therapy Questions
Reply #64 - Jun 28^th, 2011 at 5:05pm

Quote:

The only thing it did was make it so that I did not wake up as fast when I started to get a hit, therefore, it was a little harder for the O2 to work.

Same thing happened to me and it made me afraid to continue taking it. I seem to have good luck with Benadryl. It gets me a few hours of sleep when I'm getting beat up at night.

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Robbie CH.com Newbie Offline I Love CH.com! Posts: 18 California Gender:	Re: Oxygen Therapy Questions Reply #65 - Jun 28^th, 2011 at 6:06pm I am actually not taking it to help me sleep. I have no trouble falling asleep...I am dead tired all the time form being up half the night taking O2. I was under the impression from what I read here in another thread that taking Melatonin may help you to not get hits at night. ~~Robbie
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Brew

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Re: Oxygen Therapy Questions
Reply #66 - Jun 28^th, 2011 at 8:36pm

For those whom it helps, the proper dosage will allow you to stay asleep through that critical transition into REM sleep, which is when the vast majority of CH'ers who get hit at night get hit. This usually occurs around 90 minutes after falling asleep.

So yes, it will help you fall asleep, but more importantly it helps you STAY asleep during go time.

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