Click this link to read a post I like on the clusterheadaches.com message board...

mcmac56

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

wanted: experiences w/ intranasal lidocaine spray
Mar 22^nd, 2011 at 2:45pm

Experimenting with a group of local people, new combinations of meds specifically combinations with intranasal lidocaine. Any input/personal experiences are greatly appreciated. Looking to formulate a new, mostly natural treatment combined with lidocaine, intranasal administration. Please reply with any input, thank you

Back to top

IP Logged

Potter

CH.com Alumnus

Offline

Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
Gender: male

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #1 - Mar 22^nd, 2011 at 3:24pm

mcmac56 wrote on Mar 22^nd, 2011 at 2:45pm:

Experimenting with a group of local people, new combinations of meds specifically combinations with intranasal lidocaine. Any input/personal experiences are greatly appreciated. Looking to formulate a new, mostly natural treatment combined with lidocaine, intranasal administration. Please reply with any input, thank you

My ad would be for better access to oxygen.

Potter

Back to top

IP Logged

Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #2 - Mar 22^nd, 2011 at 3:42pm Lidocaine did nothing for me. 02 knocked it in 10 minutes.
Back to top	I am convinced that life is 10% what happens to me and 90% how I react to it. IP Logged

Jeannie

CH.com Sponsor

Offline

Live, Laugh, Love....

Posts: 2333
St Louis, Missouri
Gender: female

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #3 - Mar 22^nd, 2011 at 6:20pm

call me stupid but, isn't lidocaine topical? how would snorting it bring relief? i'm not being flippant.... i'm truly asking. i understand snorting a triptan which gets into the system and causes the blood vessels to constrict, thus relieving the pressure on the nerve. i don't understand the mechanics behind this.

thanks,

jeannie

Back to top

« Last Edit: Mar 22^nd, 2011 at 7:07pm by Jeannie »

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #4 - Mar 22^nd, 2011 at 7:42pm Tried 4.5% lidocaine spray with no benefit.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #5 - Mar 23^rd, 2011 at 4:00am

A sphenopalatine ganglion block with 1 ml 4% topical lidocaine drip did nothing for my CH - except I almost broke my neck hanging upside down over the back of the couch trying to drip it on the right spot.

A sphenopalatine ganglion block with 4% topical lidocaine applied with a nasal spray applicator did nothing for my CH - but it did freeze my nose, nasal passage, upper lip and cheek. I couldn't smell anything or swallow very well for a couple hours.

Inhalation of 100% oxygen at flow rates between 25 liters/minute and 40 liters/minute aborts my CH in less than 4 minutes if I start early at the first indication of an attack.

Who sent you out fishing and how much are they paying?

Back to top

« Last Edit: Mar 24^th, 2011 at 12:35pm by Batch »

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

Ricardo CH.com Veteran Offline I Love CH.com! Posts: 214 MA Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #6 - Mar 25^th, 2011 at 9:35am Tried it a bunch of times....No help at all
Back to top	IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: wanted: experiences w/ intranasal lidocaine spray Reply #7 - Mar 25^th, 2011 at 11:33am Never tried it. Doc gave me O2 right away and I've never looked back.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Dreamofire

CH.com Newbie

Offline

MMMMMGGGGRRRRRRRRR!!
!!!!!!!!!!!

Posts: 21
Kearney, Missouri
Gender: male

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #8 - Mar 28^th, 2011 at 9:01pm

I have tried it a couple of times. I'm a paramedic and have easy access to it. However it proved to be ineffective. It is more than a topical application some of the drug gets absorbed into the membrains of the nose but it does not specificaly target any part of the anatomy(Trigeminal nerve) . We actually use it as a first line drug in cardiac arrest and potentialy lethal Cardiac arrhythmias.

Back to top

IP Logged

jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #9 - Mar 28^th, 2011 at 10:16pm didna work...for me. best part tho...since it has to be compounded..the pharmacist was intrigued by this "ch thing". i wasn't in the right frame of mind to totally educate...but I got a lot across...there are brothers and sisters who will benefit.... best, Jon
Back to top	The LARGE print giveth....and the small print taketh away. Tom Waits IP Logged

Redrum Ex Member	Re: wanted: experiences w/ intranasal lidocaine spray Reply #10 - Mar 29^th, 2011 at 9:47am Tried it for a while a few years back (don't remember dosage). Did nothing for the CH but my nose does get sore sometimes from pressing the O2 mask too hard against my face and it did help with that.
Back to top	IP Logged

mcmac56

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #11 - Apr 25^th, 2011 at 3:20pm

The theory behind it is that if applied properly, it helps reduce the inflammation and sensitivity of the trigeminal nerve, which is thought to be responsible for a good portion of cluster headache attack, but it HAS to be applied a very specific way. The success rate thus far has been pretty low, but like I originally stated, there are a few of us here that are working to compound the lidocaine solution with a couple herbs and essential oils to make it much more effective. Had decent results so far, but no where near done. thanks for the feedback.

Back to top

IP Logged

mcmac56 CH.com Newbie Offline I Love CH.com! Posts: 6	Re: wanted: experiences w/ intranasal lidocaine spray Reply #12 - Apr 25^th, 2011 at 3:21pm I wish so much that I had the results with O2 that you guys are describing, but no such luck unfortunately
Back to top	IP Logged

mcmac56

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #13 - Apr 25^th, 2011 at 3:24pm

Batch wrote on Mar 23^rd, 2011 at 4:00am:

A sphenopalatine ganglion block with 1 ml 4% topical lidocaine drip did nothing for my CH - except I almost broke my neck hanging upside down over the back of the couch trying to drip it on the right spot.

A sphenopalatine ganglion block with 4% topical lidocaine applied with a nasal spray applicator did nothing for my CH - but it did freeze my nose, nasal passage, upper lip and cheek. I couldn't smell anything or swallow very well for a couple hours.

Inhalation of 100% oxygen at flow rates between 25 liters/minute and 40 liters/minute aborts my CH in less than 4 minutes if I start early at the first indication of an attack.

Who sent you out fishing and how much are they paying?

No one sent me fishing. And I'm not getting paid anything. This is a personal endeavor to take what I've learned in my own experiences and a few other friends to see if we can help others like us who have been completely unresponsive to traditional treatments, i.e. topamax, verapamil, depakote, lithium, O2 therapy, triptans, etc. etc. Just trying to help others who are suffering, while helping ourselves improve our own treatment, beyond the little help we get from our doctors.

Back to top

IP Logged

wishbone

CH.com Junior

Offline

I Love CH.com!

Posts: 36
Birmingham, AL
Gender: male

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #14 - Apr 25^th, 2011 at 4:27pm

I never tried the lidocaine spray. When I was first diagnosed with CH 16 years ago my neurologist prescribed lidocaine but it was a paste (like you would apply topically. Needless to say that was useless trying to get the gel up my nose. Later another doctor prescribed lidocaine liquid (again not a spray) and like Batch I was totally contorted upside down attempting to get the drops in nose at the proper angle. I honestly cannot say the lidocaine drops help to abort my headaches, because as we all know each HA will eventually go away.

I now use O2 with a high degree of success both in aborting and aborting quickly (assuming of course I hit it as soon as I feel the ha coming.

Wishbone

Back to top

Just as I try daily to grow my Faith in God I try daily to learn how to cope with Cluster Headaches

IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #15 - Apr 26^th, 2011 at 12:55am

Hey mcmac56, Do you use a Mac?

No offense intended... just trying to sort out the fly crap from the pepper...

If you're really looking for relief, take a look at the following link to a post I put up in December... Read all 8 pages to see for yourself how it's working for others.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

If you want to learn how to use a method of oxygen therapy that really works... shoot me a PM.

Take care,

V/R, Batch

Back to top

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

Lettucehead CH.com Old Timer Offline I am very blessed... Posts: 293 Iowa Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #16 - Apr 26^th, 2011 at 11:24am Ditto to all the above. Didn't do a positive thing for the headache although the nasty taste did perhaps take my full attention away from the CH for a few seconds!
Back to top	Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH IP Logged

mcmac56

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #17 - May 16^th, 2011 at 11:41am

Batch wrote on Apr 26^th, 2011 at 12:55am:

Hey mcmac56, Do you use a Mac?

No offense intended... just trying to sort out the fly crap from the pepper...

If you're really looking for relief, take a look at the following link to a post I put up in December... Read all 8 pages to see for yourself how it's working for others.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

If you want to learn how to use a method of oxygen therapy that really works... shoot me a PM.

Take care,

V/R, Batch

No actually I am a PC loyalist/builder, it's just a nickname. And thanks for the offer, but I've tried aLOT of different methods with the oxygen therapy to no avail. Appreciate the info.

Back to top

IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #18 - May 17^th, 2011 at 2:55pm I tried the lidocain drops down the affected nostril in the early 80's, very little relief, maybe a click or 2 down on the KIP scale. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

gardengal

CH.com Junior

Offline

I love YaBB 1G - SP1!

Posts: 55
x0|oskaloosa|USA||0|0|
Gender: female

Re: wanted: experiences w/ intranasal lidocaine spray
Reply #19 - May 26^th, 2011 at 10:08am

I tried 4% drip last night when I felt burn coming on in my temple. Seemed to help some,but also had taken cafergot an hour earlier and again with the lidocaine. I did lie with my head back for 5 min. Didn't do that before. Seemed like my eye itself hurt more with the lidocaine, but helped temple some.

Back to top

IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: wanted: experiences w/ intranasal lidocaine spray Reply #20 - May 26^th, 2011 at 2:13pm It did absolutely NOTHING for me. I'm with the rest above. Get some oxygen with a high flow-rate and you won't be sorry.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

mcmac56 CH.com Newbie Offline I Love CH.com! Posts: 6	Re: wanted: experiences w/ intranasal lidocaine spray Reply #21 - Jun 6^th, 2011 at 1:14pm Like I said before, I wish the O2 therapy had worked for me, given it's availability, cost, and ease of use, but I HAVE NOT received results from it, O2 therapy attempted a variety of ways for more than 1.5 years, NO results
Back to top	IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!