My name is Jesi and I'm 19 years old. My dad is a sufferer of the ch monster....and I am too. He was diagnosed with them at 16. I was diagnosed at 17. Before my headaches started about two years ago I would watch my dad suffer from them without being able to do anything except take my younger sister into the next room. Now, my mother has to be the one who take my sister into the next room because my father and I both suffer from the headaches. I remember when I was little, I would hide on the stairs and watch my dad pace back and forh waiting for the ambulance to show up at our house. I was extremely confused, and thought he was acting crazy. Now I know he wasn't.

I suffered from one of the headaches at work the other night, and scared my superviosr as well as my boss. I guess when I sad my head hurt they thought two advil would take care of it, I guess they didn't expect to see me on the floor screaming. My headaches are so severe, they have caused me to have mild seziures.

Because I'm female, my parents thought that I had little chance inheriting my fathers headaches. Now we just pray everyday that my younger sister doesn't develop them.

It's really hard living with this and being only 19. It's taken alot away from me, including my dignity. (having your boss dump you into a wheelchair is not the best feeling in the world) People who don't suffer from ch, or don't live and care for someone who does, they don't understand anything about them...and it's difficult trying to explain it.

I've been looking around online for some type of support for ch, and I'm really glad I found this site. I have a very hard time dealing with these headaches, and to find something to help me cope with them is a really good feeling.  I try to stay positive, but it feels like there is this thing lurking on my shoulder waiting to eat me.

Everything our friend Mike said, and another G'day for good measure.

Welcome home.

Welcome to the board, and drag your dad onto this board too. You will learn everything you need to know to manage your CH's here. You've been given some great starting advice...to continue....

You need to try and get into a headache specialist neurologist. Your general practitioner won't know a damned thing about them and even most neuro's are 20 years behind the times in treatment options.

OXYGEN OXYGEN OXYGEN. I've been rolling with the beast for 32 years, nothing holds a candle to the speed of abort, the convenience, and the cost of oxygen. My attacks used to run 90-120 minutes untreated. Now I feel that pressure in the ear and the tension in my neck starting up, I fire off the 02, 6-8 minutes later I am completely pain free. It's almost scary it works so well.

Like I said, get dad on this board too. An educated CH'er hurts a lot less.

Joe

Quote:


Jesi, since your Dad has had them for such a long time, I am inclined to think that 02 didn't work for him because he wasn't using it correctly.  Back then Dr.s knew less than they do now and that isn't very much.   To the left, there is a yellow button to click on the proper usage of 02.  Read it and have him read it also.   02 must be used with a non-rebreather mask.  The regulator must be at least 15 lpm.  25-to 45 lpm is even better.   

Quote:


CH doesn't cause seizures.  Have you had a thorough exam to msake sure there isn't something else going on?   

Quote:


Imitrex IS Sumatriptan.

In the meantime, please DO try the energy drinks.   I personally like Rock Star, but make sure the drinks have 1000mg. of Taurine in them.  For some reason the Taurine along with the caffeine does the trick.

  Quote:
 

    You couldn't have found a better place than right here for that  Jesi.

  Linda

Hey Jesi,

Just wanted to jump in and say Hi and Welcome.  So glad that you found us.  Sounds like oxygen could really help - changed my life!! and I'm not exaggerating!  Honestly, as soon as you get a good neuro demand 02!!

Wishin you all the best,

Kate


agh gotta go!  Just turned around and found 3 chickens inside the house 

Barry_T_Coles wrote on Dec 3^rd, 2010 at 4:28am:


In the oven for dinner?

We've never had any chooks walk into the house, but we did once have a pukeko wander in. Our 16 year old cat thought that all his dreams had been answered and was most disappointed when we let the pukeko walk back out of the house.

I binged....a pukeko is a new zealand swamp hen.....and it's purple/blue with a red head!
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Guiseppi wrote on Dec 3^rd, 2010 at 3:01pm:


Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

They are really funny when you throw them a bit of bread as they'll grab it and just run in a random direction for about 50m before they stop to eat it.

They are found in Oz and NZ.

Quote:


I assure you.  Even though it nis more prevalent in males by a ratio of about 4 to 1...women do INDEED get CH.   

[quoteYour probably right about him not using oxygen properly] [/quote]    don't blame it on them.  Blame it on the absolute ignorance of everyone so  many years ago.   We know better now so there is NO reason anyone today has to suffer like they did in the past.  Unless they choose to, that is. 

Linda