Well we've seen several chronic sufferers really turn the corner, many of them becoming pain free for significant amounts of time, by taking the non toxic but potentially very effective clusterbusters.com approach.

We're talking people who had tried every drug and some surgeries to no avail, who like you were at their wits end.

Guy, PLEASE read this article (from Newsweek, a very mainstream US news magazine):
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

And watch this video talk by one of our (former) sufferers:
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Hi Guy!

Being Chronic sucks - I am too.  I was episodic for years but turned chronic 8 years ago. 
I started using 02 about 11 years ago.  Have you tried it?   
I've been getting slammed since 2 am in the morning. It's been one long hellish day!

Hi Guy,

I don't get the headaches. I take care of my son Michael, who does. I, of course, have no idea what the horror you're experiencing really feels like but I'm sure he does. He's 26 and started getting hit when he was 12. They tried all the drugs. Some (Imitrex injections) helped more than others but they all lost effectiveness over time. When he was 19, he got into an MVA that should have killed him. It didn't but afterwards he was chronic and his life stopped. No more girls, no more school, no more work, no more friends, no more sports, no more social life. Nothing but the pain and the trips to the ER. And the narcotics. Huge doses that barely touched it. The pain would build and build till he'd clench his jaw, look at me, point to it and black out. Over and Over. Sometimes several times an hour. One time he blacked out 8 times on the way to the ER. Another time in the ER, he was thrashing and screaming so violently that they drug-induced him into a coma, put him into restraints and left him like that for a week while they tried to figure out what to do. Eventually, they just let him wake up. I vividly remember him waking up, noticing that he was in restraints, looking at me and asking why I let them do that to him. I don't remember what I said but it still hurts.

And that's how it's been until about a year ago. Sometime early '09, Michael decided that if things didn't look like they were improving by early '10, he wasn't going to do it any more. I didn't tell him but I was planning to help him. Then I read an article in the journal Neurology which told of a group of clusterheads who had been very effectively using small, sub-hallucinogenic doses of psychedelic drugs and becoming completely pain-free, sometimes for months and even years at a time. I was a hippie during the '60s so I wasn't too concerned about any danger, particularly when compared to the possibility that they might help my son. The hunt was on. It took about 6 months but about a year ago we were given a single dose of LSD. Michael took half of it as soon as I got home. He noticed few if any effects from the drug and several hours later went to bed. About 6:00 in the morning he woke me running up the stairs and screaming "My headache's gone! My headache's gone!" It was gone, completely. And it stayed gone completely for 5 full days! And then it came back. He took the half that was left but it didn't work and our source had disappeared. Soon after that I found this website and began posting in the "Medications, Treatments, Therapies" board topic "Time for the 75-80% to stand up and be counted." I learned a lot. I've never met a more supportive, caring group of people in my life. Soon after this I found another website, Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or . Many of the people here are also members there. That website is devoted to the use of alternative and sometimes illegal medications (the psychedelics). A very good introduction is the video that bejeeber suggests to you at the bottom of his first post.

This horrible monster stole a big chunk of my son's life. But we're beating him now. Michael has a part-time job and is going back to school. There's a very good chance that you can find your way out too. Please stick around. There're a lot of very knowledgeable and supportive folks on both this site and the other. Give us a chance and see if we might be able to help. Good luck.

Ron

Welcome Guy.

Let us and our lovely sister site work as hard as we can for you- we are here to help. I know you're exhausted, and I also know that you have probably posted this information on multiple other sites, but can you give us a rundown of your doses and medications, past and present? Give us the ball and let us run with it- we WILL work to help you, that I promise.

I am a supporter, and the following quote (that I reference in my tagline) helped me in the desperate, tooth and nail fight to find my husband relief. It perfectly summed up how I felt during those desperate times:

"Never give in. Never give in. Never, never, never, never--in nothing, great or small, large or petty--never give in, except to convictions of honor and good sense. Never yield to force. Never yield to the apparently overwhelming might of the enemy."

Seems presumptious for a Yank to be quoted Churchill to you, not gonna lie, but it helped me so I thought I'd put it out there.

And help came. And relief came, both physical and mental. New research is going on all the time, here, on this site. There is a PH diet and formula that has helped the effectiveness of other medications. Specific techniques on oxygen usage, and our sister site's techniques. Kudzu, Melatonin, etc. There is so much out there left for you to try, and new things to try popping up every day, would be a shame to miss out on something that can help because you made a final decision.

I'm so very glad you reached out to us, hang on, and let us fight for you and with you.

Lauren

Bonkers, that might be one of the most powerful posts I've read. You are a good father, my friend.

I don't know what to say to you all. Thank you so much for the lovely welcome and caring thoughts. It does make such a difference knowing there are people out there who suffer the same as myself, it's a shame, but it's good to know.
I am on O2 and have been for a few years, using the maximum amount of 15.lpm. I have a couple of big cylinders at home and always carry a portable with me. I have also tried verap, lithium, melatonin, steroids, topiramate, amitriptyline, sodium valproate, and many many more, most of which I can't even remember. I know that I've been on 960mg of verap, but I'm afraid I would be making doses up if I tried to think back. I'm sure I could get that info from my neuro. I've also done the mixing of drugs. The verap and lithium did me no favours at all and apparently I was like a zombie possessed.
I know that you are all trying to help and I really appreciate it very much. It just seems that I'm being so negative all the time, but how can't I be?
I am a very strong person mentally and have always had the fight in me to try and beat this thing, but it's only lately that things are just becoming too much.
Only when I read your posts does it hit home how we all suffer from this. Some of you are carers, parents with suffering children, and people like myself. I think that we are all so strong to deal with this demon and should all get a pat on the back for dealing with such an illness the way we do.
With regards to the benefits etc, I have been in local press and I've even been to the House Of Commons. I've nagged my MP for the last couple of years (and still do to this day) but even doing all that, and more, nothing.
Maybe one day.
Bejeeber, mindset, Ginger S, Bonkers, Wimsey 1, Lauren 17 and Lee Ann, thank you. And if anybody else should be kind enough to reply, thank you as well.
I'll take everything you've said on board, and will no doubt be in touch again.

Guy.

Have you tried Melatonin? It made a world of difference for my husband. (Time to get down to specifics, my friend!)

Let's go through these options one by one! As to the regulator- can you get a welding regulator? Flow rates are higher with those- that is what my husband uses, 15 is considered a minimum, more success has been had with higher. Also, are you using a non rebreathing mask?

And taurine- have you tried taking an energy drink with taurine (Red Bull, Rock Star, 5 hour Energy, etc) at the FIRST twinge of a headache? Some even combine this with the start of oxygen theraphy with good results (huff huff, sip sip, huff huff kind of thing...)

Don't worry about your first post being negative- all of our first posts were, I dare say! We came in pain, fear, and desperation and stay to learn and help.