Click this link to read a post I like on the clusterheadaches.com message board...

Oct 11^th, 2024 at 3:19pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › My Info - Pieter

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

My Info - Pieter (Read 1155 times)

Pieter

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

My Info - Pieter
Oct 31^st, 2010 at 6:01am

Hi I am 59 year old male - had triple bypass in 2006
accountant in private practice - live in Boksburg South Africa
My lifestyle is hectic - smoke cigars and drink beer
Stop the beer during a cycle
Started my CH about 1986 and have had them every 4/6 years for about 3 months - today 2 months down the line
yesterday 4 am to noon -4 monsters 7-10
on Cafergot 3 pd/ Tripiline 25mg 1 pd with Imigran Injection
Started yesterday with 12 Panafcourt 2 pd and Arthrexin 3pd and have not had an attack since - I know it is early days but a day without is worth gold
In 2004 in my second month of hell - having had all the drugs - used oxygen to abort but no relief otherwise - decided out of desperation to have an opertation offered by the Headache Clinic in Johannesburg , they warned me that it may not work - had relief for about 3 days after the op
and then it carried on to complete the cycle of about 3 months
I have found temp relief not sure if it is only in my mind
If I wake up at 1am with my 1st one I have A headache
powder called "Grandpa" with a teaspoon of ground ginger
disolved in hot water within 1st 2 minutes and then proceed to the kitchen and eat ice cold watermelon in big chunks and possibly end up with an ice-cream headache but at that stage I do not care and start my pacing and grunting - have been lucky in some cases to abort or reduce the pain withih 15mins - not always though.I then get my 2nd 2-3 hours later and then have the injection - then I am at the mercy for the next one - not able to do much about it - lasts about 1-2 hours
I would like to hear from other CH slaves

Regards

Pieter

« Last Edit: Oct 31^st, 2010 at 6:44am by Pieter »

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: My Info - Pieter
Reply #1 - Oct 31^st, 2010 at 9:17am

Welcome to the board Pieter! I don't recognize some of the medications listed, are any of them used as a prevent to reduce the number and/or intensity of your headaches? Verapamil, Lithium and Topomax are 3 popular prevents. I use 1200 mg a day of Lithium when I am on cycle, reduces about 60-70% of my hits.

Oxygen has been showing a lot more success of late, as we've been tweaking with HOW people use it. Please take a second and read the oxygen info tab on the left. I can abort an attack in 6-8 minutes using oxygen, it has all but eliminated my use of the imitrex injections.

A few other people have posted that Ginger helps them as an abortive, glad it's giving you some relief.

Glad you found us, hope we can give you some info to take back to your doc, give you a little pain free time!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: My Info - Pieter Reply #2 - Oct 31^st, 2010 at 10:54am Panafcourt has prednisone in it. Arthrexin has the active ingredient indomethacin. Tripiline is a member of the amitriptyline family.
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: My Info - Pieter
Reply #3 - Oct 31^st, 2010 at 12:45pm

Pieter wrote on Oct 31^st, 2010 at 6:01am:

I then get my 2nd 2-3 hours later and then have the injection - then I am at the mercy for the next one - not able to do much about it - lasts about 1-2 hours

HATE it when that happens! Angry

BUT the imitrex tip has been a lifesaver for me and others, as following it allows a CH'er to get abort 2 or 3 hits with just one injection's worth of imitrex. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Since cold can help you to abort an attack sometimes, it might be worth trying the old "put your nose up to the blasting car air conditioner vent and breathe the freezng air deeply" trick, maybe even with some ice cubes in your mouth. Works for some of us some of the time.

And what Joe said about the newer method of O2 use - it's a big improvement over the old way that the medical profession still ignorantly adheres to.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: My Info - Pieter Reply #4 - Oct 31^st, 2010 at 2:52pm Also try drinking a red bull or similar energy drink which contains caffeine and taurine at the start of a CH. Many people, myself included, have found that it helps to reduce the intensity and duration of a CH.
Back to top	IP Logged

Potter

CH.com Alumnus

Offline

Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
Gender: male

Re: My Info - Pieter
Reply #5 - Oct 31^st, 2010 at 2:55pm

bejeeber wrote on Oct 31^st, 2010 at 12:45pm:

Pieter wrote on Oct 31^st, 2010 at 6:01am:

I then get my 2nd 2-3 hours later and then have the injection - then I am at the mercy for the next one - not able to do much about it - lasts about 1-2 hours

HATE it when that happens! Angry

What he said.

Potter

IP Logged

Skyhawk5

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 1320
Ypsilanti, Mi. USA
Gender: male

Re: My Info - Pieter
Reply #6 - Oct 31^st, 2010 at 11:57pm

Modern O2 use rocks. First you need a mask (that includes a mouthpiece) that is made just for CH. One of the best available is here on the CH.com store for around $28 US. I have 3 of them.

The next thing is higher flow regulators. Many of us need at least 25LPM and higher. Believe it or not, it IS one of the best abortives for CH.
Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

IP Logged

Pieter CH.com Newbie Offline I Love CH.com! Posts: 2	Re: My Info - Pieter Reply #7 - Nov 1^st, 2010 at 7:39pm Hi Guys thanks for the response I am currenty now 2 days free - went to work today not sure if it the Cafergot/panafcort is working or if the cycle is on its way out About energy drinks like red bull , I have been warned not to drink it after I had the bypass in 2006 - not sure Thanks again
Back to top	IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: My Info - Pieter Reply #8 - Nov 1^st, 2010 at 9:12pm ...then high-flow O2 would be right up your alley.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!