Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
"bad" cluster sufferer (Read 1131 times)
mark hebert
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
"bad" cluster sufferer
Oct 27th, 2010 at 7:36pm
 
Yes, I am a bad sufferer, not because of the headaches, but because I never come here til I'm in cycle. I come here and read others talking about it, rarely post, but keep coming back daily to just know I'm not alone in this. that I'm not "abnormal".

I have skipped 3 years, thank god for the 'alternatives' I have found here, the only thing that ever aborted cycles for me.

Have been having these for 25 years now and hoped I had outgrown them, and now I think this cycle is even worse. Not the headaches themselves, I can handle that, it is the free time, when my mind runs, when I'm afraid to sleep due to the devil waiting. The working 12 hour shifts on 3 hours sleep... these are the times I'm going crazy, and having hoped beyond hope that I was free, and getting them now, I have really crashed emotionally, and that on top of the normal physical crash has me just lost....

But I'm a bad clusterhead, because there are so many of you that are here, even when you don't need the support, to help others, and that isn't me. I pretend it doesn't exist when I get free of my demon, I try to forget it exist....
Just saying thanks to those that give their time and their hearts all the time.

sorry if this is rambling, been hit 4 to 5 times every night, oxygen keeps me up after for some reason and running on about 8 hours sleep in the last 3 days.

thanks all
Mark Hebert
Back to top
  
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: "bad" cluster sufferer
Reply #1 - Oct 27th, 2010 at 8:04pm
 
Welcome Mark!  Glad you decided to post.

You'll get no 'shame on you's' here for wanting to pretend when you can that the beast doesn't exist for you.  Everyone handles things differently so no worries there. 

Personally I find it easier to help someone else than to talk about the hard times I have with CH.  But then I am also a very private person generally so suffering quietly and helping others is my preferred method.

What preventative are you on for CH ?  Maybe time to ramp up or ask your Doc about alternatives??

Sending PF vibes your way and I hope things get better soon for you.
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
Katie C.
CH.com Junior
**
Offline




Posts: 44
Northeast Ohio
Gender: female
Re: "bad" cluster sufferer
Reply #2 - Oct 27th, 2010 at 8:19pm
 
Mark,

I'm the same way. I found this site 6 years ago and spent a lot of time reading and learning. Then I left until last year when I stopped in for a quick look around. This year I'm back for good. It's so easy to pretend that I'm not ECH when I'm in remission. The topic never comes up till I get hit. Then it's the only thing that gets talked about.

Good luck to you.

@ Ginger - I love your cartoon graphic. One of my personal faves.

~ Katie
Back to top
  

"Flying is learning how to throw yourself at the ground and miss." - Douglas Adams
WWW Katie C.  
IP Logged
 
bejeeber
CH.com Hall of Famer
*****
Offline




Posts: 1359
Gnashville
Gender: male
Re: "bad" cluster sufferer
Reply #3 - Oct 27th, 2010 at 8:31pm
 
Shame on you Mark!  Angry

Ha just kiddin'  Grin.

You got enough stuff going on right now without completely unwarranted guilt trips about escaping the thought of CH when not in cycle! Heck thank gosh that everyone isn't posting here both when in or outa cycle - that'd be a zoo.  Tongue

If your alternative methods have been of the clusterbuster variety and if you're not already hanging around at the clusterbusters.com forum, I wonder if you could pick up some pointers there such as newer ideas/approaches for maximizing the effectiveness?




Back to top
  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
IP Logged
 
mark hebert
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: "bad" cluster sufferer
Reply #4 - Oct 27th, 2010 at 8:57pm
 
ginger, I haven't been to the doc yet so not sure what she is going to try this year, I know one thing, I won't do Lithium again, it messed me up!

and I did use the clusterbuster 'cures'.... the shrooms worked fantastic for me, just my old friends either quit, or might be in jail now... lol
Back to top
  
 
IP Logged
 
mikstudie
CH.com Old Timer
****
Offline


Beastmaster


Posts: 284
Westland Mi.
Gender: male
Re: "bad" cluster sufferer
Reply #5 - Oct 27th, 2010 at 9:17pm
 
No shame Mark,hell this is the only time (PF) I can type and make any sense. Cheesy

Have you tried Melatonin before bed?? Work wonders for some.
Back to top
« Last Edit: Oct 27th, 2010 at 9:18pm by mikstudie »  

IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!
 
IP Logged
 
mark hebert
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: "bad" cluster sufferer
Reply #6 - Oct 27th, 2010 at 9:36pm
 
was just reading about the melatonin, going to get some now... I have always wondered about the daylight effect, but I work nights and sleep days, well, used to sleep during the days.... now I just do my 100 year old man shuffle in the bathroom... Cry

will post with how it works out after I try it.
Back to top
  
 
IP Logged
 
wimsey1
CH.com Alumnus
***
Offline


I Love CH.com!


Posts: 2457
MA
Gender: male
Re: "bad" cluster sufferer
Reply #7 - Oct 28th, 2010 at 8:19am
 
Quote:
I come here and read others talking about it, rarely post, but keep coming back daily to just know I'm not alone in this. that I'm not "abnormal".


What's wrong with being abnormal? It kinda makes us unique dontcha know? I mean, just think of how many times in conversation you can mention how much it hurts to take a cluster hit, and how they don't know what it's like, and all that good stuff. Seriously, dude, you're just fine; your brain (and ours) may have something messed up with it, but I've been told that for years without any reference to CHs. Keep reading and writing and let us know how you make out at the docs. God bless! lance
Back to top
  
 
IP Logged
 
shaggyparasol
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 192
Portland, OR
Gender: male
Re: "bad" cluster sufferer
Reply #8 - Oct 29th, 2010 at 10:46pm
 
Hi Mark.  Yes, guilt is lame and overrated so let it go...but just because you can't get your psilocybe friends don't forget about other medicines.  RC seeds work great for many and are legal to obtain over the internet, just not legal to ingest, so don't ingest them, just obtain them (wink).  That's my understanding anyways.  Check out the busters and they can give you more info if you want.   Smiley

--Shaggy
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!