Hi,

I've gotten the impression lately that the majority of this site's members would prefer that any discussion of the use of psychedelics in the treatment of CH be restricted to the sister site, clusterbusters.com. Rather than engage questioners in discussion about psychedelics, those of us who champion their use should instead direct them to the clusterbuster site and not discuss them here. Is my impression correct?

Ron

IM is good.

      Potter

Okay. Maybe I was a little hasty. Even paranoid... but... just the same.

Redd, my impressions were formed after reading the thread "Lots of questions" in "Medications, Treatments, Therapies." It seemed that no one was willing to provide Kim D with any information other than directing her to the ClusterBuster website. Joe, no offense, but you told her that "You'll really need to register on the clusterbusters site. For a number of reasons, we don't deal with that subject outside of the referrals we give." Potter, I don't know what "IM" refers to. Marc, I am now and will forever be grateful for the support given me by the members of this website. Had I not found it, my son might well be dead. I love you guys; you're family. I don't mean to be critical. I just don't want to step on anybody's toes by posting unwanted comments. I thought perhaps some unwritten rules had been changed that I hadn't been made aware of.

Ron

Ron,

I'm one who has referred people to clusterbusters primarily because I have no firsthand experience with them and can't advise properly.  I am NOT against their use, and if my circumstances were to change I would be right in there. 

I also know that some who bust are also very cognizant of issues if it were known that they do.  They can be very careful about recommendations as to procedures, etc., or even saying to try them.  They may have livelyhoods that can be effected.  I posted to Kim in support of a couple of them. 

Please don't get the idea that alternatives should never be discussed here.  Personally, although I cannot use them, I would never tell another not to, nor would I do anything to discourage it. I've seen first-hand the good that they do.

Jerry

Damn! Looks like I jumped the gun (as usual). I misinterpreted a few comments and shoved my foot directly into my open mouth (again, as usual). I apologize to anyone I may have offended. I'll try to be more cautious and next time I'll look a little more closely before I leap.

Ron

Maybe I'm a little more adventurous (foolhardy?) now that I'm retired. But I feel it's critical that this information be disseminated as widely as possible, as quickly as possible. These substances flat out work against cluster headaches. For most sufferers, not only their current HA but their future HAs are eliminated. NOTHING works that well. Nothing's even close. Maybe I'm too open, too enthusiastic in championing these drugs, but if we don't speak out and let everybody we can know about this, nothing's gonna happen. These drugs will stay illegal and those who choose to break the law and use them anyway, because nothing else works anywhere near as well, will continue to be criminals. No research will be conducted and these magic substances will stay in the shadows. I personally don't intend to stop until these drugs are readily available, with a prescription, to every clusterhead in the world.

Quote:


correction.psychoactive drugs.

if the purpose is a research to be done on this don't upgrade them just yet.There is a major difference between drug and medicine.The second has been tested over and over while the first has come directly from nature if it's not chemical.
Moreover i don't really understand how a pressure for others to use them can lead to a research(could someone explain the..plan?!).
And bonkers it is pressure cause you just didn't even bother to ask kim what treatments has already done and what not, as there are chronic who are resistant to treatments and episodics who might get relief from the same as it seems that there are major differences between clusterheads(medical literature)

Finally at the other topic here -75% stand up- i only see updates of how succesful it is and pf makes while i ve never read anything here not even for a slight side effect while on clusterbusters has been mentioned(trip).

two articles for whoever wants to read.
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; *

Quote:


ever question why are illegal?

* Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Ron, I think it's a good question and one you needn't apologize for. I didn't think you were aggressive or offensive in any way. I, for one, am grateful for you and others who helped me see an alternative approach. Just wondering, though. Why and when was clusterbusters put up as a site? I get its mission, and I applaud it, but there must have been at least a felt need that a dedicated site was more appropriate than occasional mention on a site such as this one. lance

bonkers wrote on Oct 26^th, 2010 at 7:10pm:


Ron,

I was wondering if a change to a different thread title would be considered as more of a question, such as, "psychedelics ok?" in order to reflect the views posted here as well as your own,

bonkers wrote on Oct 26^th, 2010 at 11:39pm:


instead of any negative impression of consensus.   

I will save space by not retyping it....but Neuropath's response is spot on...in my humble opinion!!! (go back 2 posts)

Joe

Additionally, the entire topic of alts navigates a very narrow path and one in which tolerances on many levels are minimal

Oh I can take a stab at that answer  for you Bonkers!

Abortion
Racism
The designated hitter
Medical marijuana
Medical use of mushrooms!

I dare say starting a conversation on ANY of those topics risks starting a sh%$storm that will leave the initial good intentions of the topic left in the dust!!!

Just Joe's educated guess as to what he meant

Ron,

I think you're missing the point. There are INDIVIDUALS, like myself, who cannot or will not comment specifically for reasons of personal risk. If you feel as though your commenting on the topic does not put you at risk, have at it, man. I encourage you to do so ON WHATEVER THREAD YOU THINK IS APPROPRIATE.

I can't. I know you understand.

Edited to add: I'll even go one step further and say that folks in my shoes depend on guys like you to get the word out. God bless you for doing so.

Quote:

"psychoactive medicines"

"correction.psychoactive drugs.

if the purpose is a research to be done on this don't upgrade them just yet.There is a major difference between drug and medicine.The second has been tested over and over while the first has come directly from nature if it's not chemical."
---------------------------------------------------------------------------
The first (nature) are the chemicals where all medicinal drugs are derived from.
The second (manufactured drugs) is an attempt to synthesize nature and put a price on it.
Both are good to an extent but in the process sometimes a superiority lies in nature. As may be the case with tryptans vs tryptamines

"ORTHODOX MEDICINE which sees mind and body as separate entities, is based on Pasteur’s ‘germ theory’ which has resulted in the multi-billion $ pharmaceutical industry which funds, educates and controls modern medicine.
(In short, we are the random victims of external microbes and are dependent upon healing via external intervention (drugs, invasive techniques, surgery, etc.)

ALTERNATIVE MEDICINE describes treatments which are not orthodox (mainstream medicine) - treatments which are an alternative to orthodox. In general, therapies are based on Bechamp’s ‘polymorphism and terrain theory’ which acknowledges and works with the body’s own in-built healing mechanisms.
(In short, we are responsible [please note - not the same as to blame] for our state of health which determines whether we are vulnerable to states which are defensive in nature but labelled inflammatory, infective or degenerative - a cause and effect relationship.)"

Basically ClusterBusters attempts to address the cause while traditional drugs attempt to address the symptoms.

CB "medicines" were once all the rage of the medical communities before silly trippy people helped big pharma and our side funded politicians to get them sent away through misinformation campaigns.
Pre 1970s research showed extreme potential for benefits in many ways. That research is renewed and back again.

I am a strong believer in the clusterbuster medicines and I live the results of being pain free after 34 years not.
I hope these discussions continue allways here, there and everywhere in an open and unbiased or biased way. Just as long as there is a discussion.

An interesting read we can all find fault in if we want but also more truths. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or