Click this link to read a post I like on the clusterheadaches.com message board...

Kim D

CH.com Junior

Offline

Posts: 77
Nashville, TN
Gender: female

Lots of questions...
Oct 24^th, 2010 at 2:35pm

Hola! It sure has been awhile since I've been here... and I hate to say that I'm back but I had a new cycle start yesterday morning at 5:37am.

Anyways, I've got a few questions...

Verapamil and Topamax never worked for me. Yesterday I felt an attack coming on and within 2 minutes I used oxygen at 20LPM for 10 minutes and it did nothing for my headache, it got worse. I sucked it up and took an injection of imitrex and proceeded to take a pain pill for the shadow. I also started prednisone yesterday, I had some stocked up for this instance.

What else can I try??? I really want to take Lithium but my doctor and parents freak out when I say that. And fyi, I'm a 20 year old female, college student, sorority sister, very active and generally a happy person.. so they think lithium is going to make me depressed.. honestly, i'll be depressed anyways if I have to deal with these CH's for 2 months (my normal cycle time).

I've tried the ole' shot in the head and that worked for about 4 days. The prednisone will hold them off until I run out. I get about 4 imitrex shots per month. Soo, what will I do when I run out of those options?

Nose spray? Botox? Cut my head off? Help!

And I know I'm going to get a lot about Oxygen, but it's so unrealistic for me to carry around an oxygen tank everywhere I go because I'm soooooooo busy, and it usually doesn't work for me anyways. Yes, i have a full mask and yes, I have a good regulator. My dad is on the rescue squad and he hooks me up.

Thanks,
Kim

Back to top

Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1.

IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #1 - Oct 24^th, 2010 at 2:58pm "Full mask" means nothing. Is it a non-rebreather? In other words, are you getting 100% O2 on inhalation, or are there holes in the side of the mask that mix room air with the O2?
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Lots of questions... Reply #2 - Oct 24^th, 2010 at 3:05pm Bag the pain pill. Potter
Back to top	IP Logged

Kim D

CH.com Junior

Offline

Posts: 77
Nashville, TN
Gender: female

Re: Lots of questions...
Reply #3 - Oct 24^th, 2010 at 3:13pm

Brew wrote on Oct 24^th, 2010 at 2:58pm:

"Full mask" means nothing. Is it a non-rebreather? In other words, are you getting 100% O2 on inhalation, or are there holes in the side of the mask that mix room air with the O2?

Yeah, yeah. A NRB mask. That is what I meant. I even put tape on the holes and hold the mask away from my face when I exhale, so I'm pretty sure I'm getting 100% O2. It doesn't work. Sad

Back to top

Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1.

IP Logged

Mike NZ

CH.com Hall of Famer

Offline

Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: Lots of questions...
Reply #4 - Oct 24^th, 2010 at 3:46pm

Kim D wrote on Oct 24^th, 2010 at 2:35pm:

I really want to take Lithium but my doctor and parents freak out when I say that.

If your doctor freaks out about trying a treatment that is well documented in medical literature then I'd consider a different doctor, unless there are other medical issues that indicate that lithium isn't appropriate for you. If there are then he should be explaining why not rather than just "freaking out".

Kim D wrote on Oct 24^th, 2010 at 2:35pm:

Verapamil and Topamax never worked for me.

It could be that you were not on a high enough dose for them to be effective. The dose to prevent CHs is often well above that used for other medical issues. I know my GP did a double take when I mentioned how high a dose of verapamil some people use until I showed him printouts from Bob of medical literature, then he was happy to bump up my dose to a more effective level.

Back to top

IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: Lots of questions...
Reply #5 - Oct 24^th, 2010 at 4:34pm

I find Kudzu to be an effective prevent. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

; I prefer Natures Way. Call them if interested and they give great service and rush them out if they know you are needing them badly. I usually get them within three days. Your normal dosage will be 6 capsules a day, so you can figure how many you will need. I take 2 with each meal.

Jerry

Back to top

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #6 - Oct 24^th, 2010 at 7:06pm Have you tried Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Kim D CH.com Junior Offline Posts: 77 Nashville, TN Gender:	Re: Lots of questions... Reply #7 - Oct 24^th, 2010 at 9:06pm Brew wrote on Oct 24^th, 2010 at 7:06pm: Have you tried Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Tell me more.
Back to top	Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1. IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #8 - Oct 24^th, 2010 at 9:33pm Kim D wrote on Oct 24^th, 2010 at 9:06pm: Tell me more. Not a chance - other than that it works. That's why I provided the link. Go there and read.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Kim D CH.com Junior Offline Posts: 77 Nashville, TN Gender:	Re: Lots of questions... Reply #9 - Oct 24^th, 2010 at 10:06pm Brew wrote on Oct 24^th, 2010 at 9:33pm: Kim D wrote on Oct 24^th, 2010 at 9:06pm: Tell me more. Not a chance - other than that it works. That's why I provided the link. Go there and read. I've gone to the website and been reading for awhile. I don't see any information that isn't already on this site. Help?
Back to top	Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1. IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #10 - Oct 24^th, 2010 at 10:29pm Try this: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Potter

CH.com Alumnus

Offline

Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
Gender: male

Re: Lots of questions...
Reply #11 - Oct 24^th, 2010 at 10:31pm

Kim D wrote on Oct 24^th, 2010 at 10:06pm:

Brew wrote on Oct 24^th, 2010 at 9:33pm:

Kim D wrote on Oct 24^th, 2010 at 9:06pm:

Tell me more.

Not a chance - other than that it works. That's why I provided the link. Go there and read.

I've gone to the website and been reading for awhile. I don't see any information that isn't already on this site. Help?

That's hard to believe.

Potter

Back to top

IP Logged

wimsey1

CH.com Alumnus

Offline

I Love CH.com!

Posts: 2457
MA
Gender: male

Re: Lots of questions...
Reply #12 - Oct 25^th, 2010 at 8:21am

Kim D wrote on Oct 24^th, 2010 at 2:35pm:

Verapamil and Topamax never worked for me.

Yesterday I felt an attack coming on and within 2 minutes I used oxygen at 20LPM for 10 minutes and it did nothing for my headache, it got worse.

What else can I try???

Nose spray? Botox? Cut my head off? Help!

And I know I'm going to get a lot about Oxygen, but it's so unrealistic for me to carry around an oxygen tank everywhere I go because I'm soooooooo busy, Kim

Kim, go ahead and try nose spray and botox. Try reading more on this site about other good abortives and preventatives. Realize your 10 minutes of O2 usage may not be enough, nor might 20lpm. And many of us are reeaaaallly busy, too, but I won't go anywhere without O2 when I'm in cycle. And what doses didn't work?

More questions than answers I'm afraid. May your day be pain free. lance

Back to top

IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Lots of questions...
Reply #13 - Oct 25^th, 2010 at 10:37am

You'll really need to register on the clusterbusters site. For a number of reasons, we don't deal with that subject outside of the referrals we give. But LORDY they've been cranking out some success stories!

I've used Lithium as my prevent forever. I worked as a patrol deputy and a patrol sergeant while taking 1200 mg a day. It did not depress me or turn me into a Hollywood stereotype mouth breathing zombie! Grin

If I didn't tell you I was on it you wouldn't know it.

A couple of suggestions while you work at either educating your doc or finding a more knowledgeable headache specialist neuro!!

Start the following regimen up to 3X a day:

Calcium Citrate with Vitamin D, magnesium and Zinc, washed down with fresh lemonade. This will alter your arterial PH making you less succeptible to attacks. This will not cure or completely stop your attacks, but for many it has reduced the number and intensity of their attacks. Oxygen stopped working for me last cycle and this regimen had the 02 working again in about 30 hours. Cheap, woth a shot, and a young lady like you should be taking clacium anyways! Wink

I'll re stress the importance of trying to locate a headache specialist neuro. You will probably have CH for life, so the sooner you can get on board with a good head neuro, the better off you'll be long term!

Joe

Back to top

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Kim D

CH.com Junior

Offline

Posts: 77
Nashville, TN
Gender: female

Re: Lots of questions...
Reply #14 - Oct 25^th, 2010 at 12:58pm

Potter wrote on Oct 24^th, 2010 at 10:31pm:

Kim D wrote on Oct 24^th, 2010 at 10:06pm:

Brew wrote on Oct 24^th, 2010 at 9:33pm:

Kim D wrote on Oct 24^th, 2010 at 9:06pm:

Tell me more.

Not a chance - other than that it works. That's why I provided the link. Go there and read.

I've gone to the website and been reading for awhile. I don't see any information that isn't already on this site. Help?

That's hard to believe.

Potter

Don't be rude, please. I'm almost 21 years old and I've had these for 7 years, nobody understands and I have hardly any support. I went to that website and I don't know where to look. I spent about 2 hours on there but it seems to be the same people/same posts. I saw some stuff about RC seeds, shrooms, etc. but I have no idea what that stuff is. What I was looking for was someone pointing out "try ____ from clusterbusters".

Back to top

Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1.

IP Logged

mikstudie

CH.com Old Timer

Offline

Beastmaster

Posts: 284
Westland Mi.
Gender: male

Re: Lots of questions...
Reply #15 - Oct 25^th, 2010 at 1:25pm

OK guys,I think Kim needs a little more specific help that I know you veterens of this site can give her.

Kim I am new here,but what has worked for me is Melatonin at bedtime and the Red Bull energy drink when I feel a hit coming. The pain pills are USELESS..

A lot of folks here use 02,but I know little about this as I dont use it. I dont think anybody is being rude,when I first visited this site I thought a few were kinnda short but some people are just quick and to the point.

Back to top

IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!

IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #16 - Oct 25^th, 2010 at 1:26pm Perhaps a little more plain English: Nobody here who has a job or standing in a community that might be subject to public scrutiny is going to elaborate for you. You're going to have to go there and figure it out for yourself - like the rest of us did. Nobody escapes having to do the legwork. End of explanation.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

mikstudie

CH.com Old Timer

Offline

Beastmaster

Posts: 284
Westland Mi.
Gender: male

Re: Lots of questions...
Reply #17 - Oct 25^th, 2010 at 1:48pm

Brew wrote on Oct 25^th, 2010 at 1:26pm:

Perhaps a little more plain English: Nobody here who has a job or standing in a community that might be subject to public scrutiny is going to elaborate for you. You're going to have to go there and figure it out for yourself - like the rest of us did. Nobody escapes having to do the legwork.

End of explanation.

???

Back to top

IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!

IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #18 - Oct 25^th, 2010 at 1:54pm mikstudie wrote on Oct 25^th, 2010 at 1:48pm: ??? How about PLAINER English - it's illegal. Expound if you want - you'll not get me to. You think it's wise to start extolling the virtues of something that could land one in prison? Sheesh.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

mikstudie CH.com Old Timer Offline Beastmaster Posts: 284 Westland Mi. Gender:	Re: Lots of questions... Reply #19 - Oct 25^th, 2010 at 2:01pm I did not know advice was illegal. I give it all the time,best I should be locked up. Sheesh
Back to top	IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!! IP Logged

mikstudie CH.com Old Timer Offline Beastmaster Posts: 284 Westland Mi. Gender:	Re: Lots of questions... Reply #20 - Oct 25^th, 2010 at 2:03pm Thats funny, all I got when I came here was advice "SUGGESTIONS" same thing. Kim sorry about the hijack it's all yours.
Back to top	« Last Edit: Oct 25^th, 2010 at 2:07pm by mikstudie » IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!! IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Lots of questions... Reply #21 - Oct 25^th, 2010 at 2:18pm mikstudie wrote on Oct 25^th, 2010 at 2:01pm: I did not know advice was illegal. I give it all the time,best I should be locked up. Sheesh Knock yourself out.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: Lots of questions...
Reply #22 - Oct 25^th, 2010 at 2:41pm

Mikstudie,

To suggest, advise, or whatever other synonym you want to use, an illegal substance on a public forum is not wise. If you want to you are welcome to.

I know several people who have had phenominal results using some illegal substances for medicinal purposes, not recreational, but they are still illegal. I have not, although I want to, but am unable. I cannot though recommend them to someone else. Kim is going to have to do her own research, as did we, and make her own decisions. We can't do it for her.

That is not being unkind, but rather self preservation.

Jerry

Back to top

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Linda_Howell

CH.com Moderator
CH.com Alumnus

Offline

Do not feed the Moderators

Posts: 11927
Santa Maria, Ca.
Gender: female

Re: Lots of questions...
Reply #23 - Oct 25^th, 2010 at 3:38pm

Quote:

That's hard to believe.

Potter
Don't be rude, please

I believe what Potter was trying to say was that on the clusterbusters site there is INDEED a lot more info. about what you're interested in looking for, than there is here. It wasn't rude at all. Honest.

Also...you can get 02 tanks that are small. Small like what would fit in a pack-pack. Many here have cloth carrying cases they fit into and no one even thinks twice about it. They can fit easily in a locker at school or behind a desk, etc. I used to leave one in my car, and just went outside if I got hit, used it for 10 mins. and went back to my job..with no one the wiser.

Back to top

Hurt people.....hurt people. Think about it.

IP Logged

mikstudie

CH.com Old Timer

Offline

Beastmaster

Posts: 284
Westland Mi.
Gender: male

Re: Lots of questions...
Reply #24 - Oct 25^th, 2010 at 4:06pm

Callico wrote on Oct 25^th, 2010 at 2:41pm:

Mikstudie,

To suggest, advise, or whatever other synonym you want to use, an illegal substance on a public forum is not wise. If you want to you are welcome to.

I know several people who have had phenominal results using some illegal substances for medicinal purposes, not recreational, but they are still illegal. I have not, although I want to, but am unable. I cannot though recommend them to someone else. Kim is going to have to do her own research, as did we, and make her own decisions. We can't do it for her.

That is not being unkind, but rather self preservation.

Jerry

My suggestions were Melatonin and Red Bull????? You people advised me on MANY abort and prevents and none were illegal. I think this is what the poster is looking for. But I also see where you and Brew are coming from.

Back to top

« Last Edit: Oct 25^th, 2010 at 4:15pm by mikstudie »

IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!