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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Just Diagnosed after 4years

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Just Diagnosed after 4years (Read 1106 times)

marc2010

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Just Diagnosed after 4years
Sep 19^th, 2010 at 9:40am

hi all am new here am 23 and just diagnosed whith ch after 4 years of pain! went for mri scan and every thing was ok

the doctors was surprised how i managed to cope with the pain for solong with out treatment! i was on Pizotifen for 4 years because my doctor thought a had migraines they did nothing but make me gain 2stone lol any way i got the greater occipital nerve block done last month and got oxygen home with me and got the sumatriptan injection

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Guiseppi

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San Diego to Florida 05-16-2011

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Re: Just Diagnosed after 4years
Reply #1 - Sep 19^th, 2010 at 9:45am

Awesome that you have the 02 and the injections, just want to confirm you have a good 02 set up as that makes all the difference in the speed and effectiveness of the aborts!

Non Re Breather Mask, high flow regulator of at LEAST 15 LPM, get on it as soon as the tingle of the beast starts!

Has your doc talked to you about any prevent meds? A med you take daily to reduce the number and intensity of your hits? I use lithium, blocks 60-70% of my attacks, Verapamil is the most common first line prevent, Topomax also has a loyal following.

Glad to hear you found a doc who knows CH, that's huge. Welcome to the board.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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marc2010 CH.com Junior Offline I Love CH.com! Posts: 35 Uk Gender:	Re: Just Diagnosed after 4years Reply #2 - Sep 19^th, 2010 at 10:13am thanks yes i have a non re breather mask, high flow regulator at 15 LPM it wasnot my doctor who diagnosed me he sent me to a specialist at Southern General Hospital:) yes they said to me about the lithium but thats if nothing else works ill have to go on that
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Just Diagnosed after 4years Reply #3 - Sep 19^th, 2010 at 12:03pm Great news! Welcome to the club no one wants to belong to. Hoping you catch a short cycle this go round. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: Just Diagnosed after 4years Reply #4 - Sep 20^th, 2010 at 9:01pm Welcome, Ok young man, I remember being 23 and having those clusters.. You got alot to learn, and you are in the right place to learn it. I only wish i could have found this site whn i was 23, and not 43.. lol coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Just Diagnosed after 4years Reply #5 - Sep 21^st, 2010 at 7:40am What everyone has said! Welcome, and prayers for a short cycle. You will need courage and hope, and everyone here will try to pump you full of both. Blessings. lance
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Just Diagnosed after 4years Reply #6 - Sep 21^st, 2010 at 8:18pm Marc Hello! Welcome to the club where membership is not voluntary and the beast collects his dues with alarming regularity. Glad you have O2 and a good Doc! Sending PF vibes your way!
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or An eye for eye only ends up making the whole world blind. M.K. Gandhi If you are going through hell...Just keep going IP Logged

bejeeber

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Re: Just Diagnosed after 4years
Reply #7 - Sep 21^st, 2010 at 10:55pm

Hey marc2010,

I hope the 02 is working good for you! If it ever fails you, please keep in mind that many of us require higher than 15 LPM.

And since you have the Sumatriptan injections, I hope you've seen this critical bit of info on how to stretch them (and be less likely to OD on them): Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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