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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Newbie from Kansas

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Newbie from Kansas (Read 1032 times)

magoo51

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Newbie from Kansas
Aug 31^st, 2010 at 3:15am

Hello All,

My name is Khalil and I have been a CH sufferer for as long as I can remember. I am a week into my annual cycle, and I haven't missed them at all! As I sit here at 2:00 AM with an Imitrex injection by my side and a Rockstar energy drink at close reach, I am afraid to fall asleep because I know that the beast is waiting for me. I had a K-5 last night and a K-8 the night before that. Two weeks ago life was grand!! A bad round of golf was my biggest worry. This site has given me so much insight and useful information. I can't wait to write a post after this cycle has ended and be so thankful to not be going through this pain!! THANK YOU, THIS SITE HAS MADE ME REALIZE HOW STRONG CLUSTERHEADS TRULY ARE!!

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Newbie from Kansas Reply #1 - Aug 31^st, 2010 at 6:34am Welcome Khalil! We are a tough bunch aren't we?! Have you looked into O2 for your CH ? Sending PF thoughts your way.
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or An eye for eye only ends up making the whole world blind. M.K. Gandhi If you are going through hell...Just keep going IP Logged

Guiseppi

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San Diego to Florida 05-16-2011

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Re: Newbie from Kansas
Reply #2 - Aug 31^st, 2010 at 7:47am

Khalil Greene....the ex San Diego Padres short stop??? My daughter had such a crush on you! Grin

Welcome to the board, we're glad you found us. 3 suggestios:

1: the biggest one...read the oxygen info link on the left. 32 year sufferer here and 02 has almost eliminated my use of imitrex. Average abort time for me is less then 10 minutes.

2: A decent prevent med...one you take daily while on cycle to reduce how many hits you get and how strong the hits are. I use lithium, verapamil is the typical first try and topomax works for many.

3: Since you suffer from night time hits purchase a bottle of melatonin from a health or vitamin store. Start wtih 9 mg 30 minutes before bed time. Some go as high as 15 mg, some take a combo of 6 mg regular melatonin and 9 mg slow release to get them thru the night. Helps to avoid the wake up calls. Give it 7-10 days to see if it helps you.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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shellcory

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Re: Newbie from Kansas
Reply #3 - Aug 31^st, 2010 at 9:52am

Hi Khalil,
I just want to say welcome! It's amazing how finding this community can have such an impact on people's lives, the knowledge that you are no longer alone allows a comfort which most sufferers and supporters have never had the opportunity to feel. The people here are very strong, supportive and full of wonderful information, and yes they have an understanding which is almost impossible to find anywhere else. Hope this cluster doesn't last to long and that pain free times find you soon.
Regards Shell

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Newbie from Kansas Reply #4 - Aug 31^st, 2010 at 9:56am welcome Khalil - Glad you found the site. It's wonderful to be able to share with people who understand. Hope it's a short cycle for you and that some of the suggestions given will give you relief. Christy
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Newbie from Kansas Reply #5 - Aug 31^st, 2010 at 11:21am Using a preventive med is essential. See the PDF file, below.
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bejeeber

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Re: Newbie from Kansas
Reply #6 - Sep 2^nd, 2010 at 1:46am

Hello Padres shortstop...er Khalil,

You sure are doing the smart thing and the right thing coming here and collecting the tips'n tricks that'll optimize your beast fighting capabilities!

I suppose you've seen the imitrex tip on the left already? If not, it can be a tremendous help to an imitrex user, and IMO is a must read: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

« Last Edit: Sep 2^nd, 2010 at 1:47am by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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