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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Just saying hi

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Just saying hi (Read 940 times)

Dale Caffrey

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Just saying hi
Aug 28^th, 2010 at 7:24pm

Hey people,

Episodic sufferer here. Usually once a year at the end of summer (Now Cry

). Diagnosed at the end of my first cycle (four years ago) luckily & have been fighting the beast since then. Had my worst attack ever a few nights back & it really scared me. Have been reading up a lot of info since then & thats whats brought me here.

Hopefully with all the help at hand here it can make my life a little easier.

Dale.

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bejeeber

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Re: Just saying hi
Reply #1 - Aug 28^th, 2010 at 7:37pm

Hey Dale,

Glad you found the forum! Considering that you've just recently had your worst attack ever, I bet this info gathering quest you're now on will lead you to some markedly improved relief. It sure has for a lot of people here.

« Last Edit: Aug 28^th, 2010 at 9:48pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Headache Boy uk

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Matthew ch 11 v 28

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Re: Just saying hi
Reply #2 - Aug 28^th, 2010 at 8:46pm

Hi Dale

Welcome to the board

There's lots of different stuff to try to manage this condition like O2 if you don't have it already (more info on link to the left) it is the front line abortive that most people here swear by , not tried it my self yet but I will asap .

There's also the clusterbusters method (link also to the left) which is having grate results using mushroom tea etc.

for now a grab a can of Red Bull or similar , any energy drink with Caffeine (0.03%) and Taurine(0.4%) and drink it as quickly as possible at the first sign of an attack , it can help reduce the intensity of an attack or even stop one and it very straight away too.

God bless

Nigel

You can't speak a kind word too soon, For you never know how soon it will be too late.

Some people cause happyness wherever they go, others whenever they go

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Just saying hi Reply #3 - Aug 28^th, 2010 at 11:12pm Welcome to the board Dale, when you get a chance give us a run down of your treatment regimen, prevents, aborts etc. Maybe you'll give us a pearl, maybe we can make a suggestion to take back to your doc. It's what makes the board work! Glad you found us. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Just saying hi Reply #4 - Aug 29^th, 2010 at 8:06am Welcome to the club no one wants to belong to, and where the dues are collected by a beast master from hell! Glad you found us Dale! Sending you some Beast a$$ kicking vibes!
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or An eye for eye only ends up making the whole world blind. M.K. Gandhi If you are going through hell...Just keep going IP Logged

Dale Caffrey

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Re: Just saying hi
Reply #5 - Sep 3^rd, 2010 at 8:38pm

Thanks for the warm welcomes everyone.

No special routine or anything. The only thing the docs given me is an ongoing prescription for Imigran (Sumatriptan) which doesn't always seem to have the desired effect unfortunately. Definitely found out some new info but I'm hoping I won't have to use it much

I've read a lot on the O2 & wouldn't mind having some on hand ready. Is it just a matter of bringing it up with the doc or is there some specifics he'll want to know?

Dale.

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Guiseppi

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Re: Just saying hi
Reply #6 - Sep 3^rd, 2010 at 8:45pm

Read the oxygen info link on the left as it must be used correctly or it's useless. The keys:

A high flow regulator...at least 15 LPM, preferably one that goes to 25 LPM, a Non Re Breather Mask, Nasal Canulas and re breather masks do NOT work, and you must start it as soon as you feel the beast stirring. Last cycle my aborts averaged 6-8 minutes. Beats the hell outta the 90 minute rides I used to take.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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